esophegus cancer survivors

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  • lyndez
    lyndez Member Posts: 22
    #22
    goty2001 said:

    LDN
    Lynne
    When I read details of the regime for a moment I thought my wife had posted about me ... very similar except the LDN - I had researched it and thought it might be something for when I'm done with chemo ... but now thinking maybe I shouldn't wait. Does your husband get it prescribed by the oncologist, or with his approval?

    Hi goty2001
    No, the
    Hi goty2001

    No, the oncologist does'nt know what we are doing, because most don't believe in alternative medicine, but I work for a family doctor therefore, I was able to convince him to write a prescription for LDN. We live in Canada but I get it from Irmat pharmacy in New York City. I would encourage you to get a prescription for it as soon as possible, we did'nt wait and my husband was on chemo when he started it and as I always mention, he worked 7 days a week while undergoing chemo. Good Luck.
  • DelForbes
    DelForbes Member Posts: 1
    #23
    LauraandLarry said:

    Survivors
    Welcome Julia, I joined this site in September and have used it as my first "go to" site when I have a question or concern. It is a wonderful site with so much first hand info. I hope you find this place as useful as well. Hopefully you have sought out Cancer Treatment Center, and have other opinions. Never, ever lose hope and chose a Dr. that will never give up as well. My husbands Dr. doesn't have the greatest personality but is a genius and is known for never ever giving up. We recently met a 2 year survivor of stage 4 with liver mets who was inoperable as well. His recent scans have clear. I cant say that the road has not been rough but he is alive and even has returned to work part time. Keep the faith.

    Cancer center doctors.
    Hi. Hope you are doing okay.I went to the Juravinski Cancer Center in Hamilton Ontario and was given seven weeks of radiation to my Larnyx.I wouldn't wish that on someone I hated with a passion.It got rid of the cancer but cooked my throat like you wouldn't believe.I was told I would be taught to talk again and what to eat and what to avoid.None of this proved to be true.Every three months they ram a tube down my throat and say no cancer come back in three months.I quit going back.No help with the sticky brown mucus that chokes me so bad I had to go to the emergency room because I couldn't breath in the middle of the night.They didn't tell me I'd need Eltroxin to replace the stuff my Thyroid doesn't produce anymore.I still can't find a way to get rid of the mucus(Thick,brown and sticky as heck that sticks to my throat.)I'm terrified to go to bed at night now.Can anyone help me with any info.It would sure be appreciated.I wish you all a Merry Xmas and a Happy New Year.Hang in there and quit fighting. Del.
  • Amjosmom
    Amjosmom Member Posts: 212
    #24
    DelForbes said:

    Cancer center doctors.
    Hi. Hope you are doing okay.I went to the Juravinski Cancer Center in Hamilton Ontario and was given seven weeks of radiation to my Larnyx.I wouldn't wish that on someone I hated with a passion.It got rid of the cancer but cooked my throat like you wouldn't believe.I was told I would be taught to talk again and what to eat and what to avoid.None of this proved to be true.Every three months they ram a tube down my throat and say no cancer come back in three months.I quit going back.No help with the sticky brown mucus that chokes me so bad I had to go to the emergency room because I couldn't breath in the middle of the night.They didn't tell me I'd need Eltroxin to replace the stuff my Thyroid doesn't produce anymore.I still can't find a way to get rid of the mucus(Thick,brown and sticky as heck that sticks to my throat.)I'm terrified to go to bed at night now.Can anyone help me with any info.It would sure be appreciated.I wish you all a Merry Xmas and a Happy New Year.Hang in there and quit fighting. Del.

    Welcome, Del!
    Welcome to the EC Board, Del. I'm sorry you're here, but glad you found us. I will do my best to get answers for your questions. Hang in there! I'll be back soon.
  • paul61
    paul61 Member Posts: 1,392 Member
    #25
    DelForbes said:

    Cancer center doctors.
    Hi. Hope you are doing okay.I went to the Juravinski Cancer Center in Hamilton Ontario and was given seven weeks of radiation to my Larnyx.I wouldn't wish that on someone I hated with a passion.It got rid of the cancer but cooked my throat like you wouldn't believe.I was told I would be taught to talk again and what to eat and what to avoid.None of this proved to be true.Every three months they ram a tube down my throat and say no cancer come back in three months.I quit going back.No help with the sticky brown mucus that chokes me so bad I had to go to the emergency room because I couldn't breath in the middle of the night.They didn't tell me I'd need Eltroxin to replace the stuff my Thyroid doesn't produce anymore.I still can't find a way to get rid of the mucus(Thick,brown and sticky as heck that sticks to my throat.)I'm terrified to go to bed at night now.Can anyone help me with any info.It would sure be appreciated.I wish you all a Merry Xmas and a Happy New Year.Hang in there and quit fighting. Del.

    Have you tried Mucinex?

    Hello Dell,

    I am so sorry that you are having difficulty after your treatments. I have no personal experience with this medication but several people in our forum take a medication called Mucinex (Guaifenefin) for mucus at night. My understanding is that there is a over the counter strength and a perscription strength. 

     

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009                  T2N1M0  Stage IIB
    12/03/2009                         Ivor Lewis
    2/8 through 6/14/2010       Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    Three year survivor

    Life may not be the party we hoped for, but while we are here we might as well dance!
     

     

  • Glombardo
    Glombardo Member Posts: 3
    #26
    New member (unfortunately)

    Hi gang,

    my dad was diagnosed with stage IV esophageacan cece this week. It's been a roller coaster with Christmas and having to wait the extra days for results. He is in Boston and is being treated at the Dana Farber Center at Brigham and Women's hospital. Anyone have info on this? 

    He is being intentionally vague with us (his adult kids), but we know this is pretty horrendous news. Cancer in ,over and a little in his stomach. They are inserting a port on Wednesday and starting chemo shortly thereafter. The type of chemo is unknown as they are waiting for HER receptor blood results. 

    Any hints on support would be very appreciated. Thanks all. 

  • Glombardo
    Glombardo Member Posts: 3
    #27
    Glombardo said:

    New member (unfortunately)

    Hi gang,

    my dad was diagnosed with stage IV esophageacan cece this week. It's been a roller coaster with Christmas and having to wait the extra days for results. He is in Boston and is being treated at the Dana Farber Center at Brigham and Women's hospital. Anyone have info on this? 

    He is being intentionally vague with us (his adult kids), but we know this is pretty horrendous news. Cancer in ,over and a little in his stomach. They are inserting a port on Wednesday and starting chemo shortly thereafter. The type of chemo is unknown as they are waiting for HER receptor blood results. 

    Any hints on support would be very appreciated. Thanks all. 

    Typos galore

    I apologize for all the typos in my last post. Crying while typing on an iPad is a very bad combination as far as literacy is concerned...

    grace

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