Thanks for welcoming me back
Thank you for your sympathies in regards to my grandson, if you think cancer is a horrible disease try Mitochondrial disease, Alex was born June 14, 2011 and sprouted his Angel wings on Oct. 15, 2011, he had an undiagnosed Mitochondrial disorder, the Dr.'s were leaning towards Leigh's syndrome but just weren't able to pin down the exact strain.
Sundance you are always an inspiration hope all is well with you and yours. It was also nice to see Buzz post again. And i am so very terrible sorry to read about all of those who lost their battle with this disease. Tooooooo many!! Kim
Comments
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Thank you for sharing your
Thank you for sharing your story. It sounds like Roger is a real fighter. I'm sorry for all you've been through. I hope you stay active on this message board. As a caregiver I find it very helpful. It took such a weight off my back to realize that other people were going through the same kind of problems as my husband and I. So nice to have a group of people that understand. Chelsea0 -
You are so rightChelsea71 said:Thank you for sharing your
Thank you for sharing your story. It sounds like Roger is a real fighter. I'm sorry for all you've been through. I hope you stay active on this message board. As a caregiver I find it very helpful. It took such a weight off my back to realize that other people were going through the same kind of problems as my husband and I. So nice to have a group of people that understand. Chelsea
This board was so much help to me when we started on the cancer train. I didn't realize until recently that I really may be able to help someone as much as they have all helped me, everything in the beginning was so scary and dreadful and of course I made the mistake of looking up all the statistics and that made everything even more scary, i was so full of doom and gloom and really believed that my husband and my time together was over, but now I am so full of hope and I have learned to appreciate everyday, hour and minute together and that Roger's diagnoses means that we have to live out the rest of our time with a chronic disease. Roger has cancer but cancer does not have him. I can honestly say that all the experience on this board with this disease is just amazing and so very helpful.0
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