Waldenstrom's

waldenstroms
Hello, I started chemo for w in May this year. Mainly rituxan and cytoxan, fludara for one week a month. R for the first day, then C for the next 3 days, then finish with Nulasta shot. I am having a hard time handling the chemo. Gain 7 pounds during chemo week. Loose it over the next 3 weeks. I need to loose more. I used to compete in 5k runs. Now I'm happy to work around the house. Hope you're doing good.

lynnhill said:

waldenstroms
Hi, you are the first person I found with waldenstrom's. My husband was dx Dec.09, and
had 2 chemo tx with CVP-R so far, 4 more to go. He is 58 yrs. old, and it was found
through routine urine tests during a physical. Please let me know how you are doing

Waldenstrom's
I see by the dates, there is not much activity on this subject.

I was diagnosed with Waldenstrom's in 2001.I was 53 years old. I did chemo with Fludara the first time. The next half dozen or so, Fludara was combined with Rituxan. The results were much better and lasted longer.

I just started chemo again last week. However, this time Bendamustine was given for my first round (2 days). I had absolutely "NO" side affects with Fludara and Rituxan.

With Bendamustine, I have felt like crap for 4 days now. (upset stomache and feeling very lazy/tired).

The plan is to combine Bendamustine with Rituxan In 4 weeks.

Has anyone had Bendamustine with these side affects??
I am going to ask my doc if I can just do the Rituxan only. I don't know how well that is going to go over.

oldfart said:

Waldenstrom's
I see by the dates, there is not much activity on this subject.

I was diagnosed with Waldenstrom's in 2001.I was 53 years old. I did chemo with Fludara the first time. The next half dozen or so, Fludara was combined with Rituxan. The results were much better and lasted longer.

I just started chemo again last week. However, this time Bendamustine was given for my first round (2 days). I had absolutely "NO" side affects with Fludara and Rituxan.

With Bendamustine, I have felt like crap for 4 days now. (upset stomache and feeling very lazy/tired).

The plan is to combine Bendamustine with Rituxan In 4 weeks.

Has anyone had Bendamustine with these side affects??
I am going to ask my doc if I can just do the Rituxan only. I don't know how well that is going to go over.

Waldenstrom's

I too am looking to see if I can learn anything here. My husband will start his chemo this Thursday " tomorrow". Do you have any advice you can share ? I will share as we start our first battle on Waldenstrom's. Your not a old fart at all. He is 60.

Thanks , Ellen