Papillary Thyroid Cancer unresponsive to I 131

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  • tazbeau
    tazbeau Member Posts: 6
    #22
    poweredbythree said:

    Please share some advice!!!
    I see that this was written in 2006 and it is now 2012, I am going through the same thing and wonder what to expect? I had a total thyroidectmoy in may 2011 and in August of 2012 had a radical neck dissecton on both sides.. Now I am told I am not responcive to radiocative iodine treatments:( Im 27 and have 3 kids and I am pretty nervous.

    I was told this yesterday by my endo
    At this point I have no clue what the truth is, but when I asked my endo what is done if a cancer is not Iodine avid, she told me that there are some good Chemo-therapies available now. My husband concurs that this is what the docotor said. I don't want to give you misinformation. I didn't specify nor did she offer as to whether this chemo was in or out of clinical trials. I didn't think to ask because I haven't done RAI yet. I know the Mayo Clinic has good doctors for almost any disease, or know where to find them, I woudl think.

    I totally understand being nervous. I hope you get more specific answers than I could provide.
  • Renee4666
    Renee4666 Member Posts: 2
    #23
    tazbeau said:

    I was told this yesterday by my endo
    At this point I have no clue what the truth is, but when I asked my endo what is done if a cancer is not Iodine avid, she told me that there are some good Chemo-therapies available now. My husband concurs that this is what the docotor said. I don't want to give you misinformation. I didn't specify nor did she offer as to whether this chemo was in or out of clinical trials. I didn't think to ask because I haven't done RAI yet. I know the Mayo Clinic has good doctors for almost any disease, or know where to find them, I woudl think.

    I totally understand being nervous. I hope you get more specific answers than I could provide.

    Ethanol Ablation i just head about this!!!
    Please check out this blog. This lady is on the thyca.com.

    http://dj-thyroidcancer.blogspot.com/2012/11/ethanol-ablation-round-1.html

    I just saw this today!!!
    Here is what on the mayo clinic website that i found about this:

    Alcohol ablation.
    Mayo Clinic doctors pioneered ultrasound-guided alcohol ablation treatment for recurring thyroid cancers. Alcohol ablation involves injecting small recurrent cancers with alcohol using imaging such as ultrasound to ensure precise placement. This treatment may kill recurrent tumor cells in regions that are difficult to reach surgically. Your doctor may recommend this treatment if you have recurrent thyroid cancer limited to small areas in your neck.

    Hope this helps!
  • smerth
    smerth Member Posts: 2
    #24
    Renee4666 said:

    Ethanol Ablation i just head about this!!!
    Please check out this blog. This lady is on the thyca.com.

    http://dj-thyroidcancer.blogspot.com/2012/11/ethanol-ablation-round-1.html

    I just saw this today!!!
    Here is what on the mayo clinic website that i found about this:

    Alcohol ablation.
    Mayo Clinic doctors pioneered ultrasound-guided alcohol ablation treatment for recurring thyroid cancers. Alcohol ablation involves injecting small recurrent cancers with alcohol using imaging such as ultrasound to ensure precise placement. This treatment may kill recurrent tumor cells in regions that are difficult to reach surgically. Your doctor may recommend this treatment if you have recurrent thyroid cancer limited to small areas in your neck.

    Hope this helps!

    Alcohol ablation at the Mayo Clini
    Oddly enough, I too just read this article today! The caveat here is that it indicates that it is limited to small areas in your neck. My Hurthle cell carcinoma has spread to many other areas of my body so I don't think they would do this procedure in those places.

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