NED

osmotar
osmotar Member Posts: 1,006
in Head and Neck Cancer #1
I saw my onco today, my CAT scan from monday is NED, I don't have to go back to see her for another 6 months vs the 3 month visits I was having, when she sees me in June we will make a decision as to when to remove my port, I'll still continue with my ENT and rad doc visits. While I'm thrilled with the NED, I am also sad , knowing that in a blink of an eye everything can change, as evidenced by those we have lost in the past months, those who are still in treatment , those who are struggling because of treatment , and those who are starting yet another battle with this efinn beast. Some of you I know better than others, I do read your posts , know that I keep each and everyone of you in my thoughts and prayers.

Blessings and light, find peace and good health in your journey.

Linda
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Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    Awesome...
    Glad you shared your news....
  • cureitall66
    cureitall66 Member Posts: 913
    #3
    Glad you have good news....
    Thanks for sharing your news. God has blessed you...take it. He will help the rest of us one day at a time also. We all stick together to help one another...that's what I love about this forum.

    God Bless Us ALL,

    ~Cure it all
  • lts
    lts Member Posts: 75
    #4
    Great!!!
    Always nice to hear good news.

    Luke
  • wolfen
    wolfen Member Posts: 1,324 Member
    #5
    lts said:

    Great!!!
    Always nice to hear good news.

    Luke

    Linda
    Always love it when anyone meets that fellow "NED".

    Thank you again for your info. during your Thanksgiving trip. We're still sitting here waiting for MDA to schedule tests and gather all consultants. Seems like it takes forever.

    Luv,

    Wolfen
  • katenorwood
    katenorwood Member Posts: 1,912
    #6
    NED
    Linda,
    I am so happy and thrilled for you ! Continued success with all ! Katie
  • Mikemetz
    Mikemetz Member Posts: 465 Member
    #7
    Sometimes even good news is difficult to share
    Congratulations on your NED results! That is the most important thing, but sometimes it can be difficult to post good news on this site when others are still struggling to get to NED, or know that they or their loved ones won't. Your empathy for them is admirable--thanks for expressing that. I take that as another sign that we have a real community going on here, even if it exists in cyber space.

    Mike
  • patricke
    patricke Member Posts: 570 Member
    #8
    GREAT NEWS
    Well, hey Linda, NED for you is the kind of news that puts a smile on all of our faces (I'm happily smilin for you now); congratulations on the great news! Live in the moment, and fully enjoy and celebrate this milestone victory, and lastly, keep it movin forward.

    PATRICK
  • Pam M
    Pam M Member Posts: 2,196
    #9
    Welcome to Club NED
    Wonderful to add to our ranks.
  • VanessaSLO
    VanessaSLO Member Posts: 283
    #10
    Pam M said:

    Welcome to Club NED
    Wonderful to add to our ranks.

    Congrats!!!
    Wonderful news!!!! I'm so happy when I read such news!
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #11
    Search
    when i log on and finally get on, the first i look for and they make me smile are all the NED updates.

    congrats

    john
  • phrannie51
    phrannie51 Member Posts: 4,716
    #12
    I love good news!!
    congrats on your NED. I look for this kind of news everyday, too...it gives me confidence and promotes a sense of well being...

    I didn't realize we kept our ports in for so long...nobody has mentioned taking mine out, and since it's not a pain in the butt (like the tube), I haven't mentioned getting it out either. Think I'll check on when they might take it out next time I get it flushed.

    p
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #13
    phrannie51 said:

    I love good news!!
    congrats on your NED. I look for this kind of news everyday, too...it gives me confidence and promotes a sense of well being...

    I didn't realize we kept our ports in for so long...nobody has mentioned taking mine out, and since it's not a pain in the butt (like the tube), I haven't mentioned getting it out either. Think I'll check on when they might take it out next time I get it flushed.

    p

    Love it!!!
    love to hear the NED word Linda,
    best three letters in the alphabet, may God bless you with NED forever.

    God bless
    Tonsil dad

    Dan.
  • Crazymom
    Crazymom Member Posts: 339 Member
    #14
    congrats
    Great news! I am so happy for you!

    Ann
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #15
    NED all the way
    Linda,

    Looks like there is room for a NED license plate on that pretty red car. Congratulations, enjoy the good news.

    Best,

    Matt
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #16
    CivilMatt said:

    NED all the way
    Linda,

    Looks like there is room for a NED license plate on that pretty red car. Congratulations, enjoy the good news.

    Best,

    Matt

    Linda
    A big Congrats are in order. Bigtime!

    kcass
  • ooo
    ooo Member Posts: 105
    #17
    ..and another bump in the
    ..and another bump in the road is now in the rear-view mirror of your red sports car.. ;)

    A big hug Linda!

    Dre.
  • hawk711
    hawk711 Member Posts: 566
    #18
    ooo said:

    ..and another bump in the
    ..and another bump in the road is now in the rear-view mirror of your red sports car.. ;)

    A big hug Linda!

    Dre.

    Linda
    so happy for you! nothing better than NED
    Best, Steve
  • Billie67
    Billie67 Member Posts: 898
    #19
    hawk711 said:

    Linda
    so happy for you! nothing better than NED
    Best, Steve

    Great news!
    NED....YAY!!! Just enjoy this and turn off all of the "what if's"
    It's time for you to live your life and de stress.
    Billie
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #20
    Billie67 said:

    Great news!
    NED....YAY!!! Just enjoy this and turn off all of the "what if's"
    It's time for you to live your life and de stress.
    Billie

    Wonderful news...
    I understand your statement about "can change any moment" ...but let me share a statistic with you that was shared with me recently at my visit to SCCA (Seattle Cancer Care Alliance0 ...Dr. Mendez said, congrats Tim you are now at the 1 year mark, you are halfway there because at the 2 year mark we find that only 3 in 100 have a recurrence of cancer in the H&N ....I konw I still have a year to go bc most recurrence occur in the first 2 years if there is a recurrence.....

    So my point is you have past another hurdle and you are quickly approaching the 2 year mark) if I understand where you are at now.

    This from a center / doctor that see's over 400 H&N patients a year!!!

    Best,

    Tim
  • osmotar
    osmotar Member Posts: 1,006
    #21
    Tim6003 said:

    Wonderful news...
    I understand your statement about "can change any moment" ...but let me share a statistic with you that was shared with me recently at my visit to SCCA (Seattle Cancer Care Alliance0 ...Dr. Mendez said, congrats Tim you are now at the 1 year mark, you are halfway there because at the 2 year mark we find that only 3 in 100 have a recurrence of cancer in the H&N ....I konw I still have a year to go bc most recurrence occur in the first 2 years if there is a recurrence.....

    So my point is you have past another hurdle and you are quickly approaching the 2 year mark) if I understand where you are at now.

    This from a center / doctor that see's over 400 H&N patients a year!!!

    Best,

    Tim

    Thanks
    2 years will be Dec 31, 2013. My prev general manager , he passed in early 2011, always thought the # 13 was lucky...any time he saw 13 come up In anything we did he made comment, he even said my emp # 49 , 4+ 9 = 13 , so I was lucky...lets hope his thoughts on 13 continue with me thru the next year. I don't follow numerology , but heck , I'll take the good health and scans anyway I get them.

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