Scan result

Dear Steve
Wonderful news that everything looks all clear!

I marvel at your recovery powers and wish you continued improvement and success.

Hugs to you, the wife and kidos,

Marie who loves kitties

As Expected...
With all of that, I would be asking for a refund if 'clear' was not the operable word being applied.

Sounds like you are way ahead of the curve...way out ahead.

Very promising news indeed and continued success...

Great
Sounds like a good report. Glad things are coming along for you as far as recovery. Wishing you the best going forward and beyond.

Kim

Annabelle41415 said:

Great
Sounds like a good report. Glad things are coming along for you as far as recovery. Wishing you the best going forward and beyond.

Kim

Steve
Nice to hear from you. Glad to see that your results and road to recovery are well on the way to complete success. Take Care.

Luv,

Wolfen

soft "chemo"
That's great news. Steve, how hard is it to get the path lab to stain for CA19-9, COX2 and/or iNOS in UK?

My +++ wife made great progress (necrosis, shrinkage and pronounced lack of metastatic spread) on a "soft immunochemo" (no 5FU/UFT) with cimetidine (for CA19-9 + only) and (natural) COX2 inhibitors amongst the LEF recommendations, along with extra vit C, D3, and K2 beyond LEF, before her first surgery. We missed the boat on PSK and beta glucans back then, but do it now with measurable WBC and related improvements.

Oh Steve that's wonderful
Oh Steve that's wonderful news! So happy for you :-)
Ron

great news
What a wonderful Christmas present! Such great news! Can't believe you are already driving! I am still in awe!

Debbie

pepebcn said:

Great news steve !
Like it!

I never would have imagined

I never would have imagined that you would make so much progress so quickly. Out to lunch and raising a toast is just as life should be....this is really wonderful news. Savor. You have worked hard to get here as has your family. I am very happy for all of you.

Cathleen Mary

Nice.
And I can't believe you're driving already!! Big smiles all around and I raise my glass of milk to you!! Cheers!

steved said:

Thanks
Tha is to all above for the supportive replies.

Taans it isn't easy to get those scans here as the hypotheses and medicine related to them aren't really embedded in the mainstream of medicine here. My oncologist has said she would be happy for me to be on cimetidine if i wished but I haven't gone down that path yet- is perhaps an idea I need to investigate again as feels more relevant in the stage I am currently at.

Thanks for the well wishes to my family- my wife doesn't post here any more but does keep up to date with some people she knows from previously through me. They are doing well and the kids have adapted brilliantly- my son said the other day he doesn't really remember me having two legs and sees my current situation as normal now. Am able to get out and play a bit of football with him now and with the crutches my reach in goal is enormous! They have really impressed me in the ability to adapt and accept so much over this year.

Really looking forward to a special christmas,

Steve

discussion
Yes, I am interested in obstacles or effort that different medical systems carry even for more capable patients.

Normally, for stage III and IV at dx, the odds appear to be about 2:1 and 3:1 that CSLEX-CA19-9 is positive and that cimetidine, perhaps avastin, is a relevant molecular treatment. However since even stage II-III CSLEX+CA19-9 double positives appear to usually recur within the year after chemo without molecular treatment, I actually have my doubts about your previous tumor cells and how many molecular mutations your cells had. For long term cimetidine, I think getting CSLEX1, CA19-9, or both stains is a good idea without other coindicators (e.g. histamine, VEGF telltales).

Since I could actually get such work done, exerting myself, I couldn't (emotionally) wait until the odds were officially 20:1+. That part of the odds maturation process between 2:1 and 19:1 with single variables where I am pretty good at dissecting cofounders sooner than most, makes me very uncomfortable - it is the rough equivalent of someone who can see a bullet in flight being told to sit still.

To me, PSK and beta glucans, perhaps calcium-D3-K2 sufficiency and natural COX2 inhibitors are some of the easy, higher potential reward, lower side effect candidates where cimetidine is in doubt.