Hi! I was just told on thursday I have anal squamous severve dyplasia

Hi Carla
I am newly diagnosed as well, and sorry you have to be here. This is a great place for you to get answers. I found this board 3 days after my diagnosis and it has helped me tremendously. The things I was reading on the internet were really scaring me. There are a lot of good people here that have been through this, and their experience with this is invaluable. I had hemmy surgery on Oct 3 and that is when they found small amount of invasive cancer cells in the hemmy they removed. I got my news on Oct 9th.
I have been to many Dr's over the past month and they have decided I need Chemo/Radiation.
I know someone will be able to help you with some answers.
XO

Carla71016 said:

Thank You!
Thank you,

I'm sorry to hear you have to go through this! From what I'm learning though the treatment will kill it! I'm sorry and I'm praying for you.

Thank you for taking the time out to read my post! Any bit is helping!

XO

see my post about Lymph nodes to radiate or not
look for comment to me from Martha
she posted some very good websites

Hi Carla--
I'm sorry that your recent news has brought you here, but I'm so glad you are searching for answers and support. We will help you in any way possible. Dysplasia means that there are some abnormal cells but that they have not progressed to cancer at this point. It's most likely that at this stage, you would not undergo chemo/radiation, which is the standard treatment for anal cancer.

I have pasted in a website address for you to check out. Univ. of California San Francisco has a dysplasia clinic that specializes in treating conditions such as yours. I'm not sure where you are located, but even if you are not near S.F., perhaps your doctors can do a phone consult with this facility to get some treatment specifics. There is a Dr. Berry there who a friend of mine has been seeing for anal dysplasia--look him up.

http://id.medicine.ucsf.edu/analcancerinfo/

Also, you may find information on the website for the HPV and Anal Cancer Foundation:

http://www.analcancerfoundation.org/resources/medical-resources/

Also, there is a Dr. Stephen Goldstone in New York City who specializes in treating such conditions. You can read more about him at the address below. He might also be someone your doctor(s) can do a phone consult with.

http://www.thebody.com/content/art39709.html

The next website is from the National Institutes of Health.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2780238/

I am not trying to bombard you with information, but the more informed you are about this condition, the more questions you can ask your doctors. I hope at least some of this info helps you better understand your diagnosis. I wish you all the best and hope you will continue to post here. We will support you as much as possible.

mp327 said:

Hi Carla--
I'm sorry that your recent news has brought you here, but I'm so glad you are searching for answers and support. We will help you in any way possible. Dysplasia means that there are some abnormal cells but that they have not progressed to cancer at this point. It's most likely that at this stage, you would not undergo chemo/radiation, which is the standard treatment for anal cancer.

I have pasted in a website address for you to check out. Univ. of California San Francisco has a dysplasia clinic that specializes in treating conditions such as yours. I'm not sure where you are located, but even if you are not near S.F., perhaps your doctors can do a phone consult with this facility to get some treatment specifics. There is a Dr. Berry there who a friend of mine has been seeing for anal dysplasia--look him up.

http://id.medicine.ucsf.edu/analcancerinfo/

Also, you may find information on the website for the HPV and Anal Cancer Foundation:

http://www.analcancerfoundation.org/resources/medical-resources/

Also, there is a Dr. Stephen Goldstone in New York City who specializes in treating such conditions. You can read more about him at the address below. He might also be someone your doctor(s) can do a phone consult with.

http://www.thebody.com/content/art39709.html

The next website is from the National Institutes of Health.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2780238/

I am not trying to bombard you with information, but the more informed you are about this condition, the more questions you can ask your doctors. I hope at least some of this info helps you better understand your diagnosis. I wish you all the best and hope you will continue to post here. We will support you as much as possible.

Displasia
I'm so glad that even if Martha has left for her trip she is still checking in. I knew she had posted about displasia and San Fran previously.

Carla, I would imagine that your doctors will want to keep a close check on you. Its like if you have an abnormal PAP smear or even Mammogram. If somehting looks suspicious they will test you more often to see if it is progressing into anything else. I suggest you go ahead and find a colorectal doctor that has dealt with this issue before. This is a fairly rare cancer and there is a good bit of ignorance and even misdiagnosis within the medical community out there. There is a device called a anoscope which is basically a short speculum which the doctor inserts into your anus so they can see the area. Your anal canal below you sph. muscle is about 3"-4" long I believe and between DREs (Digital Rectal Exam) and an Anosocopy, they will be able to keep close watch over you. Hopefully for you this will not progress into anything worse such as cancer, but the good news is you are now aware of a potential issue so you can keep an eye out for it. Just remember to be your own advocate. Read what Martha has suggested and if you have questions come to this site to see if anyone can answer them. There are no embarrasing questions on here (we've heard it all and lived a lot of it), and we've gotten use to tossing the "A" words (anal, anus, etc...) without even a second thought. You may be too young to remember the old chicken commercial, but "Parts is parts." and we all have one.