PATHOLOGY REPORT AFTER SURGERY
Comments
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Good information
Thank you for posting this.
I'm so sorry for your loss and that you didn't have the information you needed to make decision.
Time for the caretaker to take care of herself.0 -
How frustrating this must be
How frustrating this must be for you. I think it is essential that we are given all the information so we can make the decisions that are right for us. I don't know how common this is, but one thing I appreciate about M D Anderson is that they have a patient page (My M D Anderson)and one of the things you can access on it is all the patient reports - radiology reports, blood test results, scan results, oncologist reports, path results etc. It gives you a warning that you may not understand some information and may be better off talking with your doc, but it lets you see everything if you so choose. This has been a godsend for me as I am by nature a worrywart and seeing all the details is really helpful for me as my mind will go to the worst case otherwise (I don't think Bill has ever looked at it - not sure he even knows how to log onto the site actually).0 -
so sorry for thisFreida said:How frustrating this must be
How frustrating this must be for you. I think it is essential that we are given all the information so we can make the decisions that are right for us. I don't know how common this is, but one thing I appreciate about M D Anderson is that they have a patient page (My M D Anderson)and one of the things you can access on it is all the patient reports - radiology reports, blood test results, scan results, oncologist reports, path results etc. It gives you a warning that you may not understand some information and may be better off talking with your doc, but it lets you see everything if you so choose. This has been a godsend for me as I am by nature a worrywart and seeing all the details is really helpful for me as my mind will go to the worst case otherwise (I don't think Bill has ever looked at it - not sure he even knows how to log onto the site actually).
So sorry to see your post relating the information or should I say lack of you received during your husband's care. I think you are justified to ask for answers. You can schedule an appt with your husbands drs and ask them to explain some of this. I have worked for internists and if someone dies unexpectedly, it was not unusual for the family to come in for a visit with the dr and have their questions answered. I am sad for you because as you said you all may have done this differently if you and your husband had all the facts like less treatment more family quality time. My thoughts and prayers are with you and your family, this terrible disease exacts enough of a toll on all without the problems you have faced. take care,
Donna700
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