Sirod

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  • tufi000
    tufi000 Member Posts: 745 Member
    #22
    VickiSam said:

    AMEN ...
    We are family -- and I VALUE each and every one of you Sisters and Brothers in
    PINK. I also value your insight, voice, right to vent, and right to present
    research, offer advice, and share in your joy as well as, your sorrow.

    I come back after each and every passing of a beloved Sister -- so I can play
    it forward. My heart aches, my body and mind become numb at the thought that
    here we are in the 21st Century - and there is still NO cure for Cancer. I have
    HOPE that one day, there will be a cure.

    When I think of taking a break from our board, I can't .. I feel empty, and selfish.
    The love, and support that was provided to me during my breast cancer journey - was unbelievable. Some of the Research, and Stats provided on this board -- scared me, but made me more cognitive of what the beast is all about -- as well as what options were
    available to me.

    Each and every Warrior has brought light, and joy to my soul.

    Thank you all so much.

    Vicki Sam

    Good News Doris!!!
    Local news station, for pink month, selling crap where ALL donations go to Breast Cancer RESEARCH!!!!!! Specifically, the group collects only for research!!! YAY!!!!
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #23
    Many view points
    There will always be differing viewpoints. Some express themselves beter verbally (not me- I am open mouth and insert foot), while others are better with writing how they feel. So occasionally we unwittingly rub each other the wrong way. But we need to think about whether we are throwing the baby out with the bath water sometimes. The fact that many have called for Doris to come back is a good sign. It means she is valued as well she should be. Nuff said (by me anyway).
  • SIROD
    SIROD Member Posts: 2,194 Member
    #24
    ManWithaMission said:

    Free Speech
    Let me state that I am very upset that someone here would "flag" anyone eles's post here as offensive because they don't agree with your own feelings or ideas. tufi000/Sherry spoke up for SIROD/Doris comments in another post and now SHE is being "FLAGED"? Shame on you!

    I do agree with some that Doris could have started her own discussion post to get her point across,but I also belive that some came down waayyy too hard on her for her position for Stage IV metastic breast cancer and it's organizations. Don't kill the messenger. She was also right about Breast Cancer foundations that send no money to research. We have a whole month of "awearness",now lets get a whole month of money for that research!

    Doris and Sherry, I'm so glad you are here to keep this ship on an "even keal" with your points of view. I once got "dumped on" by this board for my point of view on a subject. Their was so much "hatered' coming at me I thought I was in mortal danger here. Needless to say that I did not post for the next couple of years after that. I'm glad you came back sooner,Doris.

    Let's try to stop the "petty' bickering and start pulling together helping the Pinks of any stage stand up and fight this beast. Lets have some fun doing it,too!

    A Pink Brother
    Robert

    Men with BC
    Dear Robert,

    First I want to apologize again for stealing your post with the valuable remarks. I believe that your a Man with a Mission very much. Few people even realize that men do have breast cancer. I hope you will repost again and set that ball rolling. I sent METAvivor an email asking that they begin to include men on their page and in their store (items to buy - hmmm a bigger market, like Komen taking Ads on women with Stage IV now).

    The other night I attended a local breast cancer seminar since I was at the hospital anyway. I was happy to hear the medical oncologist opening remarks that included "men have breast cancer too". I was prepared to say it if they didn't but, he did. Both men and women did attend and most didn't say anything. I actually wondered why I was going as I figured most of it would not be new information. I was right to a point, most of it wasn't. This medical oncologist talked about a seminar recently attended about the mouse who will have our own tumor embedded in them to see what drug will work. I was really taken with his enthusiasm and want to learn more about it. I live near a large genetic research laboratory. In the summer they often have seminars open to the public. I use to go when it had something to do with bc but do admit a lot of it was over my head.

    There are people who are trying to spread the word about men with BC on Facebook. I found a few online a while back. Time for men to join the women in this awful disease we both have to conquer.

    Best to you,

    Doris
  • SIROD
    SIROD Member Posts: 2,194 Member
    #25
    laughs_a_lot said:

    Many view points
    There will always be differing viewpoints. Some express themselves beter verbally (not me- I am open mouth and insert foot), while others are better with writing how they feel. So occasionally we unwittingly rub each other the wrong way. But we need to think about whether we are throwing the baby out with the bath water sometimes. The fact that many have called for Doris to come back is a good sign. It means she is valued as well she should be. Nuff said (by me anyway).

    To Laughs_a-Lot
    You do well with words. I always enjoy reading your posts. I don't know if it's the avatar you have but they are always good.

    All Discussion Boards and Forums like these have occasional tiffs. I usally am not the subject matter and I have been on them since 1997.

    Best,

    Doris
  • SIROD
    SIROD Member Posts: 2,194 Member
    #26
    SIROD said:

    Thank You
    Thank you Sherry for your kindness.

    For the person who flagged this post.

    I don't knock the good work that Nancy Brinker has done for breast cancer. She did take it out of the closet and tied a big pink bow on it. She gave awareness to the disease that was only whispered about in the back kitchen with only female relatives. She made women and men feel good about their disease instead of hiding it as though it was something to be ashamed of having and called them appropriately "Survivors". Her foundation given a lot back to the community in forms of paying for tests and mammograms. I applaud her.

    However, the Komen's Foundation gives more money to awareness than research. Awareness we have, and it won't give us a cure. Research on the only stage that kills is what is needed now. Instead of flagging, why not join the effort for the funds to go towards stage IV research.

    Doris

    Another Gripe - One Time Users with Phony ID's
    I don't appreciate people who sign up as someone else and post. On that post of Robert's a person name "Shack" who signed on for one night, "does not accept private messages" and only posted that one time. Is she real? A coward who won't post her name? Easy enough to sign on with another name, email address and etc. and make an accusation or harass.

    Last February when Ilona aka Muschie posted on her questions about "Herceptin", two impostors came on, one named "meysembourgh265" and the other named "bonitowely282". They joined that day, only posted once a piece and never to be heard from again. If you wanted to send them an email "they also don't accept private messages"

    You can read it here: http://csn.cancer.org/node/235270

    Ilona felt harassed with how the discussion was being manipulated for information other than herceptin. Some one did post with good information afterwards. I had private message her initially mentioning that the Her2 discussion board more than likely would answer her question.

    I don't believe people who have never posted would suddenly decide to join only in a post which members were griping. Then never returning with their own questions or opinions ever again. To me as with the flagging, someone is a coward. Bold only hiding behind a shield of anonymity. Time to come out or to stop.

    Has anyone else notice this besides me?

    Doris
  • SIROD
    SIROD Member Posts: 2,194 Member
    #27
    camul said:

    Doris, I am glad you are staying on. I was unaware
    of the above mentioned posts, but as a stage IV bc, it is very disheartening knowing that only 2% of all monies collected go towards advanced bc research which is amazing when we have over 70,000 new stage IV every year adding to the ranks. 30% of those diagnosed with bc will advance to stage IV, and we lose approximately 41,000 men and women annually. This has been an issue with everything pink for me. We have the awareness now lets do more research!!

    As a stage IV, I am a METAvivor, and for anyone wanting more info you can google METAvivor. The goal is to try and get 30% of the funds to go to advanced research as 30% is the number of those diagnosed with bc that will end up stage IV, and there is no cure YET for stage IV, hoever if we could get more adv research funding maybe we could find a cure in some of our lifetimes.

    METAvivor
    Carol,

    I believe METAvivor is the best "hope" we have. Komen has more money. If only they could refocus on research instead of giving all the other areas so much of their money.

    How are you doing on Afinitor?

    Thinking positive thoughts for you,

    Doris
  • SIROD
    SIROD Member Posts: 2,194 Member
    #28
    tufi000 said:

    Good News Doris!!!
    Local news station, for pink month, selling crap where ALL donations go to Breast Cancer RESEARCH!!!!!! Specifically, the group collects only for research!!! YAY!!!!

    Kind of Discouraging...
    Sherry,

    One of the student's had a pink bracelet with "I love boobies". I said, "nice bracelet". Her reply was my boyfriend gave it to me with a big smile on her face. We are not talking breast cancer here, are we? I didn't say a word. I have no doubt that her boyfriend loves her boobies. The Keep A Breast Foundation responsible for the bracelet states on their web page

    "We want to remove the shame associated with breasts and breast health, and this message represents our positive approach to breast cancer dialogue. The program resonates with young people, and encourages them to be open and active about breast cancer prevention."

    They join with your local news station. Put an iconic pink ribbon on any package and make everyone feel as though they are helping in the research for a cure. I believe the boyfriend who loves the boobies, now he is telling the truth.

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