What can I do to stop the itch?

Attygirl
Attygirl Member Posts: 121
I feel silly asking this, with all of the serious issues Sisters here are dealing with. But I am having a hard time with itching. It's intense. I'm scratching my poor breast raw. I am post-lumpectomy since May, post-rads since end of August, on Tamoxifen for about a month. Still using generic Biafine (Prutext) or Aquaphor daily. Anything out there I can take/do for some relief? Thanks, in advance, for taking the time to reply.
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Comments

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    Check with your radiation oncologist
    First of all -- DON'T feel silly asking questions! We're here to help each other, and there's no reason your recovery needs to be any more difficult than it already is!

    After I healed from radiation, I also had frequent, intense bouts of itching, particularly around my lumpectomy and sentinel node biopsy scars. It gradually got less and less over the first year, but even still (2 1/2 years since radiation ended), I sometimes get a little mild itching around the scars.

    Definitely call your radiation oncologist's office, and ask what he/she recommends -- there's no reason to suffer, and they're experts on skin healing from radiation. I had a prescription cream immediately after radiation to help with the itching (I'm sorry, I don't remember what it was called) -- once it lessened, my doctor told me just to use over-the-counter hydrocortisone cream.

    Hope that helps?

    Traci
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    TraciInLA said:

    Check with your radiation oncologist
    First of all -- DON'T feel silly asking questions! We're here to help each other, and there's no reason your recovery needs to be any more difficult than it already is!

    After I healed from radiation, I also had frequent, intense bouts of itching, particularly around my lumpectomy and sentinel node biopsy scars. It gradually got less and less over the first year, but even still (2 1/2 years since radiation ended), I sometimes get a little mild itching around the scars.

    Definitely call your radiation oncologist's office, and ask what he/she recommends -- there's no reason to suffer, and they're experts on skin healing from radiation. I had a prescription cream immediately after radiation to help with the itching (I'm sorry, I don't remember what it was called) -- once it lessened, my doctor told me just to use over-the-counter hydrocortisone cream.

    Hope that helps?

    Traci

    You might have what I had
    You might have what I had and it was from the radiation. It was a rash and it itched something terrible. The over the counter cortisone creams did not work for me, so, my rads oncologist gave me a prescription. It worked! See if you can get some. It is Triamcinolone Acetonide Cream. The itching started going away pretty quick. Good luck!


    Sue :)
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    I totally agree with
    I totally agree with Traci...you always need to ask those questions. Nothing is too small or too big to talk about here.

    With skin issues I have good results with lidocane creams, the numbing usually gives me the relief I need.. Of course, it's something to talk with your rads onc about.

    Good luck and let us know what works.

    Hugs,

    Linda
  • Noel
    Noel Member Posts: 3,095 Member

    I totally agree with
    I totally agree with Traci...you always need to ask those questions. Nothing is too small or too big to talk about here.

    With skin issues I have good results with lidocane creams, the numbing usually gives me the relief I need.. Of course, it's something to talk with your rads onc about.

    Good luck and let us know what works.

    Hugs,

    Linda

    I used the same cream that
    I used the same cream that Ritzy used. Ask your rads oncologist about it. I am sure he can give you something to help.


    Good luck!
  • Attygirl
    Attygirl Member Posts: 121
    Thank you all so much
    Thanks, Sue and Noel, for that specific cream you suggest. Sounds like that is what I need and I am calling my rad onc today!
    And thanks, Traci and Linda, for so graciously validating me. Linda, who is going through so many difficulties, is such an inspiration. My stupid issues seem so small compared to the tough times you have had. I hope you know how much your words and support mean to me.

    Teary hugs...
  • Alexis F
    Alexis F Member Posts: 3,598
    Attygirl said:

    Thank you all so much
    Thanks, Sue and Noel, for that specific cream you suggest. Sounds like that is what I need and I am calling my rad onc today!
    And thanks, Traci and Linda, for so graciously validating me. Linda, who is going through so many difficulties, is such an inspiration. My stupid issues seem so small compared to the tough times you have had. I hope you know how much your words and support mean to me.

    Teary hugs...

    Did you get some help from
    Did you get some help from your rads oncologist for the itching? And, never say any issue you have is stupid! Every issue we have is just as important as the next one. No one's take precedence over anyone else's.


    Hugs, Lex
  • debsweb18
    debsweb18 Member Posts: 191 Member
    Attygirl said:

    Thank you all so much
    Thanks, Sue and Noel, for that specific cream you suggest. Sounds like that is what I need and I am calling my rad onc today!
    And thanks, Traci and Linda, for so graciously validating me. Linda, who is going through so many difficulties, is such an inspiration. My stupid issues seem so small compared to the tough times you have had. I hope you know how much your words and support mean to me.

    Teary hugs...

    Don't scratch!
    That will make it worse! I started with a rash on my upper chest and started scratching. I didn't realize my radiation treatments were going that high and that's what it was from. Where I scratched was much worse during the rest of treatment. OTC cortisone helped some, but not completely. Aquaphor with lidocaine (the RO mixed it up for me) helped. Then I started adding aloe gel to Aquaphor.

    And I agree-it's not stupid! We're all at different stages of treatments and some have more than others. But we've all one difficulty or another and they're all important!

    And did I say "Don't Scratch"?

    Deb
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    debsweb18 said:

    Don't scratch!
    That will make it worse! I started with a rash on my upper chest and started scratching. I didn't realize my radiation treatments were going that high and that's what it was from. Where I scratched was much worse during the rest of treatment. OTC cortisone helped some, but not completely. Aquaphor with lidocaine (the RO mixed it up for me) helped. Then I started adding aloe gel to Aquaphor.

    And I agree-it's not stupid! We're all at different stages of treatments and some have more than others. But we've all one difficulty or another and they're all important!

    And did I say "Don't Scratch"?

    Deb

    What did he say? Did you
    What did he say? Did you get a cream to help yet?
  • Tux
    Tux Member Posts: 544
    DianeBC said:

    What did he say? Did you
    What did he say? Did you get a cream to help yet?

    itching
    I have had skin allergies for decades, so I was not surprised when itching
    started. I am already on meds to control it, but I have found that OTC
    hydrocortisonecream has helped. Also, I got some roll-on stuff to
    carry in my purse. Hope you can get some relief!
  • Attygirl
    Attygirl Member Posts: 121
    Hello All
    And thanks again for the validation. I promise not to characterize a complaint as "silly" again!

    My rad onc's assistant had me trying all of these over-the-counter creams but nothing has given me any sustained relief. So we just talked and she is calling in a prescription for Atarex. Said it should stop the itching...and help me sleep too (since I don't do much of that). She said they don't like to prescribe steroid-based creams, like the one recommended by several of you above (triamcinolone acetonide), but I may insist on trying it if this doesn't work for me.

    I'll update in a few days...and thanks so much!
  • Noel
    Noel Member Posts: 3,095 Member
    Attygirl said:

    Hello All
    And thanks again for the validation. I promise not to characterize a complaint as "silly" again!

    My rad onc's assistant had me trying all of these over-the-counter creams but nothing has given me any sustained relief. So we just talked and she is calling in a prescription for Atarex. Said it should stop the itching...and help me sleep too (since I don't do much of that). She said they don't like to prescribe steroid-based creams, like the one recommended by several of you above (triamcinolone acetonide), but I may insist on trying it if this doesn't work for me.

    I'll update in a few days...and thanks so much!

    Just glad that your onco is
    Just glad that your onco is giving you something to help. I hope it does. If it doesn't, please try the cream.

    Sleep? What's that? lol

    Get some sleep and stop that itching and always post anything that bothers you. That's why we're here.


    Good luck,


    Noel
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    Attygirl said:

    Hello All
    And thanks again for the validation. I promise not to characterize a complaint as "silly" again!

    My rad onc's assistant had me trying all of these over-the-counter creams but nothing has given me any sustained relief. So we just talked and she is calling in a prescription for Atarex. Said it should stop the itching...and help me sleep too (since I don't do much of that). She said they don't like to prescribe steroid-based creams, like the one recommended by several of you above (triamcinolone acetonide), but I may insist on trying it if this doesn't work for me.

    I'll update in a few days...and thanks so much!

    How is the Atarex -- working?
    no such thing of a 'silly' question when it comes to breast cancer. We are all
    different, and react differently from chemo, drugs, or radiation.

    Side efforts continue to plague many us ... months, even years after our treatment
    has ended.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    VickiSam said:

    How is the Atarex -- working?
    no such thing of a 'silly' question when it comes to breast cancer. We are all
    different, and react differently from chemo, drugs, or radiation.

    Side efforts continue to plague many us ... months, even years after our treatment
    has ended.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam

    Really hoping it will work! Why did your onco not want you to use the cream? It worked for me almost immediately.


    Good luck to you,

    Sue :)
  • jnl
    jnl Member Posts: 3,869 Member
    Ritzy said:

    Really hoping it will work! Why did your onco not want you to use the cream? It worked for me almost immediately.


    Good luck to you,

    Sue :)

    Wondering how the atarex is
    Wondering how the atarex is working also. Are you doing ok now? No more itching?


    Leeza
  • lintx
    lintx Member Posts: 697
    jnl said:

    Wondering how the atarex is
    Wondering how the atarex is working also. Are you doing ok now? No more itching?


    Leeza

    Atty girl
    I've been thinking about you bc we started our Tamoxifen together. I haven't noticed se's. How about you? Also thinking about you living close to the Jersey shore and the storm, Sandy. Give us a heads up asap. Hugs, Linda
  • pinkkari09
    pinkkari09 Member Posts: 877
    I'm with Traci
    Try not to itch, easier said than done. Get on the phone with Doc or go in and get yourself some relief. I itched my left side a lot, and i can't even feel that boob, but I can feel an itch, wierd. Hope you get relief soon!
    Miles of Love,
    ~Kari
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    lintx said:

    Atty girl
    I've been thinking about you bc we started our Tamoxifen together. I haven't noticed se's. How about you? Also thinking about you living close to the Jersey shore and the storm, Sandy. Give us a heads up asap. Hugs, Linda

    Atty girl, how are you?
    Atty girl, how are you? It's been awhile since you posted.


    Hugs, Debby
  • Attygirl
    Attygirl Member Posts: 121
    Haven't posted in a while...
    For a few reasons...found myself feeling a deep sadness after Nancy died (she was so special here); overdue for and worried about my 6 months mammo ; and we lost electricity for 6 days after Superstorm Sandy devastated my area. My home and family came out unscathed -no damage and no flooding- thanks be to God. But so many others in my area are suffering tremendous losses. Those things, coupled with the arduous application process for high school for my daughter, and the presidential election craziness, has my head spinning.

    That itch I was complaining about? Still bothering me!

    I filled the prescription for the Atarex but got discouraged when my rad onc and med onc were initially reluctant to say that it was ok to take it with Tamoxifen. A simple question that took days to resolve. Finally my med onc's office called and said it was fine, after I left a very frustrated voicemail message. The whole back and forth was ridiculous. I have yet to take the damn pill. I just stopped caring about the stupid itch. So many other things on my mind.

    Tamoxifen side effects? Thanks for asking. I started out having some intense muscle, joint aches and pains, but those have subsided dramatically. I am still having some intense hot flashes though! Otherwise, it's been ok. I've only forgotten to take it 3 times since 9/17! Lol

    I am so grateful that I can come back to this space and ya'll are still here, caring. What a blessing.
  • Attygirl
    Attygirl Member Posts: 121
    lintx said:

    Atty girl
    I've been thinking about you bc we started our Tamoxifen together. I haven't noticed se's. How about you? Also thinking about you living close to the Jersey shore and the storm, Sandy. Give us a heads up asap. Hugs, Linda

    Thank you so much Linda!
    Sounds like you are well! See my update...
    X0
  • Attygirl
    Attygirl Member Posts: 121
    DebbyM said:

    Atty girl, how are you?
    Atty girl, how are you? It's been awhile since you posted.


    Hugs, Debby

    Hey Debby
    Thanks for asking...and noticing! Hope you are well! See my update...
    X0