New Historic Low for My CA19-9 Test

Sundanceh said:

Right On, Pete...
I am closely watching how you are doing...if it works and could become available in the states...that would be wonderful...it would be nice if we could all be painted with the same brushstroke:)

I've noticed you cheating lately with the vino and cheese...gotta be better than sea cucumber, eh?

I tell you what I am onboard with...I do agree with you that INFLAMMATION is definitely part of the problem here...that's such a part of this puzzle.

My way is not right...I wouldn't advocate it...but I tested a theory (like you)...and I willingly risked my own life (like you).

I might recur again, might not.

I just think we can get paralyzed with such fear that we're not doing something all the time...and while I'm trying this, I share it for what it is worth (like you).

It's important to show the people all sides of the triangle.

You and I may never know what's right, not really.

I just see my numbers lining up nicely...except platelets. I'm getting stronger every day...taken me 18 mos...just seems like I don't need to add anything to my body chemistry...to my amazement, I seem to be improving.

I continue to wish you best of luck...you know I gotta' keep you honest, Pete:)

I'm the Yin to your Yang...

On a side note...my dad's hoarder house has broke me like cancer never could. I have an empathy towards you now dealing with all of that...I just don't know how you do it.

That's just no way to live...I know your hands are full there...I've seen the show...seen the sickness...and I have no stamina to deal with it.

My mom has it too...bit it skipped me fortunately...lean and mean around here.

Have a good holiday with the family.

-Craig

thanks craig
dear craig,

your story is one of hope and survival, persistance and inspirition, where does the will to keep fighting come from ? from your story thats where. dear rick just passed, he had peritoneal mets and massive surgery(i am on the list for as well)ricks did not work. i may do that surgery, but its so massive, i will try all else before using the last get of of gaol free card and to get ready for it. we adapt and learn from each other, the quicker the better.

its just your ca199 is a great result, personally i have never had a ca 19-9 test, all these doctors and i have asked, even in germany, i will ask for it again. for the 100th time. but my cea is 39 down from 100 in 7 weeks with a range of alternative therapies, none of which you can get in the states. i will update my removab post with cea results.

honesty is one of my goal values, and i have often told the truth when in some ways i would have rather not. even sharing the story about my wifes hoarding disorder was embarrassing but ultimately liberating. i actually had to see it for what it is, she is still doing it and i am filled with dreade going home in a week. keep me honest if you want too, if you feel I need it, its your choice, its a public forum and your free to write your replies. what helps me personally is the support and being challenged.

this post is about your success and your strength and your skills at sharing a great story, your story. hope and being relaxed and inner strength are all attributes you demonstrate. they help me enormously, but what we have in common is far greater than our differences of opinion re supplements. and my friend what you call supplements and what i call supplements are completely different.

craig think of me like columbus. when he found you guys ( USA ) all those years ago. his friends said be careful the world is flat you will fall off. your country was discovered in some ways by spanish pioneering spirits. I some ways USA has lost that edge. I have met far more aussies at the clinics here than other nationalities. maybe we are fools or geniuses. maybe elements of both.

as you said time will tell, its so true and for us all.
time also heals, you are the proof, we can help speed that up with surgery and supplements and lifestyle. its 7 years for all our cells to be replaced, your improved bloods shows our innate healing capacity.

my mission is remission, when i am there i will relax more, until then its a more relaxed but still zealous approach to treatment. the cancer is on the run and i am not going to give it another chance, not while i have breathe.

be well and smile, I am, your story is an inspiration. thanks. enjoy your health.
the seacumber (none in germany) smoothies were horrendous, i cringe at the memory, some of the things i have tried.

hugs,
Pete

ps removab clincial trial in usa i think, but not the off label use i had and dr chang offers dendritic cell vaccines from germany like i am having monday. its sad but money buys better health care, but thats a discussion for another time.

Anybody else with stage 4
Anybody else with stage 4 and mets to liver, lung, peritoneum (plus lymph nodes) not have a high CEA??? When I was first diagnosed, my CEA was like 6 (barely above normal), but the determination was that my tumors were quite fast growing and aggressive. Since that first test, the doctor's have never even had my CEA checked again. I am seeing a local onc for chemo, but also have an onc at Northwestern Memorial in Chicago (one of the top rated cancer centers in America), but neither one has ever ordered a CEA test since diagnosis. Does a low CEA mean anything wrt survival time?

Tedd

barbebarb said:

CEA
Tedd
Hi. My CEA is 10.9-I have reoccurence of 2 new lesions in liver and a lung met that has grown.
My oncologist at N. Western says she looks at the whole person...
I have had moderately differentiated tumors but will know more in the next two weeks.
Have a pet scan on Tuesday.
How is it going with local chemo?
I dread going to the city if chemo is next step.....
Barb

Who is your doctor at
Who is your doctor at Northwestern? I am seeing Dr. Halla Nemeiri, and she has been great. Maybe we have the same doc....

Tedd