Another NED - me!

CivilMatt said:

one more for NED
Hi Sonja,

Good update, NED all-a-round. I’ll have to remember “no swallowing during scan”.

By the way, last July I asked about how to describe “taste” “no taste” and I liked your answer the best, you said “I have no SENSE of taste” (at least during the summer of 2011). Well, I think you nailed it, that’s what I was looking for.

I truly hope you have the sense of taste (now) to fully enjoy your NED, you most certainly deserve it.

Best,

Matt

Tim6003 said:

Great news...very happy for you...but question too if I may
Adding to Golden's questions / prying

I just had a scan of the lungs Nov 7. The scan showed "ganulated glass appearance" in the top of the lung and the bottom of the left lung. It also showed several small nodes (largest being 7mm in size) in my left lung. Nothing was said about the right lung so I presume it was clear. My cancer treatment center (not a comprehensvie one) oncologist said it appears to him to be infection. He said the nodes were "puffy in appearance" and "flakey around the edges" ...he prescribed Levaquinn 500 mg for 7 days. Of course as an onco he said he could not rule out cancer, but felt "strongly" this was just an infection. The oncologist originally wanted to wait 3 months for a follow up scan...I politely said no way on the 3 months and he agreed to do another scan in 6 weeks.

However, I decided now is the time to have a 2nd opinion AND to move future follow up care to UW/ SCCA (that's the University of Washington Seattle Cancer Care Alliance. They now have my records and will be calling me back with the 2nd opinion if they have any concerns..and I have my first appt December 13 with them.

I am an extremely pro-active type..probably almost annoying to the docs when it comes to follow up care (bless their hearts). I feel great, spent the whole month of Sept hunting and cutting wood where I live (I live at 5500 feet elevation and the weather is cold and damp here that time of year in Idaho) so I feel too the onco doc is correct...but then that pro-active planning / annoying guy part in me always has irons in the fire.

So (now that I have written a book) ...may I ask why the cyber knife was offered to you before they knew it was c or did they know already? May I have some information on where you had your procedure performed (location / doctors name)...do you have any suggestions or feedback on questions I might should ask that maybe I did not already?

I did ask about a PET and a fna ..onco said 7mm is too small for fna...PET would show hot if infection or cancer and waiting is the best thing to do. I also agree with that (but not the original 3 months he wanted) ...

Very glad you are NED ....I have followed your posts and boy you have been through it ...so your NED post was super encouraging and made my day!!

Best,

Tim

NOTE: I did not think the 7 days of Levaquinn was long enough....My wife and I think I am aspirating and need a barium swallow test (never had one). I clear my throat all the time and I choke often...originally I felt this was due to still trying to eat to fast and takig too big of bites (before my dx I was a fast and big portion eater Some habits are just hard to break!!