Some Hope...

BarefootBob
BarefootBob Member Posts: 72
in Head and Neck Cancer #1
Hi all!
Yesterday I received a message from the other Oncologist that we were planing on working with. He called to say that they found a positive match with the cell structure of my original tumor. Also they have a drug on trial right now that has been showing great results. Anyway the trial drug is called GDC-0980. These were his exact words:

"There is some potentially good news. The testing for this particular mutation was indeed found. This means that we have a drug (GDC-0980, a PI3K inhibitor), as part of a clinical trial that may have a good chance of showing activity against your tumor."

I go up to University of Chicago on Tuesday to find out more but with the possibility of a drug that may just keep me around for a little while longer is some good news. Hopefully we see some activity in growth and multiplying as well.

I know that there is still no cure b/c of my metastasis but its a sliver of hope - AND i will be off the chemo for awhile as well, so it can be a future option down the road.

thanks all,

Bob

Comments

  • carolinagirl67
    carolinagirl67 Member Posts: 153
    #2
    hope is a good thing
    Keep smiling, You never know!!
  • ditto1
    ditto1 Member Posts: 660
    #3
    HOPE indeed
    so good to hear you feeling more upbeat and for good reason, we sometimes just need something to show us some hope. Sounds like you have a direction to go and a doctor that has a plan. So keep up the failth Bob it will pay off.
  • meaganb
    meaganb Member Posts: 244 Member
    #4
    So good to hear Bob! Prayers
    So good to hear Bob! Prayers for you & your family!
  • hwt
    hwt Member Posts: 2,328 Member
    #5
    meaganb said:

    So good to hear Bob! Prayers
    So good to hear Bob! Prayers for you & your family!

    That is good
    Happy to hear that there is a dx and plan. Sounds very promising :-)
  • phrannie51
    phrannie51 Member Posts: 4,716
    #6
    This is great news, Bob....
    What would we do without hope, huh? I'm sending massive prayers and positive thoughts your way...

    p
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #7
    Hoping for the Cure
    Bob, stranger things have happened, so there is always a chance for a positive and long outcome for you.

    I haven't read a lot about the GDC-0980. The few that I have suggests to keep an eye on your sugar levels as the drug can cause high levels as a side effect.

    Anyways, keep us posted buddy...

    JG
  • Pumakitty
    Pumakitty Member Posts: 652
    #8
    Happy to hear
    Bob,

    I am happy to hear about this new development. Please continue to stay positive and fight. We are all behind you.

    Katt
  • katenorwood
    katenorwood Member Posts: 1,912
    #9
    Faith in the future
    Bob,
    Terrific news ! I have been watching advances with trials closely for the past fews months with AMAZING results !! You and your family will continue to be on my nightly prayer list ! Safe trip, and believe in you ! We all do. Many warm thoughts and positives sent your way ! Katie
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #10
    katenorwood said:

    Faith in the future
    Bob,
    Terrific news ! I have been watching advances with trials closely for the past fews months with AMAZING results !! You and your family will continue to be on my nightly prayer list ! Safe trip, and believe in you ! We all do. Many warm thoughts and positives sent your way ! Katie

    Very Happy.
    I'm pleased for you Bob, it is nice to read your post which
    shows your delight at this new trail. Your love of life and your
    loving family will keep you around for a long time.
    Have faith my friend.

    God bless
    Tonsil dad,

    Dan.
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #11
    good
    Hi Bob,

    So glad to here such a very promising development. Since I started this journey, you and the other H&N warriors (friends) are in my mind always. Today, you’ve filled my hope jar to the rim

    Best,

    Matt
  • KareGiver
    KareGiver Member Posts: 301 Member
    #12
    CivilMatt said:

    good
    Hi Bob,

    So glad to here such a very promising development. Since I started this journey, you and the other H&N warriors (friends) are in my mind always. Today, you’ve filled my hope jar to the rim

    Best,

    Matt

    Oh Bob...
    Such great news! So very happy for you. If I may, JUST TODAY, my husband decided to switch doctors and go to University of Chicago for treatment of his mets. Reading your post gives me hope too. Thank you!
  • BarefootBob
    BarefootBob Member Posts: 72
    #13
    Skiffin16 said:

    Hoping for the Cure
    Bob, stranger things have happened, so there is always a chance for a positive and long outcome for you.

    I haven't read a lot about the GDC-0980. The few that I have suggests to keep an eye on your sugar levels as the drug can cause high levels as a side effect.

    Anyways, keep us posted buddy...

    JG

    Blood Sugar
    Blood Sugar counts seemed to skyrocket from some cases I saw the same. I will be sure to let the doctor know about this concern as well on Tuesday.

    I saw a few others and will discuss as well.

    Thanks,
    Bob
  • BarefootBob
    BarefootBob Member Posts: 72
    #14
    KareGiver said:

    Oh Bob...
    Such great news! So very happy for you. If I may, JUST TODAY, my husband decided to switch doctors and go to University of Chicago for treatment of his mets. Reading your post gives me hope too. Thank you!

    Awesome!
    This is great news as I felt very comfortable and treated very special up there. I too am hopeful that your hubs gets the same kind of care. Please keep me informed on your situation and if we are every at the hospital at the same time we can meet up. Good Luck! as always you all are in my prayers as well.

    Much Love,
    BB
  • Hondo
    Hondo Member Posts: 6,636 Member
    #15
    Hi Bob
    That is realy great news and I am praying for you my friend

    Hondo
  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #16
    Bob
    You are in my thoughts and prayers.........
    Jim
  • ToBeGolden
    ToBeGolden Member Posts: 695
    #17
    The One Thing I Can Say About Chicago!
    I was born and raised in Chicago. I have one problem with outsiders. The correct spelling for Chicago's rapid transit system is "L". One letter. It is not "El". Check the web site of the CTA (Chicago Transit Authority). There may be many El's (in other cities) but there is only one L.

    Now that everyone has got that straight, we can discuss less important things like treatment options.

    Bob: I apologize for hijacking your thread. But you must admit, I do have an important message.
  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #18
    ToBeGolden said:

    The One Thing I Can Say About Chicago!
    I was born and raised in Chicago. I have one problem with outsiders. The correct spelling for Chicago's rapid transit system is "L". One letter. It is not "El". Check the web site of the CTA (Chicago Transit Authority). There may be many El's (in other cities) but there is only one L.

    Now that everyone has got that straight, we can discuss less important things like treatment options.

    Bob: I apologize for hijacking your thread. But you must admit, I do have an important message.

    Thinking of you
    Bob,
    I will continue to have you in my prayers. Keep the positive attitude. You are an inspiration to me.
  • Grandmax4
    Grandmax4 Member Posts: 723
    #19
    Closed my eyes
    and said a prayer for you, hoping God will guide your team of Doctors to not only give you a doeable life, but to help many others through this trial.Chicago is a great City, my daughter lives just outside the city in Arlington Heights..we love it there
  • Pam M
    Pam M Member Posts: 2,196
    #20
    Wonderful News
    Still no cure - - - YET. This post gives me a good feeling. Do well.
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #21
    Pam M said:

    Wonderful News
    Still no cure - - - YET. This post gives me a good feeling. Do well.

    Great news!!!!
    Very happy for you Bob...also I'm thinking if you are off the chemo for a bit ....that should make you feel better and enjoy the wife and kids more not being sick ...I think that is correct...and then now a trial drug with some promise ...I like this!! :)

    Not to share too much and certainly hot to highlight me....but I often whisper a prayer throughout the day for you (and others on our site that come to mind)..was up huntin at 7,000 feet just 2 days ago and you crossed my mind and I whispered a prayer for you and your family Bob ..that you would get well or have the time you need on this earth with those you love and who need you...

    ....said one for Katie, Denis, Mike (luvfor lacrosse) and Roxanne, and HWT and of course those on the daily list as well... :)

    You all are family to me ...even if some of you don't like it :):)

    Tim

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