Newbie with Concerns UPDATE-1?

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  • oneshot1kill2344
    oneshot1kill2344 Member Posts: 11
    #22
    NANCYL1 said:

    I CAN'T IMAGINE WHAT WILL
    Thought I would tell you about my experience.

    In January 2012, I went to my internist for a general checkup, including a blood test. She found that my white blood cells were high. Gave me the name of an Oncologist at a Cancer Center nearby. Could have been an infection, but I did not waste time. Went to see the Oncologist and had a blood test, CT-SCAN, PET-SCAN, and BONE MARROW test. Result: A Mild B-Cell Lymphoma. I am having a series of Infusions every six months: RITUXIN is the chemo. It is not a heavy-duty chemo. What I have can be controlled, but not cured. I found this early which is in my favor. So don't waste any time.

    Good Luck to you and let us all know.

    I will Nancy. Thanks. Keep
    I will Nancy. Thanks. Keep you updated. Know more in the next day or two.
  • miss maggie
    miss maggie Member Posts: 929
    #23
    Max Former Hodgkins Stage 3 said:

    Non-Oncologists
    Oneshot,

    My impression of the knowledge level of cancer among non-oncologists is not good. I have known a lot of people with what overtly seemed like cancer who were treated for a long time for something else, losing valuable time. One buddy was bleeding in urine for many months while he was treated by a urologist for what he thought was a non-cancerous disease. Sadly, that friend is now dead. My brother's mother-in-law was treated for about a year for pancretitus before the doc realized she had pancreatic cancer. She died five days later.

    It pays in dealing with cancer to get informed and drive your own situation. Very often there are reasonable treatment options for any given cancer. Demand a full explanation of all alternatives, if you are indeed diagnosed. Make the doctor explain why one path is better than another. You will see on these boards that frequently doctors give patients a choice in chemo drug combinations, whether to have radiation or not, and other such choices.

    Others patients just sleep at the wheel.

    max

    Information
    Dear Max,

    You post gives me the opportunity to say hello again. I was away for awhile with moving from one house to another.

    As always, all your emails keeps us on our toes. If we don't advocate for ourselves, who will? I appreciate very, very much your scare tactics. We need examples to see what and will happen if we keep silent.

    Stay well and happy. And thank you. Hugs and love from Maggie
  • oneshot1kill2344
    oneshot1kill2344 Member Posts: 11
    #24
    UPDATE 1
    Just did the ultra sound and they didn't find any abnormal lymph nodes. Great news! However, they wouldn't tell me what the lumps were and only referred me back to my GP. Round and round we go! At any rate. I will still be seeing an Oncologist for a second opinion just to be sure. The mystery continues so maybe I need to find Scooby Doo and the Gang to help me solve it LOL. I'll post up another update when I get the blood work back and talk to my GP. Thanks all!
  • Unknown
    Unknown
    #25
    oneshot1kill2344 said:

    UPDATE 1
    Just did the ultra sound and they didn't find any abnormal lymph nodes. Great news! However, they wouldn't tell me what the lumps were and only referred me back to my GP. Round and round we go! At any rate. I will still be seeing an Oncologist for a second opinion just to be sure. The mystery continues so maybe I need to find Scooby Doo and the Gang to help me solve it LOL. I'll post up another update when I get the blood work back and talk to my GP. Thanks all!

    Welcome ......
    to the merry go round! Great news. Still a good idea to see the onc just to be sure.
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #26
    miss maggie said:

    Information
    Dear Max,

    You post gives me the opportunity to say hello again. I was away for awhile with moving from one house to another.

    As always, all your emails keeps us on our toes. If we don't advocate for ourselves, who will? I appreciate very, very much your scare tactics. We need examples to see what and will happen if we keep silent.

    Stay well and happy. And thank you. Hugs and love from Maggie

    Hello to you as Well !

    Maggie,

    Delightful as always to hear from you. My brother-in-law works at the big IBM facility up the Hudson at New Hamburg, NY, just past West Point, and I spent a week with him years ago. I have been to "the City" many times as well. I find the Upper East Side the most attractive, and a lot quieter than Lower Manhattan. I also lived for about 18 months in Groton, Connecticut at sub base during my Navy years, so I know your neck of the woods relatively well. I moved around Thanksgiving also, and we are still not totally unpacked !

    My basic attitude toward cancer is one of hope. I also give thanks for my remission. I have lost so many people who were close to me with the disease, and have some dying now, but I encourage them in hope, and fighting the good fight. It is never my intentin to frighten anyone. Stylistics differ, I suppose. I just share what I know, hopefully in a thoughtful and hopeful manner. I very nearly did not go to the doctor when I was hurting from a node pressing on my heart, and if I had not, I would be gone now for certain. What I do encourage to anyone wanting to listen is active engagement in your own fight for full health and wellness.

    I feel your Hug, and reply with my own to you ! Bless you and your new place...

    max
  • Unknown
    Unknown
    #27
    oneshot1kill2344 said:

    UPDATE 1
    Just did the ultra sound and they didn't find any abnormal lymph nodes. Great news! However, they wouldn't tell me what the lumps were and only referred me back to my GP. Round and round we go! At any rate. I will still be seeing an Oncologist for a second opinion just to be sure. The mystery continues so maybe I need to find Scooby Doo and the Gang to help me solve it LOL. I'll post up another update when I get the blood work back and talk to my GP. Thanks all!

    Any Update?
    Let us know how you are.

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