Got the results on line for MRI 12/27

camul
camul Member Posts: 2,537
edited December 2012 in Breast Cancer #1

Unfortunately, what I was expecting.  There is increased metabolic activity in L3/4, 4/5, L5/S1, as well as in the T/ spine.  Term used is 'worsening'.  It is what was expected, but I was still hoping for arthritis instead:))  So I will still go fishing next week with my family at Lake Mead, it is warmer than here.  My mobility is lessening so my doctor has said to do whatever I feel I can handle and I enjoy spending the time with them.  I will stay at the hotel while they all go fishing, and then we will be together the rest of the day.  Works for me, and if the drive is too hard I will fly home with one of my boys.  My ex will be going with us too.

Doris, you are so right!  I have been able to gauge the progress by the pain and symptoms.  I will say though that I am feeling so much better not on the chemo, and unfortunately for me, the cancer continued to grow while I was on it.  At this point it is not quite palliative as I am still on herceptin and Evista, but chemo is no longer an option, and I have not been able to bring myself to go on hospice.  I keep hoping that the herceptin and Evista is slowing the progression some, but pain levels and MRI tell me otherwise.  So now it is quality over quantity!  I am not giving up on living, my body is just wearing out! 

Had MRI to check the spine from the neck to the tailbone to find out what the beast has been doing.  Got results from liver function tests and heart echo last week, both were good!  However, we are not expecting the same results from the MRI, but it will at least let us know how much more damage this little beast has caused for sure, as the pain and mobility in my back and hips is worse.   Now if they don't have to stop the test too many times....  very claustraphobic even with valium! 

 

 

Comments

  • lynn1950
    lynn1950 Member Posts: 2,570
    #2
    Carol,  I will be praying for

    Carol,  I will be praying for the best results!

  • mommaellen
    mommaellen Member Posts: 195
    #3
    Sending prayers to you.

    Sending prayers to you.

  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #4
    Good luck with your MRI. Your

    Good luck with your MRI. Your in my prayers sweetheart.  Praying for good news when will you know the results?

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #5
    smalldoggroomer said:

    Good luck with your MRI. Your

    Good luck with your MRI. Your in my prayers sweetheart.  Praying for good news when will you know the results?

    Fingers, toes, and eyes

    all crossed for you, Carol.

     

     

  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #6
    Though late

    in the day I will be praying nonetheless.

  • camul
    camul Member Posts: 2,537
    #7
    aisling8 said:

    Fingers, toes, and eyes

    all crossed for you, Carol.

     

     

    Got through it
    Get this, what are the chances of 2 power outages while I am in the tube. 45 minute MRI took over 2 1/2 hours. Thank God for Valium! After the first outage they had to reset the.machine so I was out of the tube for 10 minutes, after the second one, the generators kicked in and they didnt have to reset so they used the down time to access the port so it was ready when they got to the contrast. Had to laugh with his one. Now I dont see the doctor til 2 weeks from Friday....
    Which is okay with me, as we already have the diagnosis, just glad I was able to get these tests done b4 the new co-pays kick in.
    Thanks everyone. Victoria keep em crossed.
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #8
    Praying for you and sending

    Praying for you and sending big, big hugs!!  Hoping for all good news Smile.

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #9
    CypressCynthia said:

    Praying for you and sending

    Praying for you and sending big, big hugs!!  Hoping for all good news Smile.

    Carol .. Thinking about you .. and those

    Results!   Kiss

    Prayers and positive thoughts for you dear Sister.

     

    Vicki Sam

     

     

  • SIROD
    SIROD Member Posts: 2,194 Member
    #10
    With High Hopes

    Hoping that the news will be better than your pain is indicating.  Though for me, I have always been able to tell what the outcome of the scan would show by the symptoms I was experiencing.  Every now and then, I had a surprise.  I hope it will be that for you too.

     

    Wishing you the best, Carol,

     

    Doris

     

     

  • debi.18
    debi.18 Member Posts: 850 Member
    #11
    SIROD said:

    With High Hopes

    Hoping that the news will be better than your pain is indicating.  Though for me, I have always been able to tell what the outcome of the scan would show by the symptoms I was experiencing.  Every now and then, I had a surprise.  I hope it will be that for you too.

     

    Wishing you the best, Carol,

     

    Doris

     

     

    Prayers

    Carol, keeping you in my prayers and sending lots of hugs and positive thoughts.

    hugs, Debi

  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #12
    You will be in my thoughts

    You will be in my thoughts and prayers as you undergo an MRI.  Big hugs to you.

    Ines

  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #13
    I'm really glad you made it! 

    I'm really glad you made it!  But 2.5 hours sounds torturous..

    I had and MRI when I was in the hospital with shingles.  I was so doped up I don't remember any of it!  Not the ride there, or all the noises...nothing.

    Let us know what the results are when you get them.

     

    Hugs,

    Linda

  • JanPat
    JanPat Member Posts: 25
    #14
    camul said:

    Got through it
    Get this, what are the chances of 2 power outages while I am in the tube. 45 minute MRI took over 2 1/2 hours. Thank God for Valium! After the first outage they had to reset the.machine so I was out of the tube for 10 minutes, after the second one, the generators kicked in and they didnt have to reset so they used the down time to access the port so it was ready when they got to the contrast. Had to laugh with his one. Now I dont see the doctor til 2 weeks from Friday....
    Which is okay with me, as we already have the diagnosis, just glad I was able to get these tests done b4 the new co-pays kick in.
    Thanks everyone. Victoria keep em crossed.

    Prayers

    Praying for you and your family.

  • SIROD
    SIROD Member Posts: 2,194 Member
    #15
    For Carol - Palliative care Information

    Carol,

    I am so sorry.   I really hoped.   I know when we are really in tune with our bodies, we do know.  Your doctor's statement is correct, do whatever makes you happy.

    Understand how you feel about hospice.  Palliative care program can help you with the adjustment and you can take medication on that program.  Why not check it out at your cancer center or hospital?  I plan on this step when I need it.  Please call them for information.

    I copied the following for my parents when they wanted to know more.  They are in assisted care now so it's a mute point for them.  I kept what I found for me later:

    Comparing palliative care and hospice care

    Although you may hear these terms used in similar ways, they are slightly different. Palliative care is given at every step of the treatment process and at all stages, whereas hospice care is a form of palliative care given to people with cancer who are expected to live six months or less, regardless of their age or type of cancer. If a person needs to make the transition to hospice care, palliative care specialists will help with the transition to hospice care and address the physical and emotional issues that come with that choice.

    Wishing you a nice time at Lake Mead and a lot of joy sharing time with your sons.

    Best,

    Doris

     

     

     

  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #16
    Lake Mead and time with the

    Lake Mead and time with the family sounds fabulous.  I hope you thouroughly enjoy it!!  I agree with Doris, pallative care might be just right for you.  

    Hugs,

    Linda

  • garam
    garam Member Posts: 1
    #17
    I hope u okay!
     

    Sending

    I hope u okay!

     

    Sending prayers to you.

  • camul
    camul Member Posts: 2,537
    #18
    Gabe N Abby Mom said:

    Lake Mead and time with the

    Lake Mead and time with the family sounds fabulous.  I hope you thouroughly enjoy it!!  I agree with Doris, pallative care might be just right for you.  

    Hugs,

    Linda

    I think palliative care is what I am getting now

    with the patches.  It is the hospice that they suggested that I am having trouble with.  I volunteered with hospice for a year, and if I do tht I would have to stop the herceptin and the hormonal treatment (Evista), and if there is any way at all that these are slowing the progression I want to stay on them.  I was worried about the tumors in the liver, but my onco is not concerned about those.  His concern is the bone tumors. When I become 100% reliant on my wheelchair, then I risk pneumonia. 

    Amazing what this disease can take from you, but also amazing (although I wish I would not have learned this firsthand), is how it opens your eyes to life around you and how much we have to be thankful for. 

    Hugs to all of you,

    Carol

     

  • sea60
    sea60 Member Posts: 2,613
    #19
    garam said:

    I hope u okay!
     

    Sending

    I hope u okay!

     

    Sending prayers to you.

    Praying for you

    Sending my hugs. Enjoy your time with your precious family.

     

    Sylvia

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