Seeing surgeon today...

JayhawkDan
JayhawkDan Member Posts: 205
in Colorectal Cancer #1
...not exactly earth shattering news, except I've been considered "inoperable" since dx in Feb. Last scans were good, and my onc isn't sure that surgery is the right path at this point, but after presenting my case to the tumor board one of the liver surgeons wants to talk to me and lay out the good, the bad and the ugly of what they can do for me. So, another day of anticipation of what might be. Tomorrow I'm scheduled for my 17th round of folfiri/vectibix, so I'm hoping that surgery does look like the way to go and I can cancel the infusion. Chemo is kicking my butt. Wish me luck!

Dan

Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #2
    Dear Dan
    Will be praying that things have improved to the point you can get the surgery. If it is "not just yet", then hope that the chemo is kinder to you until possible.

    Hugs,

    Marie who loves kitties
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #3
    Good luck!

    Good luck!
  • jen2012
    jen2012 Member Posts: 1,607 Member
    #4
    Good luck! Hope you get
    Good luck! Hope you get the answers you want to hear.
  • YoVita
    YoVita Member Posts: 590 Member
    #5
    Good luck!
    Hope surgery is an option for you. That's a good sign.
  • dmj101
    dmj101 Member Posts: 527 Member
    #6
    Good Luck Dan, hoping for
    Good Luck Dan, hoping for the best...
    FYI... they should only cancel the Folfiri.. technically Vectibix is not chemo it is bio-agent and should not interfere with any surgeries.. I feel that is a security blanket of sorts..

    Donna
  • k44454445
    k44454445 Member Posts: 494
    #7
    good luck
    i hope you get the good news that surgery will be done. i just completed #9 out of 12 of folfiri with avastin & i can not imagine doing 17. wow! you are a very strong guy!!! folfiri does kick butt. i always feel some tiredness & i hate it. praying for you.
    hugs
    judy
  • JayhawkDan
    JayhawkDan Member Posts: 205
    #8
    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #9
    JayhawkDan said:

    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan

    Woo-Hoo...
    ...sounds right, Dan:)

    Glad you're getting a little break...does a body good...Folfiri has felled many a strong tree in this forest...

    Best wishes and have an enjoyable holiday...
  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #10
    JayhawkDan said:

    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan

    Awesome news. So happy for
    Awesome news. So happy for you. Go celebrate.

    Chelsea
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #11
    JayhawkDan said:

    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan

    Dear Dan
    Glad that your news is good. Did the doc indicate if the liver will regenerate in the areas where the dead spots are?

    Nice to take a holiday from the chemo...enjoy it!

    Wishing you continued good news and more.

    Hugs,

    Marie who loves kitties
  • steved
    steved Member Posts: 834 Member
    #12
    JayhawkDan said:

    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan

    Great news
    This is hugely great news. Really embrace and anjoy it. Am drinking a good new Zealand Chardonnay tonight so will enjoy a toast to your dead tumours.

    Any possibility of surgery on the primary?

    Steve
  • YoVita
    YoVita Member Posts: 590 Member
    #13
    JayhawkDan said:

    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan

    Woo-hoo indeed
    Such great unexpected news for you. I'm so happy for you and your family. Enjoy this special time. Hope you're going to celebrate.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #14
    YoVita said:

    Woo-hoo indeed
    Such great unexpected news for you. I'm so happy for you and your family. Enjoy this special time. Hope you're going to celebrate.

    Great News!!! Enjoy the
    Great News!!! Enjoy the break :)
  • k44454445
    k44454445 Member Posts: 494
    #15
    JayhawkDan said:

    Update
    Saw the surgeon yesterday afternoon. It was delayed because he was involved in a liver transplant, which is good to know this guy probably knows his way around a liver. Basically it was really good news, but doesn't involve surgery. He reiterated, and diagrammed and explained extremely well what's going on with my liver. I told him noone has been able to tell me how many lesions there are and he said it was like a shotgun blast -- they're all over both lobes, big and small so it's difficult to give a number beyond "extensive." But he said they're all "dead." Just remnants, basically. I had noted here before that the oncologist described them as "burnt out," but I guess I was a little dubious. Sometimes it seems it's hard to digest good news as much as it is bad news. Or maybe it's just human nature to put more credence to the bad rather than the good. But im starting to actually believe the good. He said surgery would be difficult anyway because of how extensive the crap is, but right now there's just no point. The bastards are dead. He obviously can't predict how long those zombie sonsabitches will stay that way, but for now I'm dancing a jig on their graves! Of course I'm still dealing with the primary tumor in the rectum, but it's shrunk and currently under control. So...continue chemo and keep kicking butt. I was scheduled for an infusion today but my onc said I could take a break if I wanted, so I did not argue! So, all in all, it's a great day -- and I can hopefully keep pushing the cancer further down the road to when they come up with better treatments or even a cure. What the hell, might as well hope, right!? There's been so much bad news, pain, discomfort, fear and loathing for my family the past 9 months, and it's just a really good day! Woo-hoo, Dan

    Dan
    this just made my day! great news. and you made me really laugh alot about the description of the liver areas!!! i love your attitude. keep it up.
    hugs
    judy

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