great news from germany and guess who got irenotecan today

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Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #22
    dmj101 said:

    Pete, So happy you are
    Pete, So happy you are getting some postivie results... keep it up.. wishing you all the best and success..
    Enjoy the Holidays..

    thanks donna
    thats kind of you, i appreicate the support.
    i will find a way to enjoy the holidays, hopefully by going home. making new friends in germny and am exploring the countryside.
    i hope you have a great day.
    hugs,
    pete
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #23
    Wonderful
    Sounds like things are really going well for you. So glad that you are so well attended to. Thanks for keeping us all updated too, you are going through things that most of us have never heard of. Wishing you continued improvement.

    Hugs! Kim
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #24
    Annabelle41415 said:

    Wonderful
    Sounds like things are really going well for you. So glad that you are so well attended to. Thanks for keeping us all updated too, you are going through things that most of us have never heard of. Wishing you continued improvement.

    Hugs! Kim

    thanks kim
    i am out on a limb in a sense.

    gambling these therapies will be more effective than the conventional chemo offerings.

    here is hoping. its more than hope, i will will these dam therapies to work, failure is not an option. i am certain determination and effort and taking calculated risks will get me over the line.

    its exciting to be on the path least travelled, only one way to find out. I think i was choosen to push this particular part of the envelope, i have the finance and the dispostion to take these risks without regrets and share them for what they are, simply my unique effort to survive our common challenge.

    of course i pray these therapies combined with metronomic chemo and all the immune stuff offer a better quality and quantity of life, and dare i dream "cure"

    hugs,
    pete
  • thingy45
    thingy45 Member Posts: 632 Member
    #25
    pete43lost_at_sea said:

    thanks kim
    i am out on a limb in a sense.

    gambling these therapies will be more effective than the conventional chemo offerings.

    here is hoping. its more than hope, i will will these dam therapies to work, failure is not an option. i am certain determination and effort and taking calculated risks will get me over the line.

    its exciting to be on the path least travelled, only one way to find out. I think i was choosen to push this particular part of the envelope, i have the finance and the dispostion to take these risks without regrets and share them for what they are, simply my unique effort to survive our common challenge.

    of course i pray these therapies combined with metronomic chemo and all the immune stuff offer a better quality and quantity of life, and dare i dream "cure"

    hugs,
    pete

    Dream and Hope
    Dream Pete and most of all Hope and then Believe. Mental power is a very strong power, I do believe in.
    Will your self better and stronger and again Dream, Hope and Believe.
    I have followed all that yu have done letter by letter and will keep on doin g that until we are all cured.
    Dream the Cure, Hope the cure and Believe the Cure.
    Hugs, Marjan
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #26
    thingy45 said:

    Dream and Hope
    Dream Pete and most of all Hope and then Believe. Mental power is a very strong power, I do believe in.
    Will your self better and stronger and again Dream, Hope and Believe.
    I have followed all that yu have done letter by letter and will keep on doin g that until we are all cured.
    Dream the Cure, Hope the cure and Believe the Cure.
    Hugs, Marjan

    thanks marjan
    dear marjan,
    words of thanks and gratitude are not enough. I feel cared for and I feel appreciated this is what our community offers us if we are open. its the ultimate measure of strength to admit how vulnerable we are, thats a strange paradox. to offer and accept support is so healthy.

    i felt good waking up this morning, another 12 hour day of infusions looking out on the black forest shrouded in fog. I read your reply and I feel cured and view these treatments as the steps in a physical healing process that also reflected in my state of mind.

    its a dream we all share. thanks again for sharing your dream. shared dreams of cure are incredibly powerful.

    hugs,
    Pete

    ps cure now thats a good 4 letter word if ever there was one!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #27
    pete43lost_at_sea said:

    thanks marjan
    dear marjan,
    words of thanks and gratitude are not enough. I feel cared for and I feel appreciated this is what our community offers us if we are open. its the ultimate measure of strength to admit how vulnerable we are, thats a strange paradox. to offer and accept support is so healthy.

    i felt good waking up this morning, another 12 hour day of infusions looking out on the black forest shrouded in fog. I read your reply and I feel cured and view these treatments as the steps in a physical healing process that also reflected in my state of mind.

    its a dream we all share. thanks again for sharing your dream. shared dreams of cure are incredibly powerful.

    hugs,
    Pete

    ps cure now thats a good 4 letter word if ever there was one!

    Good news !
    Congratulations mate!
  • Brenda Bricco
    Brenda Bricco Member Posts: 579 Member
    #28
    pete43lost_at_sea said:

    thanks marjan
    dear marjan,
    words of thanks and gratitude are not enough. I feel cared for and I feel appreciated this is what our community offers us if we are open. its the ultimate measure of strength to admit how vulnerable we are, thats a strange paradox. to offer and accept support is so healthy.

    i felt good waking up this morning, another 12 hour day of infusions looking out on the black forest shrouded in fog. I read your reply and I feel cured and view these treatments as the steps in a physical healing process that also reflected in my state of mind.

    its a dream we all share. thanks again for sharing your dream. shared dreams of cure are incredibly powerful.

    hugs,
    Pete

    ps cure now thats a good 4 letter word if ever there was one!

    I think that might be the best "4 letter word". ;)
    :)
  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
    #29
    Pete
    I'm glad your doing well. How long is this treatment for? When will you get a scan? I'm glad you get to go home for Christmas, then you have to go back? How is your house doing, anymore hoarder going on? I will be thinking about you hoping everything can lead you to NED.
    Sandy :)
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #30
    Momof2plusteentwins said:

    Pete
    I'm glad your doing well. How long is this treatment for? When will you get a scan? I'm glad you get to go home for Christmas, then you have to go back? How is your house doing, anymore hoarder going on? I will be thinking about you hoping everything can lead you to NED.
    Sandy :)

    thanks for caring sandy
    how long, until i am cured or sane! and the money lasts.

    next scan around 14dec germany.
    also getting free pet and angio ct when back in sydney mid january.

    starting therapies say 1 feb, its flexible, i want to get a round the world fare and see japan, africa and south america on this circumnagivation of the globe.

    I am seeking to be NED and its a treatment goal, but all I want now is peace of mind.

    the family is living without my physical presence but they know I love and care for them. not much has changed in the family home. hoarding is a tough illness. my wife has had space from the cancer and space from me. still not much space in the house, but its beyond my control here in germany. the only space thats been made was by physically removing myself. thats kind of ironic.

    smile its a wonderful day.

    hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #31
    Brenda Bricco said:

    I think that might be the best "4 letter word". ;)
    :)

    love trumphs cure
    whats the point of a cure without love? just my opinion.
    they are both great words. and both have 4 letters and i can spell them. which will make phil happy.

    hugs,
    pete
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #32
    Sounds lGood
    Pete,
    You continue to amaze. You have my admiration and prayers. Thank you for sharing your journey. We were diagnosed about the same time so I continue to follow your progress. Prayers,
    NB

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