Steve? are you home yet?

Patteee
Patteee Member Posts: 945
in Colorectal Cancer #1
I have been so busy with my own life- new granddaughter, Charlotte, born last Thurs, 5 weeks early-

That I am thinking I missed the post you were home and getting used to your new world~

Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Ditto
    How are you doing? Hope you are recovering ahead of schedule.

    Kim
  • steved
    steved Member Posts: 834 Member
    #3
    Home
    Sorry only just saw this. Yeah been home just over a week and settled in well so feels normal to be here now. Still long way to go on recovery but slow and steady.

    Thanks for asking,
    Steve
  • maglets
    maglets Member Posts: 2,576 Member
    #4
    steved said:

    Home
    Sorry only just saw this. Yeah been home just over a week and settled in well so feels normal to be here now. Still long way to go on recovery but slow and steady.

    Thanks for asking,
    Steve

    steve
    think about .....so so glad being home feels normal....isn't it wonderful??? just the ability to have a cup a tea when you want to ....little things...

    I think about how you are adapting ....how your pain level is...how all the adaptations are working out....in short....just thinking about you my friend....

    best love.......mags
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #5
    Congrats
    Hope the new granddaughter and mom are doing well...particularly since she was determined to be early!

    Steve posted on this thread... http://csn.cancer.org/node/248975

    His first weekend home.

    Give the new sweetie a hug and a kiss from me!

    Marie who loves kitties
  • steved
    steved Member Posts: 834 Member
    #6
    maglets said:

    steve
    think about .....so so glad being home feels normal....isn't it wonderful??? just the ability to have a cup a tea when you want to ....little things...

    I think about how you are adapting ....how your pain level is...how all the adaptations are working out....in short....just thinking about you my friend....

    best love.......mags

    Getting there
    Slowly adapting at home. Really enjoying being here compared to hospital- you are right, just the freedom to have the food you want or have a tablet without having to ring a bell. Having to learn to do everything from scratch though. Mainly on crutches so hard to carry anything but pretty mobile and able to get outside more and more. Sitting still hard so spend a lot of the day reclining but again nice to have options of sofas and chairs rather than just my hospital bed. Not able to travel in car yet so have transfers for physio etc by ambulance- will really enjoy the freedom of the car when it happens.

    Wound on hip slow to heal so have a vacuum dressing on it which means carrying a pump around. Again will be great to lose that in next week or so as slows mobility. Getting confident with colostomy and urostomy. Still have strong sensations of having my leg- still totally feels like it is there much of the time. Has slowed my acceptance of losing it I think but that sensation should fade over coming year. Not much phantom pain in the missing leg which is a common problem that I am pleased not to have to deal with.

    Overall recovery feels slow but steady. Patience is now my main challenge. Not always best at that!

    Steve
  • YoVita
    YoVita Member Posts: 590 Member
    #7
    steved said:

    Getting there
    Slowly adapting at home. Really enjoying being here compared to hospital- you are right, just the freedom to have the food you want or have a tablet without having to ring a bell. Having to learn to do everything from scratch though. Mainly on crutches so hard to carry anything but pretty mobile and able to get outside more and more. Sitting still hard so spend a lot of the day reclining but again nice to have options of sofas and chairs rather than just my hospital bed. Not able to travel in car yet so have transfers for physio etc by ambulance- will really enjoy the freedom of the car when it happens.

    Wound on hip slow to heal so have a vacuum dressing on it which means carrying a pump around. Again will be great to lose that in next week or so as slows mobility. Getting confident with colostomy and urostomy. Still have strong sensations of having my leg- still totally feels like it is there much of the time. Has slowed my acceptance of losing it I think but that sensation should fade over coming year. Not much phantom pain in the missing leg which is a common problem that I am pleased not to have to deal with.

    Overall recovery feels slow but steady. Patience is now my main challenge. Not always best at that!

    Steve

    Slow but steady
    Good to hear given all that you've been through. At least the trend is in the right direction. Glad you're home.
  • maglets
    maglets Member Posts: 2,576 Member
    #8
    steved said:

    Getting there
    Slowly adapting at home. Really enjoying being here compared to hospital- you are right, just the freedom to have the food you want or have a tablet without having to ring a bell. Having to learn to do everything from scratch though. Mainly on crutches so hard to carry anything but pretty mobile and able to get outside more and more. Sitting still hard so spend a lot of the day reclining but again nice to have options of sofas and chairs rather than just my hospital bed. Not able to travel in car yet so have transfers for physio etc by ambulance- will really enjoy the freedom of the car when it happens.

    Wound on hip slow to heal so have a vacuum dressing on it which means carrying a pump around. Again will be great to lose that in next week or so as slows mobility. Getting confident with colostomy and urostomy. Still have strong sensations of having my leg- still totally feels like it is there much of the time. Has slowed my acceptance of losing it I think but that sensation should fade over coming year. Not much phantom pain in the missing leg which is a common problem that I am pleased not to have to deal with.

    Overall recovery feels slow but steady. Patience is now my main challenge. Not always best at that!

    Steve

    steve
    you are dealing with so many things that are outside of my ken...I think moving on crutches without another hand must be difficult....who is going to carry the yummy coffee???/
    and sitting? who would have thought that would be sooo hard?

    hoping things will be better without the the wound vac....and I really think you are the first to describe a missing limb. cannot even think how difficult that must be....

    mmmm patience....perhaps you should be reading the dalai lama...can't hurt....I think about his wisdom a great deal...

    so glad you are home my friend...

    be well/////mags
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #9
    steved said:

    Getting there
    Slowly adapting at home. Really enjoying being here compared to hospital- you are right, just the freedom to have the food you want or have a tablet without having to ring a bell. Having to learn to do everything from scratch though. Mainly on crutches so hard to carry anything but pretty mobile and able to get outside more and more. Sitting still hard so spend a lot of the day reclining but again nice to have options of sofas and chairs rather than just my hospital bed. Not able to travel in car yet so have transfers for physio etc by ambulance- will really enjoy the freedom of the car when it happens.

    Wound on hip slow to heal so have a vacuum dressing on it which means carrying a pump around. Again will be great to lose that in next week or so as slows mobility. Getting confident with colostomy and urostomy. Still have strong sensations of having my leg- still totally feels like it is there much of the time. Has slowed my acceptance of losing it I think but that sensation should fade over coming year. Not much phantom pain in the missing leg which is a common problem that I am pleased not to have to deal with.

    Overall recovery feels slow but steady. Patience is now my main challenge. Not always best at that!

    Steve

    Dear Steve
    Glad to hear that you seem to be doing well with the transition home.

    Mags brought up how to manage to carry things while on crutches.

    If you know someone who is handy with tools, here is a site that describes making a cup holder to attach to crutches:

    http://www.ehow.co.uk/how_6016952_make-drink-holder-crutches.html

    I am guessing they mean it for a cup with a top on it.

    I expect that if you put your mind to it, you and that handy friend could come up with some other options for attachments, perhaps even come up with something which makes them easily interchanged.

    Who knows, you may even be able to patent an invention!

    Hugs and wishes for a steady recovery.

    Marie who loves kitties
  • steved
    steved Member Posts: 834 Member
    #10
    Lovekitties said:

    Dear Steve
    Glad to hear that you seem to be doing well with the transition home.

    Mags brought up how to manage to carry things while on crutches.

    If you know someone who is handy with tools, here is a site that describes making a cup holder to attach to crutches:

    http://www.ehow.co.uk/how_6016952_make-drink-holder-crutches.html

    I am guessing they mean it for a cup with a top on it.

    I expect that if you put your mind to it, you and that handy friend could come up with some other options for attachments, perhaps even come up with something which makes them easily interchanged.

    Who knows, you may even be able to patent an invention!

    Hugs and wishes for a steady recovery.

    Marie who loves kitties

    Figuring stuff out
    Thanks for the comment. As you say it is a matter of simply being imaginative about finding solutions to each challenge as it arises. Most stuff is simply persevering and being patient- can shift stuff around the kitchen stages and have a trolley on wheels for moving a bunch of stuff together. Will check out website as have great neighbours who have ramped the front door and seem able to make anything they turn their hand to.

    Thanks for the tips and advise,

    Steve

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