glioblastoma level 4 brain tumor survivors

Jaxees said:

survivors-
I am looking for survivors also. So far auto litt seems like the most cutting edge technology that I ahve found, otherwise it's natural ways, like detoxing and cleansing. So sorry... I do hope that you find survivor stories. I know there was some link to a guy name jerry going around.

Check on line for ways to help them by looking into juicing for cancer cures etc... Good luck.

Brain Cancer & Wheatgrass
By
Brain Cancer & Wheatgrass
By an eHow Contributor

Wheatgrass often has the unfortunate association with health food nuts. But disregarding the health benefits of wheatgrass is shortsighted, since studies have shown time and again that wheatgrass plays an enormous role in enhancing one's health and well-being. Wheatgrass has been known to slow the advances of all types of cancer, including brain cancer. There are a number of reasons for this. Wheatgrass contains a wide variety of properties that have been known to fight and kill all types of cancer cells.

Read more: Brain Cancer & Wheatgrass | eHow.com http://www.ehow.com/about_5057457_brain-cancer-wheatgrass.html#ixzz26HXZit00











http://www.ehow.com/facts_5938480_glioblastoma-multiforme-stage-prognosis.html

Treatment

Doctors consider chemotherapy only marginally effective, although new treatments are developed all the time. Radiation after surgery appears to extend survival a few months, says Cancer Monthly.

Factors

Better outcomes are possible if surgery successfully removed most or all of the tumor. Age is also a factor, says Merck.com, as patients under 45 are more likely to survive.

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Survival

Glioblastoma generally has a very poor prognosis, with the average patient surviving just one year after diagnosis, according to the American Society of Clinical Oncology (ASCO).

Potential

While the diagnosis of glioblastoma multiforme is dismal, some patients do survive three or more years, says the ASCO, with research and newer methods of treatment providing hope for longer survival rates.

Newer Therapies

Due to the poor prognosis, patients should consider newer, investigational therapies when possible, suggests Merck Manuals, such as stereotactic radiosurgery, gene or immune therapy and new chemotherapy drugs.

Read more: Glioblastoma Multiforme Stage 4 Prognosis | eHow.com http://www.ehow.com/facts_5938480_glioblastoma-multiforme-stage-prognosis.html#ixzz26HXIHjEy



Read more: Glioblastoma Multiforme Stage 4 Prognosis | eHow.com http://www.ehow.com/facts_5938480_glioblastoma-multiforme-stage-prognosis.html#ixzz26HX1CZ23

helen svensson said:

I dont know if i am writing
I dont know if i am writing right.But my little brother is 26.the doctors told us this yesterday.were is the best doctors?we are from sweden

What I have found
We have not used this doctor, but he looks very knowledgable: John Hopkins, Dr. Friedman. If I had to have further treatment for my daughter, I would use Dr. Friedman. My daughter was only 17 years old when she was diagnosed so we used a pediatric doctor. She had excellent care. What I do is look at the blog for her type of cancer and she was treatments and hospitals that people are getting. The most important thing for you to do right now is to pray and read your bible. God Bless you on this journey.
Love, Edna

Jaxees said:

survivors-
I am looking for survivors also. So far auto litt seems like the most cutting edge technology that I ahve found, otherwise it's natural ways, like detoxing and cleansing. So sorry... I do hope that you find survivor stories. I know there was some link to a guy name jerry going around.

Check on line for ways to help them by looking into juicing for cancer cures etc... Good luck.

autoLITT for GBM grade 4
Hi everyone. I was doing some research for my brother who was diagnosed with GBM grade 4. He was given 3-6 months to live. He was told surgery was too dangerous and chemo/radiation would only prolong his life by a few months if successful. My brother has opted to have no treatment and enjoy what he has left. I am having a hard time just "letting this go" without a fight but I know he is married (he is 58)and I should really butt out but...Anyway, does anyone know anything about autoLITT or thermal therapy? I know Cleveland Clinic and a hospital in St. Louis offer this but are there any others? Anyone know the success rate of this procedure and if it works on GBM type 4? I am trying to talk him into contacting Cleveland Clinic just to see if there are any other options. He has faith in his neurologist and feels like if he said there is no hope then there is no hope. I know there are many well-meaning but ill-informed doctors out there and just want to be sure all areas have been explored. Since most of you are going through this should I just butt out?

By the way, I have read many of your stories and I really pray for all of you. You are a true inspiration.

amsan1724 said:

GBM Survivors
Jerry Kline was diagnosed almost 9 years ago. He is doing incredibly well. Go to jerrykline.com to read his story. He also wrote a book "An Unremarkable Man". He is an inspiration and a miracle. Best of luck to you. I am so very sorry to hear about your son-in-law. God bless you all.

Glioblastoma stage 4
Thank you for the encouraging words. I had 90-98% of my brain tumor removed. I am also starting radiation and chemo and personally I feel that since a lot of my tumor was removed, my chances for living are better than those who could not have surgery. My oncologist said my prognosis was very good, that this was treatable, that very little of the tumor was left and that I can do very well and that my surgery was very good. These are his exact words.

My girlfriend works with a woman who had the exact same thing done over 5 years ago. So I am going to think and BELIEVE that I have quite some time left to live!

I will go to Jerry Kline's website...thank you!

Don't listen to them
Their are options out there! I had a GBM and opted for a clinical trial at Duke university. My first docs told me I would be dead by January, it's now October and I'm back to work, living a normal life and tumor free!! 20 months and counting.

Scottgri said:

Don't listen to them
Their are options out there! I had a GBM and opted for a clinical trial at Duke university. My first docs told me I would be dead by January, it's now October and I'm back to work, living a normal life and tumor free!! 20 months and counting.

GMB
May I ask you a question? Did you have your tumor removed or was that not an option?
Like I said earlier, my surgeon told me and showed me pictures...he removed 95% of my tumor. So I am praying that with the chemo and radiation the little bit of 5% will be killed and kicked out!

My oncologist told me (actually my sister-in-law wrote down his exact words) that my prognosis is very good, my surgery was good and that there was very little left of my tumor.

So I believe that with 6 weeks of chemo and radiation I can beat this 100%...that's what I plan on doing. I have always been a strong woman (I'm 54 years old)... nothing is impossible!

I'm kicking the tumor and devil out of my body and out of my life forever! It's just me and God and that's what I plan on for the rest of my life!

God bless you and thank you....it's only been 2 weeks since my surgery and it is hard to deal with when I do not know of anybody else who has had to deal with it. Thank you so much for just letting me talk!

beanor1 said:

GMB
May I ask you a question? Did you have your tumor removed or was that not an option?
Like I said earlier, my surgeon told me and showed me pictures...he removed 95% of my tumor. So I am praying that with the chemo and radiation the little bit of 5% will be killed and kicked out!

My oncologist told me (actually my sister-in-law wrote down his exact words) that my prognosis is very good, my surgery was good and that there was very little left of my tumor.

So I believe that with 6 weeks of chemo and radiation I can beat this 100%...that's what I plan on doing. I have always been a strong woman (I'm 54 years old)... nothing is impossible!

I'm kicking the tumor and devil out of my body and out of my life forever! It's just me and God and that's what I plan on for the rest of my life!

God bless you and thank you....it's only been 2 weeks since my surgery and it is hard to deal with when I do not know of anybody else who has had to deal with it. Thank you so much for just letting me talk!

Stay Strong!
A close relative of mine was dx with GBM in September 2012. Temporal lobe tumor slightly smaller than a dime extending just into the cerebral cortex. They were able to remove all visible tumor. She does have problems with speech and comprehension when she is tired or stressed - which is to be expected considering tumor site. Recently, she has started chemo and radiation which will last for 6 weeks. So far, tolerating both very well except for some fatigue which has started in the second week of radiation. The thing that has given the most problem postop has been side effects of Decadron - insomnia, restlessness,hallucinations etc.

Of course, we have been given the stats. However, God is in control. We are believing God for complete healing and restoration!

Randy1958 said:

Hi bean
You sound a lot like me ! I'm also 54, a non-smoker, non-drinker, non-user of controlled substances . . . I don't even drink coffee. Some people say I never have any fun.

I was diagnosed with GBM IV back in February. They successfully removed the tumor (about the size of a golf ball), then told me my life span would be measured in single digits. I had proton radiation for 33 days and initially Temodar (140 mg) for about the same length of time, then had a break for about a month, then started up again at 300; this went on through June, July and August. September and October were 400 mg. November is the same (right now I'm the middle of the five-day cycle). I finish out this month and then my condition will be monitored by MRIs every few months, unless something happens, always a possibility.

Don't you just love amazing the surgeons? I was out of bed and walking around the day after surgery. I had the surgery February 28th and went home Friday March 2nd. I've had MRIs since beginning treatment, one in late June, the next in late September. The first was good, the second one even better. In docspeak, the second disc revealed "no evidence of recurrence or residual neoplasm". The doctors went from telling me "when it comes back", to "if it comes back", which I find to be a major improvement. I can even go back to work, but I'm going to wait until I get my strength back . . . 400 mg chemo is rough.

I love your can-do attitude We are in it to win it!

inspired
My husband was just diagnosed,10/20/12 i was feeling very down thank u for your words,god bless u & your loves.
Bell

beanor1 said:

Treatment
Hi! I had 95% of my tumor removed from the left side of my head on 10/17/12. I started radiation and chemo this past Monday, 11/12/12. Just completed my 1st week of 6 weeks. So far I am tolerating everything just great. The day after my surgery I was able to talk and remember things that I had forgotten for quite a while. The reason I went to the emergency room was because I had headaches all the time. My surgeon is the best doctor I know of! I thank God everyday that he was able to remove 95%. My surgeon informed me that the majority of people with brain tumors only have 78.1% removed. My oncologist is another amazing doctor. When I saw him he spoke so positive to me that I cried. He told me that my prognosis is very good, the surgery was very good, that there is very little tumor left in my head and that this is treatable. When I talked to the radiologist he told me the worst you could hear. So I do not take what he said as the truth. My surgeon and oncologist are who I believe along with GOD!

Right now I am not taking dexamethasone (the steroid) or Keppra (a seizure medication). I do take Temodar (chemo) along with Comprazine (for nausea) and an antibiotic (which I only take that 3 days a week). I have had no side effects from them - praise God! I also pray and speak to God every minute of the day - just about. When I'm receiving my radiation treatment, I honestly can see Jesus standing beside me with His hand on my shoulder. It is up to God but for some reason He makes me feel like He is not ready for me to go to His home. I think He has a lot of work left for me to do yet! Tell your cousin to keep a positive attitude - this helps with treatment and living longer! With God, nothing is impossible!!!!!!

Amen
Thank u Jesus, God is Good ALL THE TIME.

beanor1 said:

Treatment
Hi! I had 95% of my tumor removed from the left side of my head on 10/17/12. I started radiation and chemo this past Monday, 11/12/12. Just completed my 1st week of 6 weeks. So far I am tolerating everything just great. The day after my surgery I was able to talk and remember things that I had forgotten for quite a while. The reason I went to the emergency room was because I had headaches all the time. My surgeon is the best doctor I know of! I thank God everyday that he was able to remove 95%. My surgeon informed me that the majority of people with brain tumors only have 78.1% removed. My oncologist is another amazing doctor. When I saw him he spoke so positive to me that I cried. He told me that my prognosis is very good, the surgery was very good, that there is very little tumor left in my head and that this is treatable. When I talked to the radiologist he told me the worst you could hear. So I do not take what he said as the truth. My surgeon and oncologist are who I believe along with GOD!

Right now I am not taking dexamethasone (the steroid) or Keppra (a seizure medication). I do take Temodar (chemo) along with Comprazine (for nausea) and an antibiotic (which I only take that 3 days a week). I have had no side effects from them - praise God! I also pray and speak to God every minute of the day - just about. When I'm receiving my radiation treatment, I honestly can see Jesus standing beside me with His hand on my shoulder. It is up to God but for some reason He makes me feel like He is not ready for me to go to His home. I think He has a lot of work left for me to do yet! Tell your cousin to keep a positive attitude - this helps with treatment and living longer! With God, nothing is impossible!!!!!!

Amen
Thank u Jesus, God is Good ALL THE TIME.