fatigue or depression
Comments
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Beilabeila said:thank you Ro10
So nice to receive words of support from you.
I looked up Compazine....unfortunatlely this is the American word for Stemetil....so same thing.
I find that sometimes it is more of a "heartburn" than actual nausea, so sometimes I take antacids....Zantac, instead of, or in addition to Stemetil
I have a CT scan after my 4th Doxil/ Avastin (a week ago I had my 3rd)
Am trying not to think about it and be terrified
If this is not working, there are other chemos that one could try, right?
Chemos that I have learned of on this site, like Gemzar, Topotecan Ixabepilone
This site has helped me with hope and positivity, and role models more than anything else
I am afraid to ask my Oncologist at this point, as I am afraid she will use the word "chemo-resistant"
I need reassurrance that there would be other options if necessary...and I hope you all can give me some positive feedback to ward off the terror of hopelessness
Canada is more conservative/less aggressive in general, and in this in particular.
I love that the attitude on this site seems to be to manage this like a chronic disease, treating recurrences or non responses with other options. like HIV/AIDS.....wasnt like that in the 1980"s, when I was working with these patients in New York, but it is now!!!
This is what keeps me going
gotta go now.....my mother-in -law just brought me soup
more Anon,
Beila
Hope you enjoyed your soup. Nothing like homemade soup, and knowing that someone cares about you.
I too found out that the stemetil was the same as compazine. I was disappointed to not have another drug to try for the nausea. I have taken Zantac at times. I already take Prilosec daily.
I hope you get good results from your CAT scan. Like you said there are other drugs to try if the Doxil, Avastin are not working. My doctor mentioned several drugs to try if the taxol/cisplatin stops working for me. Hopefully you will find a combination that works for you. In addition to the ones you mentioned my doctor also mentioned cytoxan as a choice.
From the beginning of my diagnosis in Jan 09 my doctor told me my stage 3-C UPSC could be treated like a chronic disease. So I have always looked at it that way. That is why I expect to get a recurrence and I expect to go back on chemo. I am just thankful that I can still take the gold standard drugs and they are still working for me.
Hope you are not as fatigued with this round of chemo. In peace and caring.0 -
thank you, thank you, thank you Ro10Ro10 said:Beila
Hope you enjoyed your soup. Nothing like homemade soup, and knowing that someone cares about you.
I too found out that the stemetil was the same as compazine. I was disappointed to not have another drug to try for the nausea. I have taken Zantac at times. I already take Prilosec daily.
I hope you get good results from your CAT scan. Like you said there are other drugs to try if the Doxil, Avastin are not working. My doctor mentioned several drugs to try if the taxol/cisplatin stops working for me. Hopefully you will find a combination that works for you. In addition to the ones you mentioned my doctor also mentioned cytoxan as a choice.
From the beginning of my diagnosis in Jan 09 my doctor told me my stage 3-C UPSC could be treated like a chronic disease. So I have always looked at it that way. That is why I expect to get a recurrence and I expect to go back on chemo. I am just thankful that I can still take the gold standard drugs and they are still working for me.
Hope you are not as fatigued with this round of chemo. In peace and caring.
LOVE THAT "CHRONIC DISEASE" TALK!!
Feel so much better...gotta get that ingrained in my brain
Wish I had your doctor
My 1st one was entirely negative & cold
The one I have now is nice, but knows I dont want to hear anything negative, but never says anything posititive either
I am in bed fatigued, but if this is the price to pay for a chemo being effective, NO PROBLEM!!
I know it is temporary
I just set up a short term goal
Just bought a slinky Victorias Secret sweater-dress.....and my goal is to wear it a week from this Saturday to my athletic club...should be feeling better by then.
I will go with my friend Robert....another MD cancer-beater (I hate the word "survivor"....he has done much more than survive! ) and his girlfriend .....we will have a swim (my very best therapy, but impossible during this severe fatigue) and then a delicious holiday dinner with me decked out in my new dress!
Beila0 -
Speaking of chronic..........Ro10 said:Beila
Hope you enjoyed your soup. Nothing like homemade soup, and knowing that someone cares about you.
I too found out that the stemetil was the same as compazine. I was disappointed to not have another drug to try for the nausea. I have taken Zantac at times. I already take Prilosec daily.
I hope you get good results from your CAT scan. Like you said there are other drugs to try if the Doxil, Avastin are not working. My doctor mentioned several drugs to try if the taxol/cisplatin stops working for me. Hopefully you will find a combination that works for you. In addition to the ones you mentioned my doctor also mentioned cytoxan as a choice.
From the beginning of my diagnosis in Jan 09 my doctor told me my stage 3-C UPSC could be treated like a chronic disease. So I have always looked at it that way. That is why I expect to get a recurrence and I expect to go back on chemo. I am just thankful that I can still take the gold standard drugs and they are still working for me.
Hope you are not as fatigued with this round of chemo. In peace and caring.
I found out that black cherries, eating about 12 a day kept me from taking ibuprophen every single day. I discovered this by accident and then found out there is scientific fact behind it. When they aren't in season I buy frozen from SAMs club or concentrated cherrie juice from the health food store. Once again food can be medicine. It doesn't cure arthritis but it helps with the pain!!!!!!!
Cancer is a chronic disease as well as arthritis is sooo maybe as a group we can start some of our own research. I don't have chemo issues or anything like that so I can't test cherries on that pain but maybe some of our googling can be for our symptoms and look and dig for info that maybe you haven't come across. I have heard of papaya for indigestion but I use to have a huge problem with indigestion until I cut out a lot of carbs. there another natural suggestion. Now indigestion caused by chemo maybe we need to start digging for that and a natural energy booster. I know cancer eats sugar everyone says but if a remedy is a fruit that makes pain go away is it bad? or is it good?
Can we start doing detective work? I wonder if cherries would help chemo bone pain? My arthritis was soooo bad I had to take at least. 4 ibuprofens
Every day, now none due to cherries. Things that make you go mmmmmmmmm.
Anyone having an end of the world party Friday? I may try to have one at the hospital in my husbands room!!!!
Hopefully you all know about the Mayan Calendar thing.....don't want people to think I'm nuts! Well not you people anyway!0 -
Don't know if this wouldRo10 said:Beila
Hope you enjoyed your soup. Nothing like homemade soup, and knowing that someone cares about you.
I too found out that the stemetil was the same as compazine. I was disappointed to not have another drug to try for the nausea. I have taken Zantac at times. I already take Prilosec daily.
I hope you get good results from your CAT scan. Like you said there are other drugs to try if the Doxil, Avastin are not working. My doctor mentioned several drugs to try if the taxol/cisplatin stops working for me. Hopefully you will find a combination that works for you. In addition to the ones you mentioned my doctor also mentioned cytoxan as a choice.
From the beginning of my diagnosis in Jan 09 my doctor told me my stage 3-C UPSC could be treated like a chronic disease. So I have always looked at it that way. That is why I expect to get a recurrence and I expect to go back on chemo. I am just thankful that I can still take the gold standard drugs and they are still working for me.
Hope you are not as fatigued with this round of chemo. In peace and caring.
Don't know if this would apply to you or help, but at M D Anderson they gave me both Zofran and comprozine to take TOGETHER. I only took this combo the first two chemo treatments, and then never took either again. They even gave the two together in the treatment center right before a chemo. Best, debrajo0 -
compazineRo10 said:Beila
Hope you enjoyed your soup. Nothing like homemade soup, and knowing that someone cares about you.
I too found out that the stemetil was the same as compazine. I was disappointed to not have another drug to try for the nausea. I have taken Zantac at times. I already take Prilosec daily.
I hope you get good results from your CAT scan. Like you said there are other drugs to try if the Doxil, Avastin are not working. My doctor mentioned several drugs to try if the taxol/cisplatin stops working for me. Hopefully you will find a combination that works for you. In addition to the ones you mentioned my doctor also mentioned cytoxan as a choice.
From the beginning of my diagnosis in Jan 09 my doctor told me my stage 3-C UPSC could be treated like a chronic disease. So I have always looked at it that way. That is why I expect to get a recurrence and I expect to go back on chemo. I am just thankful that I can still take the gold standard drugs and they are still working for me.
Hope you are not as fatigued with this round of chemo. In peace and caring.
Ro10
Are you taking compazine 10mg every 6 hours if needed?
That is what they have prescribed for me, and I find it works.
I also find chewing gum takes the last little edge off....also ginger
Want to find those black cherries...I love cherries....Wonder where they might import them from to bring them to Toronto in winter!
Beila0 -
To Sisters three re CherriesSisters three said:Speaking of chronic..........
I found out that black cherries, eating about 12 a day kept me from taking ibuprophen every single day. I discovered this by accident and then found out there is scientific fact behind it. When they aren't in season I buy frozen from SAMs club or concentrated cherrie juice from the health food store. Once again food can be medicine. It doesn't cure arthritis but it helps with the pain!!!!!!!
Cancer is a chronic disease as well as arthritis is sooo maybe as a group we can start some of our own research. I don't have chemo issues or anything like that so I can't test cherries on that pain but maybe some of our googling can be for our symptoms and look and dig for info that maybe you haven't come across. I have heard of papaya for indigestion but I use to have a huge problem with indigestion until I cut out a lot of carbs. there another natural suggestion. Now indigestion caused by chemo maybe we need to start digging for that and a natural energy booster. I know cancer eats sugar everyone says but if a remedy is a fruit that makes pain go away is it bad? or is it good?
Can we start doing detective work? I wonder if cherries would help chemo bone pain? My arthritis was soooo bad I had to take at least. 4 ibuprofens
Every day, now none due to cherries. Things that make you go mmmmmmmmm.
Anyone having an end of the world party Friday? I may try to have one at the hospital in my husbands room!!!!
Hopefully you all know about the Mayan Calendar thing.....don't want people to think I'm nuts! Well not you people anyway!
Here is a link to a very brief abstract about cherries and cancer:
http://www.ncbi.nlm.nih.gov/pubmed/21229414
I also remember cherries being mentioned in the book Anti-Cancer. There are actually several articles about cherries pertaining to cancer in the pubmed database.0 -
Sister three re partySisters three said:Speaking of chronic..........
I found out that black cherries, eating about 12 a day kept me from taking ibuprophen every single day. I discovered this by accident and then found out there is scientific fact behind it. When they aren't in season I buy frozen from SAMs club or concentrated cherrie juice from the health food store. Once again food can be medicine. It doesn't cure arthritis but it helps with the pain!!!!!!!
Cancer is a chronic disease as well as arthritis is sooo maybe as a group we can start some of our own research. I don't have chemo issues or anything like that so I can't test cherries on that pain but maybe some of our googling can be for our symptoms and look and dig for info that maybe you haven't come across. I have heard of papaya for indigestion but I use to have a huge problem with indigestion until I cut out a lot of carbs. there another natural suggestion. Now indigestion caused by chemo maybe we need to start digging for that and a natural energy booster. I know cancer eats sugar everyone says but if a remedy is a fruit that makes pain go away is it bad? or is it good?
Can we start doing detective work? I wonder if cherries would help chemo bone pain? My arthritis was soooo bad I had to take at least. 4 ibuprofens
Every day, now none due to cherries. Things that make you go mmmmmmmmm.
Anyone having an end of the world party Friday? I may try to have one at the hospital in my husbands room!!!!
Hopefully you all know about the Mayan Calendar thing.....don't want people to think I'm nuts! Well not you people anyway!
An End of the World party! That sounds like fun! Wish I had thought of it!0 -
Beila re Frank Encouragementbeila said:Mary Ann
Hi Mary Ann
We havent heard from you, but have heard from alot of your support group.
Hope I didnt scare you off with my frank encouragement
Hope you are tolerating the fatigue ( I am in bed for the next week), and are taking it one day at a time and are less discouraged
All the best to you and your husband and enjoy the bread!
Beila
ps For nausea, Zofran is TERRIBLY constipating, and our oncology team prescribes STEMETIL, which is well tolerated, and I find nips the nausea or queasy stomach in the bud
pps love Churchill's quote re:
"when you are going through Hell, keep going"
For the record, Beila, I appreciated your frank encouragement very much! I am not currently having any difficulties, but I worry about it. You advice and the example of recovery you gave have been helpful to bolster me, emotionally!0 -
(((Beila)))beila said:thank you Ro10
So nice to receive words of support from you.
I looked up Compazine....unfortunatlely this is the American word for Stemetil....so same thing.
I find that sometimes it is more of a "heartburn" than actual nausea, so sometimes I take antacids....Zantac, instead of, or in addition to Stemetil
I have a CT scan after my 4th Doxil/ Avastin (a week ago I had my 3rd)
Am trying not to think about it and be terrified
If this is not working, there are other chemos that one could try, right?
Chemos that I have learned of on this site, like Gemzar, Topotecan Ixabepilone
This site has helped me with hope and positivity, and role models more than anything else
I am afraid to ask my Oncologist at this point, as I am afraid she will use the word "chemo-resistant"
I need reassurrance that there would be other options if necessary...and I hope you all can give me some positive feedback to ward off the terror of hopelessness
Canada is more conservative/less aggressive in general, and in this in particular.
I love that the attitude on this site seems to be to manage this like a chronic disease, treating recurrences or non responses with other options. like HIV/AIDS.....wasnt like that in the 1980"s, when I was working with these patients in New York, but it is now!!!
This is what keeps me going
gotta go now.....my mother-in -law just brought me soup
more Anon,
Beila
We all know the fear you speak of. I, too, find it comforting that there are so many options out there! I am also looking into alternative and complimentary therapies.
I have even had some false alarms on a scan, like one that showed the lymph nodes had shrunk quite a bit, BUT there was a hot spot on a hip bone! We had to do a bone scan, and it turned out to be nothing.
Keep telling yourself, you have lots of good treatment options! Because, you do!0 -
CA125 up (doctor says stable) and getting next doxilplantlady2012 said:Beila re Frank Encouragement
For the record, Beila, I appreciated your frank encouragement very much! I am not currently having any difficulties, but I worry about it. You advice and the example of recovery you gave have been helpful to bolster me, emotionally!
Hi everyone,
Good discussion. Yes, we do have a chronic disease. My doc told me that from beginning so I had no expectations of a cure - though sure think that would be an awesome thing!!! Those episodes of normalcy between treatments are so wonderful - the prize like Beila says.
Well, I got my lab results and am planning to get 4th Doxil tomorrow. Even though ca125 actually up 10% my doc says it's stable and a go for chemo. I anxiously look forward to getting my labs and scan in Jan to see what's going on. These times can be nail biters.
Beila, my doc keeps saying we have many treatment options we have not used. So think positively about your situation. Is there any chance of you getting an assay? Wonder how much this would be and if worth it for you to avoid unnecessary treatments. Just something to think about. Yes, I do take Vit D3 (liquid). I also get sun here in FL (lucky me) and I continue to walk daily thanks to my walking buddy - I have accountability to her daily. CoQ10 does not seem to affect my stomach.
I think the new antidepressant is helping my mood and energy level - remeron. And the ativan is helping sleep. So all working together is good.
Food is definitely medicine. There are innumerable links here if you search. Lots of good suggestions. I'm glad the cherries are helping you. Tart cherry juice is supposed to be a superfood against cancer. Watch if you buy juices since there can be lots of sugar added. I wonder if that just takes the benefit away since cancer loves sugar so much.
Need to share something I learned from pharmacist. When buying supplements buy brand that has USP stamped on label. This certifies that it has ingredients it says since the supplement industry is unregulated. I looked at mine and only 2 of my jars had this on the label.
I've been also drinking organic vegan protein shakes. Think it's helping energy levels.
Well I have to start my chilling routine for hands and feet today and will continue with doxil until it stops working. I sure look forward to a drop in CA125 and hope that's a realistic expectation.
Have the best day today, friends. Hugs to all, Mary Ann0
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