Wondering how to always WANT to keep going?

Best Friend
Best Friend Member Posts: 222
in Peritoneal Cancer #1
See ladies, my mom is now checking in on this website so i wish u would take her under ur wings as much as possibe. She probably reads everything and than writes nothing. Anyway, she is MARYTESS. Thats her and my daughters name put together. Anyway, she is getting the doxil. After the second one, she went in for the third and her number went down slightly. Like maybe 30 points. She was happy. She was on the steroids for the first couple days after and felt relatively good. However, after taking three days of steroids she stopped and now is not only sick but sick and tired of the whole chemo experience. I dont blame her. She mentioned to the doc about going back on carbo/taxol because of her great response last time. But she had bad reaction to last carbo/taxol and she stopped breathing. My mom asked doc if he could administer it in the hospital slowly. She just wants to do maybe two or three and get it done. With the doxil it is like once a month for months and months. She had off a year after completeing her carbo/taxol. Plus, the huge results. She doesnt wanna live like this. Consant sickness. 12 days of sickness in a 19 half decent. Not very encouraging. I cant make her think this is ok for her. If she says no to this than i do not want to keep sayin it's ok. I just hope she keeps checking in here and seeing how tough it is for u wonderful wonderful people. You inspire me. If i had cancer this bad i dont think i would be ok without having this website. I just hope she sees its worth it

Comments

  • dorothymarion
    dorothymarion Member Posts: 28
    #2
    For MaryTess
    I know from experience how hard it is to deal with the ongoing chemo treatments, but if we want to kick cancer's butt then it's also something we know we need to do.

    Sometimes the thought of more rounds of chemo can be very daunting. I've been on various chemo treatments since March of 2011, and together with my team of doctors we're still trying to find that one particular chemo that will send my CA125 numbers tumbling. I think that only another cancer patient can understand how we feel from time to time. Friends and family will tell you in a supportive way that we have to continue to fight, but there are those times (particularly when you're really not feeling well), that you just wish you could curl up and make it all go away.

    Realistically, we know that's not possible, so MaryTess, just remember that the treatments you're going through will hopefully continue to lower your CA numbers. (Good news on that by the way!) Also, please don't be shy about posting here. We're all fighting this battle together, and I've gained much from reading the various forums and posts. Sometimes it's just a little tip (like switching from the stronger mint-flavoured toothpaste which really burned my sensitive mouth, to a fruit-flavoured children's toothpaste and an extra soft brush!)

    So, stop by and let us know how you're doing. :-)
  • lulu1010
    lulu1010 Member Posts: 367
    #3
    dorothymarion said:

    For MaryTess
    I know from experience how hard it is to deal with the ongoing chemo treatments, but if we want to kick cancer's butt then it's also something we know we need to do.

    Sometimes the thought of more rounds of chemo can be very daunting. I've been on various chemo treatments since March of 2011, and together with my team of doctors we're still trying to find that one particular chemo that will send my CA125 numbers tumbling. I think that only another cancer patient can understand how we feel from time to time. Friends and family will tell you in a supportive way that we have to continue to fight, but there are those times (particularly when you're really not feeling well), that you just wish you could curl up and make it all go away.

    Realistically, we know that's not possible, so MaryTess, just remember that the treatments you're going through will hopefully continue to lower your CA numbers. (Good news on that by the way!) Also, please don't be shy about posting here. We're all fighting this battle together, and I've gained much from reading the various forums and posts. Sometimes it's just a little tip (like switching from the stronger mint-flavoured toothpaste which really burned my sensitive mouth, to a fruit-flavoured children's toothpaste and an extra soft brush!)

    So, stop by and let us know how you're doing. :-)

    MaryTess
    You were lucky to have a 12 month remission! Mine was only 9 months. Then I started on Doxil. It worked a few months but then it recurred so now I am on Carbo alone. Dont losey hair! I find it easier than Doxil because you dont have to follow all those rules! I too am allergic to Carbo so I get it in the hospital slowly. Being diluted in lots of fluid helps with the side effects so I hardly have any as compared to when I took it fast in the office. My ca125 dropped to 12 now. I lay around for a couple days but able to eat and drink and do little things. After that I feel better than I have in years. Dr wanted to give me 6 doses but now says it is working so well he will give a few more just for good measure and hopefully give a long remission. We are also considering the Metformin trial. I was so sick at the time the Doxil quit working but now things are great and I have so much hope. I hope you never give up. When you find the right treatment you will look at thigs differently. We just have to beat it back till they find a cure.Hugs!
    Linda
  • lulu1010
    lulu1010 Member Posts: 367
    #4
    dorothymarion said:

    For MaryTess
    I know from experience how hard it is to deal with the ongoing chemo treatments, but if we want to kick cancer's butt then it's also something we know we need to do.

    Sometimes the thought of more rounds of chemo can be very daunting. I've been on various chemo treatments since March of 2011, and together with my team of doctors we're still trying to find that one particular chemo that will send my CA125 numbers tumbling. I think that only another cancer patient can understand how we feel from time to time. Friends and family will tell you in a supportive way that we have to continue to fight, but there are those times (particularly when you're really not feeling well), that you just wish you could curl up and make it all go away.

    Realistically, we know that's not possible, so MaryTess, just remember that the treatments you're going through will hopefully continue to lower your CA numbers. (Good news on that by the way!) Also, please don't be shy about posting here. We're all fighting this battle together, and I've gained much from reading the various forums and posts. Sometimes it's just a little tip (like switching from the stronger mint-flavoured toothpaste which really burned my sensitive mouth, to a fruit-flavoured children's toothpaste and an extra soft brush!)

    So, stop by and let us know how you're doing. :-)

    MaryTess
    You were lucky to have a 12 month remission! Mine was only 9 months. Then I started on Doxil. It worked a few months but then it recurred so now I am on Carbo alone. Dont losey hair! I find it easier than Doxil because you dont have to follow all those rules! I too am allergic to Carbo so I get it in the hospital slowly. Being diluted in lots of fluid helps with the side effects so I hardly have any as compared to when I took it fast in the office. My ca125 dropped to 12 now. I lay around for a couple days but able to eat and drink and do little things. After that I feel better than I have in years. Dr wanted to give me 6 doses but now says it is working so well he will give a few more just for good measure and hopefully give a long remission. We are also considering the Metformin trial. I was so sick at the time the Doxil quit working but now things are great and I have so much hope. I hope you never give up. When you find the right treatment you will look at thigs differently. We just have to beat it back till they find a cure.Hugs!
    Linda

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