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  • Pam M
    Pam M Member Posts: 2,196
    #22
    Tonsil Dad said:

    Welcome.
    Welcome to our little piece of the internet, its the club that
    no one wants to be in but you will be sure glad you found it.
    I finished 33 rads only ( no chemo or surgery ) for ..
    High Stage II Tonsil . HPV+.
    I'm almost 7 months post treatment and doing good, no meds
    or pain management. I'm eating pretty much anything even though
    the taste and saliva are not quite there yet but other than that I'm
    doing what I did before the big C. I'm working, I go out for drinks
    with the guys, travel, its the same as before ( almost ).
    There is life after cancer all be it a "new normal " it gives hope to
    the newbee's that they will get to the other side.

    Ps, I never really got mouth sores or mucus or a burned neck
    but I did use, mugard, and aloe, and salt/baking soda. (Magic mouthwash didn't
    work for me )
    I also took a natural product for my immune system all through
    treatment and even to this day and will continue.

    God bless
    Tonsil dad,

    Dan.

    What?? Magic Mouthwash Didn't Work??
    Teasing, Dan. In my case, it was called Miles Mixture, and it didn't work for me. I got pretty frustrated during treatment hearing EVERYONE sing the praises of Magic Mouthwash. I was happy for them, but jealous.
  • Pam M
    Pam M Member Posts: 2,196
    #23
    Hello, Alan!
    When I felt I was truly miserable, I kept reminding myself of how far I'd made it so far, and that I only had "x" days left, and I needed to compare the "x" to the YEARS I'd be gaining. You sound like you're right on target to me, too. I had really good nausea meds that I took on schedule, so I didn't have serious nausea issues.

    I, too, was diagonosed with BOT. For me, it was Stage IV, two lymph nodes involved.
  • phrannie51
    phrannie51 Member Posts: 4,716
    #24
    AJW1966 said:

    Hi John
    Wow! I can only pray that i have peaked with the effects of rads.
    What's your secret? : )
    Thanks for the welcome!

    Alan

    I believe the salt/soda was
    1 teaspoon salt and one teaspoon soda to a quart...tho I made mine with less water...I used a 20 oz water bottle to mix it in.

    Do check out the link that John gave you for the Super Thread, there is SO MUCH information in there...practical things to make this a less miserable journey.

    p
  • VanessaSLO
    VanessaSLO Member Posts: 283
    #25
    Pam M said:

    Hello, Alan!
    When I felt I was truly miserable, I kept reminding myself of how far I'd made it so far, and that I only had "x" days left, and I needed to compare the "x" to the YEARS I'd be gaining. You sound like you're right on target to me, too. I had really good nausea meds that I took on schedule, so I didn't have serious nausea issues.

    I, too, was diagonosed with BOT. For me, it was Stage IV, two lymph nodes involved.

    Welcome!
    As others have said: here is great info about everything you need to know. People here are sooooo knowledgeble, smart, positive and there is always somebody who will answer your questions and try to help you! It's an amazing place to be!
    My Dad finished his tx in September for Oropharyngeal cancer (primary on the base of his tongue with multiple lymph nodes involved, Stage IV, HPV negative. It was tough for him in the end anf especially for two weeks after tx. He didn't have PEG but was admitted to hospital twice for IV fluids. He still has problems with (probably) thrush and pain where the tumour was. But overall he is doing ok... Feeling tired, sleeping a lot... Actually pretty much the same experience as many people here.
    So, you just stay here on this board and you will get through it!!!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #26
    phrannie51 said:

    I believe the salt/soda was
    1 teaspoon salt and one teaspoon soda to a quart...tho I made mine with less water...I used a 20 oz water bottle to mix it in.

    Do check out the link that John gave you for the Super Thread, there is SO MUCH information in there...practical things to make this a less miserable journey.

    p

    H2O2 and Baking Soda...
    Actually my mixture for rinse and spit was a few tablespoons of hydrogen peroxide and a scoop of baking soda in a 1/3 glass of water...several times a day.

    AJW, I was lucky I guess..though sore inside the throat, it was doable. External never really got much worse than a bad sunburn, and dark peeling skin.

    I took a lot of warm - hot showers to slough off the dead skin....

    For whatever reason, it worked for me.

    JG
  • Sam999
    Sam999 Member Posts: 319 Member
    #27
    VanessaSLO said:

    Welcome!
    As others have said: here is great info about everything you need to know. People here are sooooo knowledgeble, smart, positive and there is always somebody who will answer your questions and try to help you! It's an amazing place to be!
    My Dad finished his tx in September for Oropharyngeal cancer (primary on the base of his tongue with multiple lymph nodes involved, Stage IV, HPV negative. It was tough for him in the end anf especially for two weeks after tx. He didn't have PEG but was admitted to hospital twice for IV fluids. He still has problems with (probably) thrush and pain where the tumour was. But overall he is doing ok... Feeling tired, sleeping a lot... Actually pretty much the same experience as many people here.
    So, you just stay here on this board and you will get through it!!!

    Hello Alan,
    Welcome to this
    Hello Alan,

    Welcome to this wonderful world of cyber friends. I am sad that you had a reason to look for this but happy that you found it. I finished my tx 4 months back and could not have done it without help from helpful folks on this site.

    I also used mugard and found it to be very useful. I also added caphasol towards end of tx.

    Journey is slow and not easy but you will get thru it.

    I am 4 months post tx, started working..can eat most food...life is feeling almost normal.

    Sam
  • KJCorri
    KJCorri Member Posts: 14
    #28
    Hi Alan
    Hi Alan, I'm pretty new here too, diferent Dx (sarcoma- right maxilary sinus- stage 3) so I don't have much useful advice for you- except to say- hang in there. Try to stay positive, and make plans for "after" so you have something to look forward to. I felt like you do when I was half way (i am about 2/3 way through rads now) through- but all you can do is take it one day at a time, you can do it!
    Kjcorri (kylie)

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