Appreciate any help

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Comments

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #22
    Dxed said:

    to be given Orders
    Hi Marie
    The idea of "soonest" came up also after my first colonoscopy. My first dr. said I got to attend to the problem very soon to the point I thought I should run to the surgery room. I am not sure, however, it is that. I am actually comfortable with my BM though it is not that normal. But there is no pressing urgency.Questioning the diagnosis is more likely. My hunch is that, depending on the blood test and colonoscopy, they will be offering to operate during my stay. If that is the case, what your suggestions will be.

    As for "giving orders," it is rather common in this part of the world, especially as treatment is "free."

    I sure would appreciate your take on "surgery" if it is offered in this visit.

    thank you again

    Just wondering where you are
    Just wondering where you are from?

    Chelsea
  • Dxed
    Dxed Member Posts: 79
    #23
    Chelsea71 said:

    Just wondering where you are
    Just wondering where you are from?

    Chelsea

    Chelsea, I am from Arabia,
    Chelsea, I am from Arabia, right in the middle of the desert (that is why am a Sander).
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #24
    Dxed said:

    to be given Orders
    Hi Marie
    The idea of "soonest" came up also after my first colonoscopy. My first dr. said I got to attend to the problem very soon to the point I thought I should run to the surgery room. I am not sure, however, it is that. I am actually comfortable with my BM though it is not that normal. But there is no pressing urgency.Questioning the diagnosis is more likely. My hunch is that, depending on the blood test and colonoscopy, they will be offering to operate during my stay. If that is the case, what your suggestions will be.

    As for "giving orders," it is rather common in this part of the world, especially as treatment is "free."

    I sure would appreciate your take on "surgery" if it is offered in this visit.

    thank you again

    Free should not be without answers
    I see from later in this thread that you are from Arabia. I have no knowledge of the customs or policies there, but still feel that as the patient you have the right to all the information regarding your medical care. One should never be subjected to medical procedures or medications without full knowledge...after all it is your body and life.

    As to surgery, from the results you have given us there appears to be something there which doesn't belong. I personally prefer surgery over chemo and/or radiation for the removal of such things, however others have chosen differently to try to avoid an ostomy (either temp or perm).

    An ostomy unto itself is not debilitating. Yes it does take some getting used to and finding the right ostomy products but that is all fairly easy to do. If the surgery involved the vertical incision from belly button to pelvic bone, then you will need to be careful for some time after about lifting things, as they cut the abdominal muscles. Over doing it can cause a hernia, which you don't want.

    My doctor offered me two choices. Choice 1 was to have initial surgery for a "temp" ostomy, wait 6 weeks then start months chemo and weeks of radiation to hopefully shrink the tumor, wait 6 more weeks and have second surgery to remove any remaining tumor, then "possibly" have the ostomy reversed. The hope of all this treatment being leaving more of my body intact. Choice 2 was to have one surgery to remove the tumor along with other organs in close proximity and have a perm colostomy.

    I chose option 2 because there was no guarantee that I would not end up with a perm ostomy from choice 1. While I was in excellent health otherwise, I felt that all the chemo, radiation and multiple surgeries from choice 1 could impact my overall health. I also felt that getting the tumor out soonest offered me the best chance of not having it spread.

    Each person if differnt as is their cancer situation. What I felt was best for me, may not be the choice of others. Each of us must assess the information we have and weigh it with other aspects of our life. The important thing is once a decision is made, do not ever look back and wonder what would have happend if you had chosen differently.

    Sorry this is so long, but hope that in some way it helps you.

    Best wishes for Monday.

    Marie who loves kitties
  • Dxed
    Dxed Member Posts: 79
    #25
    Lovekitties said:

    Free should not be without answers
    I see from later in this thread that you are from Arabia. I have no knowledge of the customs or policies there, but still feel that as the patient you have the right to all the information regarding your medical care. One should never be subjected to medical procedures or medications without full knowledge...after all it is your body and life.

    As to surgery, from the results you have given us there appears to be something there which doesn't belong. I personally prefer surgery over chemo and/or radiation for the removal of such things, however others have chosen differently to try to avoid an ostomy (either temp or perm).

    An ostomy unto itself is not debilitating. Yes it does take some getting used to and finding the right ostomy products but that is all fairly easy to do. If the surgery involved the vertical incision from belly button to pelvic bone, then you will need to be careful for some time after about lifting things, as they cut the abdominal muscles. Over doing it can cause a hernia, which you don't want.

    My doctor offered me two choices. Choice 1 was to have initial surgery for a "temp" ostomy, wait 6 weeks then start months chemo and weeks of radiation to hopefully shrink the tumor, wait 6 more weeks and have second surgery to remove any remaining tumor, then "possibly" have the ostomy reversed. The hope of all this treatment being leaving more of my body intact. Choice 2 was to have one surgery to remove the tumor along with other organs in close proximity and have a perm colostomy.

    I chose option 2 because there was no guarantee that I would not end up with a perm ostomy from choice 1. While I was in excellent health otherwise, I felt that all the chemo, radiation and multiple surgeries from choice 1 could impact my overall health. I also felt that getting the tumor out soonest offered me the best chance of not having it spread.

    Each person if differnt as is their cancer situation. What I felt was best for me, may not be the choice of others. Each of us must assess the information we have and weigh it with other aspects of our life. The important thing is once a decision is made, do not ever look back and wonder what would have happend if you had chosen differently.

    Sorry this is so long, but hope that in some way it helps you.

    Best wishes for Monday.

    Marie who loves kitties

    Great Help


    Thank you Marie

    Your thorough input is informative; I cannot thank you enough for sharing your thoughts and experience. It is very helpful. I have been putting together many questions for Monday's appointment, the most important of which is the plan of attack that drs may have in mind, and their suggestion on perm/temp-ostomy. The choice will ultimately be mine. Once I make up my mind, I am promising myself never to look back (wonder if I can help it; but I will try to train myself). The impact of chemo on the body is something I have to give serious thought, and so too radiation.

    thank you for your time and effort

    Sander

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