On our way

sassysrice
sassysrice Member Posts: 117
in Head and Neck Cancer #1
Well 3 rads down 32 to go. 1 of 7 chemo starts tomorrow. Rad not too bad. the first day was the worst. they had trouble adjusting Jeff's mask to fit right and line up. 2nd day a little better. Today it was quick he was in there only 12 min. The tongue stick to hold it down really bothers him but he says the mask is not to bad. He comes out with these little square impressions on his face.
Thanks everyone for your wishes and prayers and most of all your words of wisdom/experiences
Sue

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    Waffle Face....
    LOL...

    Tell him welcome to our club, it's the first of many reminders of having rads.

    Down the road he'll more than likely have a few other minor temporary quirks from this club we all belong.

    Turkey Neck, and L'Hermett's Syndrome come to mind.

    Neither particular annoying, just a reminder that you went through the experience of radiation.

    Oh, I guess I should check to see if you have a bit of humor... My humor, tends to skirt a bit on the abi-normal side usually.

    Best,
    John
  • phrannie51
    phrannie51 Member Posts: 4,716
    #3
    Oh yes....the trials and tribulatios
    of the mask. The first week I swore they didn't have it right...LOL...but in fact, I had to get used to that thing on my face and shoulders. Thank gawd, it takes so little time to get a treatment!!

    Sending positive thoughts on his chemo. Tell him to take his anti-nausea meds if he feels sick or not. Having them already inside, keep nausea at bay...and tell him to drink all the water he can take in afterwards...flush that stuff out of his system.

    p
  • ToBeGolden
    ToBeGolden Member Posts: 695
    #4
    phrannie51 said:

    Oh yes....the trials and tribulatios
    of the mask. The first week I swore they didn't have it right...LOL...but in fact, I had to get used to that thing on my face and shoulders. Thank gawd, it takes so little time to get a treatment!!

    Sending positive thoughts on his chemo. Tell him to take his anti-nausea meds if he feels sick or not. Having them already inside, keep nausea at bay...and tell him to drink all the water he can take in afterwards...flush that stuff out of his system.

    p

    Way To Go!
    Getting oriented to the drill is half the battle. I asked the techs to hold the mask just off my face for 5 seconds. I would wiggle into the best position. Soon you and your techs will be a team. Rick.
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #5
    next chemo, no problem
    Sue,

    Yeah, those masks they is a tight fit. Don’t want you getting up to leave, gotta keep you still.

    As p51 says keep drinking (until you are blue in the face) and be proactive in fighting nausea.

    Keep slaying the dragon.

    Best,

    Matt
  • sassysrice
    sassysrice Member Posts: 117
    #6
    Skiffin16 said:

    Waffle Face....
    LOL...

    Tell him welcome to our club, it's the first of many reminders of having rads.

    Down the road he'll more than likely have a few other minor temporary quirks from this club we all belong.

    Turkey Neck, and L'Hermett's Syndrome come to mind.

    Neither particular annoying, just a reminder that you went through the experience of radiation.

    Oh, I guess I should check to see if you have a bit of humor... My humor, tends to skirt a bit on the abi-normal side usually.

    Best,
    John

    love humor
    Hi John
    I love your humor and I always count on reading your replies to me and others for a laugh, which is very needed right now. What is L'Hermett's Syndrome? I am just stressed about 1st chemo for him. I know it will most likly been uneventful, but still.
    Have a good day,
    Sue
  • sassysrice
    sassysrice Member Posts: 117
    #7
    CivilMatt said:

    next chemo, no problem
    Sue,

    Yeah, those masks they is a tight fit. Don’t want you getting up to leave, gotta keep you still.

    As p51 says keep drinking (until you are blue in the face) and be proactive in fighting nausea.

    Keep slaying the dragon.

    Best,

    Matt

    Tks everyone
    I will push the water
    Sue
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #8
    Turkey Neck & L'Hermette's
    Neither of these will you have to worry about for a while, and not even then really...

    A lot of us with rads, usually 3 -4 months post will notice both.

    Turkey Neck (as we call it, LOL)...is a lot of swelling and puffed up under the chin and throat, kinda like a buck in rutt, LOL...

    It's mainly due to the lymphatic fluids that build up because their normal paths of flow are damaged and hosed up from the radiation.

    The fluid builds up and causes the swelling appearance.

    On the SuperThread there are some suggestions on massages and such to help. But usually with time, a few months to just less than a year, they repair themselves pretty well.

    L'Hermette's is the electric shock sensation you get when you bend your head forward, sort of like touching your chin to your chest.

    A lot get a shocking sensation or tingle that shoots down your spine, arms, legs to your fingers and toes...

    That to usually comes on a few months post rads, lastinf nearly a year or so.

    Just our own little special clubs we belong to, LOL...

    JG

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