Great survival story from Stage IV rare H&N
Tim
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Not sure if I told you guys about my close friend Pams Husband, Russell. He's not on FB, although they are certainly Warriors..
Russell was diagnosed with STAGE FOUR Oral Cancer in January of 2009. He had a rare tumour in his Sinus Cavity the size of a LEMON. His only symptoms were typical sinus infections and tiredness. Finally, he got a blood nose that he couldn't stop, and was diagnosed. He was given SIX WEEKS to live if they couldn't get it (and they told him it was unlikely they would get it all). He was warned that it was 95% likely he'd lose his sight and his sense of smell....and even if they got it, he'd be in trouble as it had probably spread to lymph nodes etc..
He underwent hours and hours of surgery where they REMOVED his face....his eyes...his nose....and scraped out the tumor. They got it all.
He then went 12 weeks of intensive Chemo and Radiation. He also had to go on anti biotic therapy for 12 months, coz his forehead bone kept getting infected.
They even made him a new forehead out of titanium, ready to replace his damaged bone. But he didnt need it!
3,nearly 4 years later ; He has his full sight, and the cancer is NOWHERE to be found!!! He lost his sense of smell, but not taste. His eyesight is PERFECT, and he has a new job for the past 12 months. The prognosis is EXCELLENT.
They are constantly watching him (of course), but unless you knew, you can't tell by looking at him. He has a fine scar around his hairline, and a small one along his nose. So much for "Stage 4 with 6 weeks to live". HA!
Comments
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Inspirational !
Tim,
It's posts like this that make a huge impact on how we view- why we do- what we do- to fight the beast. THANK YOU ! And please extend this to your friend on FB....mircles happen every single day ! Awsome ! Katie0 -
Wow!katenorwood said:Inspirational !
Tim,
It's posts like this that make a huge impact on how we view- why we do- what we do- to fight the beast. THANK YOU ! And please extend this to your friend on FB....mircles happen every single day ! Awsome ! Katie
What an inspiring story! It was a very good idea to share it on here, I know this will be helpful to many. Please extend my congratulations to your friend so she can then extend it to her friend.
I hope many people will see and read this amazing post.
Billie0 -
Great to hear.....
Thanks for sharing this with us Tim. It is great to hear such inspiring things.0 -
Thank you Tim for postingfisrpotpe said:proof
great story, thanks for sharing
goes to prove no matter how bad we have it there is someone out there that has it worse, fight the fight, and win.
God is great
john
Thank you Tim for posting this story. We all need inspiration and hope. This is a really rough week for my husband and the lowest I have been also. It helps to see anything positive because its so scary to let my mind wander.
Joan0 -
Postingluvofmylif said:Thank you Tim for posting
Thank you Tim for posting this story. We all need inspiration and hope. This is a really rough week for my husband and the lowest I have been also. It helps to see anything positive because its so scary to let my mind wander.
Joan
Tim thanks for posting. Joan, keep your chin up, it will get better. Are you taking a bit of time out for yourself? As caregiver, you need to do that even if it's just an hour a week. In the middle of my tx, my sisters insisted they take my husband up to the casino a couple of hours. It pleased me to no end that he got a break and I slept thru the entire time he was gone anyway. It not only did him good but me too. Look after yourself. In the midst of tx I lost sight of the objective, it only came to me when I got my 1st scan results and NED. These are tough times but your husband will get through, like so many of us have.0 -
Needing positive outcomeshwt said:Posting
Tim thanks for posting. Joan, keep your chin up, it will get better. Are you taking a bit of time out for yourself? As caregiver, you need to do that even if it's just an hour a week. In the middle of my tx, my sisters insisted they take my husband up to the casino a couple of hours. It pleased me to no end that he got a break and I slept thru the entire time he was gone anyway. It not only did him good but me too. Look after yourself. In the midst of tx I lost sight of the objective, it only came to me when I got my 1st scan results and NED. These are tough times but your husband will get through, like so many of us have.
I am so glad to hear this story and to know that no matter what hope is not lost. This person was definitely a brave warrier and he will inspire many.0 -
Thanks Tim
Our god is an awsome god........
Jim0 -
Thanks so much for sharing!
And so much for all of your posts. I am a bit quieter on this site than when I was going through treatment, but I still check in almost every day. It is good to know you are all here.
Also you reminded me to update the information on the Head and Neck Facebook group.
The title is H & N warriors (a group choice) and it was intended as an addition to this group, for those who like the option of facebook format. It is a private group, meaning that only members can see content. Members can be added by any other member, but they need to be facebook friends.
What do you think of adding this info to the superthread, and if there is anyone who can correctly add the link location. I have forgotten any html snippets I ever knew.
Thanks again
Stacey0
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