Trial in Nashville MPDL3280A (PDL)

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  • pjune127
    pjune127 Member Posts: 127
    #42
    alice124 said:

    Sharing is fun. . .
    Gary,

    I owed you after ruining Leave it to Beaver for me! :)!

    2 units coming up
    Gonna put some pink in my cheeks. After seeing my oncologist today he said feraheme is not my answer. He made some phone calls and 2 units of blood will be waiting for me at 1:30 this afternoon. This will NOT exclude me from the study,,,thank goodness. Here's to more energy and a happier Thanksgiving holiday.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #43
    pjune127 said:

    2 units coming up
    Gonna put some pink in my cheeks. After seeing my oncologist today he said feraheme is not my answer. He made some phone calls and 2 units of blood will be waiting for me at 1:30 this afternoon. This will NOT exclude me from the study,,,thank goodness. Here's to more energy and a happier Thanksgiving holiday.

    Transfusion
    I'll drink to that Paula! Hmm, I wonder what would be suitable. Ah, yes! (Gary, you've guessed.)

    Relieved you can stay in the trial, Paula, and that you'll have a pleasant Thanksgiving. Hope you're soon back up to being able to post your updates more often because we're all thinking about you.
  • I am alive
    I am alive Member Posts: 315
    #44
    Texas_wedge said:

    Transfusion
    I'll drink to that Paula! Hmm, I wonder what would be suitable. Ah, yes! (Gary, you've guessed.)

    Relieved you can stay in the trial, Paula, and that you'll have a pleasant Thanksgiving. Hope you're soon back up to being able to post your updates more often because we're all thinking about you.

    Wondering what was up with you
    Paula,
    I too have been thinking about you a lot, wondering how you're doing. It's not like you to be so silent! Your warmth and generous spirit has been missed! It is great news that you'll be able to stay in the trial, rocky as it has been for you thus far. I'm betting things settle down and you find your groove. Have a wonderful Thanksgiving, and know that you are loved here, too.
  • garym
    garym Member Posts: 1,647
    #45
    pjune127 said:

    2 units coming up
    Gonna put some pink in my cheeks. After seeing my oncologist today he said feraheme is not my answer. He made some phone calls and 2 units of blood will be waiting for me at 1:30 this afternoon. This will NOT exclude me from the study,,,thank goodness. Here's to more energy and a happier Thanksgiving holiday.

    2 units...
    Hi Paula,

    No wonder you've been struggling a bit,this ought to make quite a difference in how you feel, but I hope neither unit comes from Tex, you'll be up all night. We're all pulling for you so hang in there.

    Here's hoping for a wonderful Thanksgiving,

    Gary
  • alice124
    alice124 Member Posts: 896 Member
    #46
    pjune127 said:

    2 units coming up
    Gonna put some pink in my cheeks. After seeing my oncologist today he said feraheme is not my answer. He made some phone calls and 2 units of blood will be waiting for me at 1:30 this afternoon. This will NOT exclude me from the study,,,thank goodness. Here's to more energy and a happier Thanksgiving holiday.

    Thrilled
    Paula - Can't happen fast enough for your many friends here. We've missed you and can't wait for you to return to your upbeat, sweet self. And so relieved it won't interfere with trial.

    Best news I've heard all day!
  • pjune127
    pjune127 Member Posts: 127
    #47
    Back from Round 3 and scans
    Got home late last night from Nashville after a long full day of all the procedures I love to participate in (big sarcasm here!). It began with a 5:45 wake up call so we could be at the scan site at 6:40. The scan was at 7:40, so I had an hour to drink two large cups of contrast. I have to admit it has improved...actually tasted like not quite right Crystal Light (that was so rhymy!) Out of there by 8 and and to the lab where I swear they drew 1/4 of the blood I had transfused 10 days ago! Then to see Dr. Bauer, clinical trial doctor, who after looking at my scans entered the room saying "Good news!" I'll take it, especially when I was told not to be disappointed if everything had grown. Actually they are watching three things...one on my adrenal gland and two in my lungs. The adrenal gland remained stable, one in my lung shrank considerably, and the other grew minimally. This is supposed to be excellent news for a 6 week scan, considering this is an inflammatory process at the beginning of treatment. The 12 week scan is the important one. That will come in January. A few hours later I received my infusion, got a dose of liquid iron, and a B12 shot. Should put a little pep in my step for a while. In the car by around 3 and home by 9 (EST). Not too bad. I have felt pretty well the last few days and this treatment has not yet (and hopefully won't) wear me out. If I remain as I feel today, I will have to announce, "NO BIG DEAL!", but I don't want to be premature. Stay tuned. Love you all.
  • foxhd
    foxhd Member Posts: 3,181 Member
    #48
    pjune127 said:

    Back from Round 3 and scans
    Got home late last night from Nashville after a long full day of all the procedures I love to participate in (big sarcasm here!). It began with a 5:45 wake up call so we could be at the scan site at 6:40. The scan was at 7:40, so I had an hour to drink two large cups of contrast. I have to admit it has improved...actually tasted like not quite right Crystal Light (that was so rhymy!) Out of there by 8 and and to the lab where I swear they drew 1/4 of the blood I had transfused 10 days ago! Then to see Dr. Bauer, clinical trial doctor, who after looking at my scans entered the room saying "Good news!" I'll take it, especially when I was told not to be disappointed if everything had grown. Actually they are watching three things...one on my adrenal gland and two in my lungs. The adrenal gland remained stable, one in my lung shrank considerably, and the other grew minimally. This is supposed to be excellent news for a 6 week scan, considering this is an inflammatory process at the beginning of treatment. The 12 week scan is the important one. That will come in January. A few hours later I received my infusion, got a dose of liquid iron, and a B12 shot. Should put a little pep in my step for a while. In the car by around 3 and home by 9 (EST). Not too bad. I have felt pretty well the last few days and this treatment has not yet (and hopefully won't) wear me out. If I remain as I feel today, I will have to announce, "NO BIG DEAL!", but I don't want to be premature. Stay tuned. Love you all.

    Awright!
    Wonderful news! My experience has been that lung and other soft tissue tumors respond well. And in only 6 weeks! Now that all your meds are being properly managed, you will get used to them. Even if there is some getting adjusted to them. If one already likes themselves then the new "you" is still good. It seems that the wait for the "next" scan is always weighing in as an "important" one. So happy for you.Remember, this Karma thing only works when we share it. FLY. Fox.
  • alice124
    alice124 Member Posts: 896 Member
    #49
    pjune127 said:

    Back from Round 3 and scans
    Got home late last night from Nashville after a long full day of all the procedures I love to participate in (big sarcasm here!). It began with a 5:45 wake up call so we could be at the scan site at 6:40. The scan was at 7:40, so I had an hour to drink two large cups of contrast. I have to admit it has improved...actually tasted like not quite right Crystal Light (that was so rhymy!) Out of there by 8 and and to the lab where I swear they drew 1/4 of the blood I had transfused 10 days ago! Then to see Dr. Bauer, clinical trial doctor, who after looking at my scans entered the room saying "Good news!" I'll take it, especially when I was told not to be disappointed if everything had grown. Actually they are watching three things...one on my adrenal gland and two in my lungs. The adrenal gland remained stable, one in my lung shrank considerably, and the other grew minimally. This is supposed to be excellent news for a 6 week scan, considering this is an inflammatory process at the beginning of treatment. The 12 week scan is the important one. That will come in January. A few hours later I received my infusion, got a dose of liquid iron, and a B12 shot. Should put a little pep in my step for a while. In the car by around 3 and home by 9 (EST). Not too bad. I have felt pretty well the last few days and this treatment has not yet (and hopefully won't) wear me out. If I remain as I feel today, I will have to announce, "NO BIG DEAL!", but I don't want to be premature. Stay tuned. Love you all.

    Woohoo!
    Can you feel my smile in Atlanta? Wonderful news. Liquid iron and B-12 shot sounds like a perfect prescription for a big shopping spree; but the way it sounds you'll have plenty more opportunity. Sounds like a big first step. Proud of you.

    Love,
    Alice


    P.S. Have you been reading those rhyming books to the grandkids again--pep in my step and not quite right Crystal Light?
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #50
    pjune127 said:

    Back from Round 3 and scans
    Got home late last night from Nashville after a long full day of all the procedures I love to participate in (big sarcasm here!). It began with a 5:45 wake up call so we could be at the scan site at 6:40. The scan was at 7:40, so I had an hour to drink two large cups of contrast. I have to admit it has improved...actually tasted like not quite right Crystal Light (that was so rhymy!) Out of there by 8 and and to the lab where I swear they drew 1/4 of the blood I had transfused 10 days ago! Then to see Dr. Bauer, clinical trial doctor, who after looking at my scans entered the room saying "Good news!" I'll take it, especially when I was told not to be disappointed if everything had grown. Actually they are watching three things...one on my adrenal gland and two in my lungs. The adrenal gland remained stable, one in my lung shrank considerably, and the other grew minimally. This is supposed to be excellent news for a 6 week scan, considering this is an inflammatory process at the beginning of treatment. The 12 week scan is the important one. That will come in January. A few hours later I received my infusion, got a dose of liquid iron, and a B12 shot. Should put a little pep in my step for a while. In the car by around 3 and home by 9 (EST). Not too bad. I have felt pretty well the last few days and this treatment has not yet (and hopefully won't) wear me out. If I remain as I feel today, I will have to announce, "NO BIG DEAL!", but I don't want to be premature. Stay tuned. Love you all.

    Welcome back Paula
    Lucky you pointed out that that was sarcasm - I rose at 5:40 this morning by choice (admittedly I had to pick my Wife up from the railway station at 6:30). However, I might have figured out you were being ironic when it got to the bit about spending an hour drinking contrast!

    That sounds like excellent scan results and I dare say Fox will be along in a moment to confirm how good (and also to endorse the NBD). It's nice to hear you're feeling so much better and we'll all be staying tuned, you can be sure of that. You and me both: having important scans in January and we're probably not alone here in that. Let's hope we all keep on doing well.
  • alice124
    alice124 Member Posts: 896 Member
    #51
    Texas_wedge said:

    Welcome back Paula
    Lucky you pointed out that that was sarcasm - I rose at 5:40 this morning by choice (admittedly I had to pick my Wife up from the railway station at 6:30). However, I might have figured out you were being ironic when it got to the bit about spending an hour drinking contrast!

    That sounds like excellent scan results and I dare say Fox will be along in a moment to confirm how good (and also to endorse the NBD). It's nice to hear you're feeling so much better and we'll all be staying tuned, you can be sure of that. You and me both: having important scans in January and we're probably not alone here in that. Let's hope we all keep on doing well.

    Welcome back
    Oh no Tex - you just triggered that "Welcome Back" Kotter song AGAIN. Here we go! With me Gary? :)
  • angec
    angec Member Posts: 924 Member
    #52
    pjune127 said:

    Back from Round 3 and scans
    Got home late last night from Nashville after a long full day of all the procedures I love to participate in (big sarcasm here!). It began with a 5:45 wake up call so we could be at the scan site at 6:40. The scan was at 7:40, so I had an hour to drink two large cups of contrast. I have to admit it has improved...actually tasted like not quite right Crystal Light (that was so rhymy!) Out of there by 8 and and to the lab where I swear they drew 1/4 of the blood I had transfused 10 days ago! Then to see Dr. Bauer, clinical trial doctor, who after looking at my scans entered the room saying "Good news!" I'll take it, especially when I was told not to be disappointed if everything had grown. Actually they are watching three things...one on my adrenal gland and two in my lungs. The adrenal gland remained stable, one in my lung shrank considerably, and the other grew minimally. This is supposed to be excellent news for a 6 week scan, considering this is an inflammatory process at the beginning of treatment. The 12 week scan is the important one. That will come in January. A few hours later I received my infusion, got a dose of liquid iron, and a B12 shot. Should put a little pep in my step for a while. In the car by around 3 and home by 9 (EST). Not too bad. I have felt pretty well the last few days and this treatment has not yet (and hopefully won't) wear me out. If I remain as I feel today, I will have to announce, "NO BIG DEAL!", but I don't want to be premature. Stay tuned. Love you all.

    Way to go Paula!
    That is wonderful!! No big deal? Wow, love those words!! I knew you were tough! Very glad to see that things are being managed nicely. Keep on moving forward and enjoy life. It seems like maybe you have been infused with some poetic blood. ;) Keep feeling good, big hugs coming to you...
  • tacyarts
    tacyarts Member Posts: 73
    #53
    angec said:

    Way to go Paula!
    That is wonderful!! No big deal? Wow, love those words!! I knew you were tough! Very glad to see that things are being managed nicely. Keep on moving forward and enjoy life. It seems like maybe you have been infused with some poetic blood. ;) Keep feeling good, big hugs coming to you...

    Nice
    Great scans Paula, keep the positive thoughts and great things will happen, I'm so happy that you got good news through the holidays. Stay strong and remember that all of us are in your corner!!
  • garym
    garym Member Posts: 1,647
    #54
    alice124 said:

    Welcome back
    Oh no Tex - you just triggered that "Welcome Back" Kotter song AGAIN. Here we go! With me Gary? :)

    Hey, Hey, Paula...
    I have a different song in mind right now, Way to go Paula!!! We can tell by your post how much better you are feeling, that's even better in my book than the great scan results. Did you here that collective sigh of relief? You are on your way to the land of NED.

    Rock on,

    Gary

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