just a couple things

glinka65
glinka65 Member Posts: 132
in Colorectal Cancer #1
i spoke with donnas daughter yesterday, she is doing well, if your new here,, donna was a great lady, and gave so much love and positive thoughts, i can tell you without her i would not be posting this now, she walked me through my first round of chemo!! if not for her i never would have done it!! we joked about the fanny pacs for hours!!! like i said a couple things, how are everyone doing with pain??? im telling you sometimes its overwhelming!! ive had 2 colon resections and like many of you...still on chemo....yuck!!! just wondering if anyone else gets horrible back and hip pain from the booster shots for the white cell count,,,,, i rant alot , but i always get great input from you guys!!! thanks for listing!! love you all!!!

Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Shots
    Hated those shots and every bone in my body hurt including my skull. Guess you do what you have to but that was not something that was easy. Hope they get better for you.

    Kim
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #3
    Annabelle41415 said:

    Shots
    Hated those shots and every bone in my body hurt including my skull. Guess you do what you have to but that was not something that was easy. Hope they get better for you.

    Kim

    hey Glinka
    just wanted to say hi dont have any advise on your pain as it has been a long time since i had those shots.its nice to see you posting.i am on xeloda and having platelet problems.what kind of chemo are you on now?hang in there we are all in this together...Godbless...johnnybegood
  • k44454445
    k44454445 Member Posts: 494
    #4
    nuelasta
    i get the nuelasta injection & only once did i have side effects. i had chills & very mild jaw ache. last year i did folfox6 from jan thru july & had neulasta 7 times. this time i started folfiri with avastin in july & i have had 7 nuelasta shots with no problems. i feel very lucky in that i do not have side effects from it. i hope next time you get the shot you do not get the horrible pain.
    judy
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #5
    Still Miss Donna:(
    Great that you are in communication with her...

    As for the pain with the WBC shots...

    The reason you are hurting is because the shots are forcing your body to produce more WBC's from your bone marrow.

    And consequently, the skull (Kim) and the hips and back are heavy producers of that...and thus, why we hurt so badly after getting the shot.

    I found that taking some Tramadol right after getting the shot would help me some...as time went by and I kept getting the shots, my body made the adjustment and I would not hurt as bad, so I stopped taking that.

    But, it does hurt...and especially when you don't know why...and on top of chemo too:)
  • northa914
    northa914 Member Posts: 100
    #6
    Claritin and Neupogen
    My oncologist told me to take Claritin just before my first shot and continue to take it as directed on the package until the last shot (I self-inject three times every other day starting one day after my FOLFIRINOX infusion). She said once the pain starts the Claritin won't work, but if you take it as she directed then it would alleviate the bone pain symptoms. I don't know if it works as I forgot to take it once and didn't experience bone pain so I stopped using the Claritin because I found I didn't need it. Hope this helps!
  • marqimark
    marqimark Member Posts: 242 Member
    #7
    Neulasta
    Had after eight of my twelve treatments.
    Did not have side effects, at least none that were noticable over the ones from the oxy/5fu...

    eleven treatments, didn't make it to twelve...
  • Maxiecat
    Maxiecat Member Posts: 544 Member
    #8
    marqimark said:

    Neulasta
    Had after eight of my twelve treatments.
    Did not have side effects, at least none that were noticable over the ones from the oxy/5fu...

    eleven treatments, didn't make it to twelve...

    I am getting the Neulasta
    I am getting the Neulasta too. The drs office told me to get Claritin...start it day befor shot and continue it for an additional 4 days. I had slight lower back pain...but nothing like they said the drug would cause...I think the Claritin is working....don't get claritin d ... It does not work as well according to the nurses.

    Alex
  • glinka65
    glinka65 Member Posts: 132
    #9
    Maxiecat said:

    I am getting the Neulasta
    I am getting the Neulasta too. The drs office told me to get Claritin...start it day befor shot and continue it for an additional 4 days. I had slight lower back pain...but nothing like they said the drug would cause...I think the Claritin is working....don't get claritin d ... It does not work as well according to the nurses.

    Alex

    hey
    you guys are the best!!!! thank you for the input!!!! hope all is ok wiht you johnny!!!

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