ROLL CALL, JANUARY 2011

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Comments

  • pattyanny
    pattyanny Member Posts: 544
    Still here!
    Diagnosed 6/2009 Lymph nodes in neck stage IV Unknown primary.March scan - NED. Next scan 8/2011. Watching a spot in the back of the throat. Enrolled 11/09. Gaining weight, and getting stronger.
  • bizshop
    bizshop Member Posts: 1
    Almost done with treatment
    Stage IV tongue/lymph nodes both sides. 8 more radiation and 1 more chemo to go, then I hope to set a longevity record in the roll calls! Live in Port Angeles, WA
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    bizshop said:

    Almost done with treatment
    Stage IV tongue/lymph nodes both sides. 8 more radiation and 1 more chemo to go, then I hope to set a longevity record in the roll calls! Live in Port Angeles, WA

    Would like to be added
    Tim dx October 2011 / Stage III base of tongue with one lymph node HPV+
    No surgery or traditional chemo, just rads and Eributx
    Joined the group (I think, November 2011)
    Post TX PET showed looking good with a few hot spots in H&N
    6 Month post tx scan showed NED
    All follow up scopes and scans looking good :)

    Tim / McCall, Idaho
  • Fire34
    Fire34 Member Posts: 365
    Checking back in also
    coming up on three years post, still in Illinois. Unknown primary July of 2009 finished treatment 11/27/09 stage 4a hpv+ Wishes & Prayers for those stil going thru treatment
    Dave
  • Dazey
    Dazey Member Posts: 91
    Fire34 said:

    Checking back in also
    coming up on three years post, still in Illinois. Unknown primary July of 2009 finished treatment 11/27/09 stage 4a hpv+ Wishes & Prayers for those stil going thru treatment
    Dave

    Three year mark
    Checking in - finished tx October 26, 2009 - most recent cat scan and scoping are still showing all clear. Only positive thoughts and prayers are sent each day to all still taking this journey. Dazey
  • staceya
    staceya Member Posts: 720
    Dazey said:

    Three year mark
    Checking in - finished tx October 26, 2009 - most recent cat scan and scoping are still showing all clear. Only positive thoughts and prayers are sent each day to all still taking this journey. Dazey

    2012 Check in-Thanks for doing this!!
    Staceya, Whitefish MT (orig from Brooklyn NY)
    DX 12/2009 NPC
    Enrolled February 2, 2010.
    Stage Tumor:1 Node:0
    Rads 35
    Chemo NO
    Amifostine Yes!

    Current Status
    MRI/Scope June 2012-NED
    Saliva Back to normal
    Weight Back to watching weight.
    Teeth Back to normal
    Hair Returned, remains problematic, oh wait, it was always problematic.

    Grateful for the above and all of the support here.
    STacey
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Roll Call 2012...
    You know that you guys/ladies are following a newbies first post in reply to this old 2011 outdated thread....

    Here is a link to the updated and most recent 2012 Roll Call...;


    Roll Call 2012 - 16JAN2012

    John
  • Dazey
    Dazey Member Posts: 91
    Skiffin16 said:

    Roll Call 2012...
    You know that you guys/ladies are following a newbies first post in reply to this old 2011 outdated thread....

    Here is a link to the updated and most recent 2012 Roll Call...;


    Roll Call 2012 - 16JAN2012

    John

    roll call
    Nah - didn't realize - but still doing well no matter which roll call! Thanks for the updated info....will post on that one.
  • cherylwb
    cherylwb Member Posts: 3
    arjenkins said:

    would like to add to roll call
    Screen name. Arjenkins
    My dad was diagnosed in November 2010 with stage IV -A base if tongue cancer with lymph mode involvement on both sides.
    He is in his 6th week of chemotherapy with cisplatin and almost through with his 35 radiation treatments.

    This site has been a God send.

    how is your Dad?
    Hi My husband (age 72) is newly dxd with same cancer as your Dad and same treatment it looks like; I am wondering how he has gotten along? He is throughout with his treatment now....but having a hard time getting any ooph back and still all the saliva and infection issues. Blessings, Cheryl
  • cherylwb
    cherylwb Member Posts: 3
    arjenkins said:

    would like to add to roll call
    Screen name. Arjenkins
    My dad was diagnosed in November 2010 with stage IV -A base if tongue cancer with lymph mode involvement on both sides.
    He is in his 6th week of chemotherapy with cisplatin and almost through with his 35 radiation treatments.

    This site has been a God send.

    how is your Dad?
    Hi My husband (age 72) is newly dxd with same cancer as your Dad and same treatment it looks like; I am wondering how he has gotten along? He is throughout with his treatment now....but having a hard time getting any ooph back and still all the saliva and infection issues. Blessings, Cheryl
  • cherylwb
    cherylwb Member Posts: 3
    arjenkins said:

    would like to add to roll call
    Screen name. Arjenkins
    My dad was diagnosed in November 2010 with stage IV -A base if tongue cancer with lymph mode involvement on both sides.
    He is in his 6th week of chemotherapy with cisplatin and almost through with his 35 radiation treatments.

    This site has been a God send.

    how is your Dad?
    Hi My husband (age 72) is newly dxd with same cancer as your Dad and same treatment it looks like; I am wondering how he has gotten along? He is throughout with his treatment now....but having a hard time getting any ooph back and still all the saliva and infection issues. Blessings, Cheryl