Follow Appointment at the Oncologist - scared

ptharp
ptharp Member Posts: 190
in Ovarian Cancer #1
I am crying while I type this. My appointment is tomorrow after my Hysterectomy. I will find out what stage I am at, my prognosis, and my treatment. I am sooo scared. I am feeling so much dispare.

Comments

  • mom2greatkids
    mom2greatkids Member Posts: 528
    #2
    I understand.
    This disease is SO scary. You have every right to be scared. Is someone going with you? With this disease, no one knows sure, not even doctors. There are many treatment options available that weren't even a few years ago.

    As far as being scared, I'm not sure that ever goes away. I've been battling it over a year now. Scans next week. I"m already scared and dreading going back to get the results.

    You have come to the right place for support. These ladies are wonderful.

    I'm sending you a virtual hug.

    Carla
  • ptharp
    ptharp Member Posts: 190
    #3
    mom2greatkids said:

    I understand.
    This disease is SO scary. You have every right to be scared. Is someone going with you? With this disease, no one knows sure, not even doctors. There are many treatment options available that weren't even a few years ago.

    As far as being scared, I'm not sure that ever goes away. I've been battling it over a year now. Scans next week. I"m already scared and dreading going back to get the results.

    You have come to the right place for support. These ladies are wonderful.

    I'm sending you a virtual hug.

    Carla

    Thanks. My husband is going
    Thanks. My husband is going with me. What scares me is that it has a high rate of returning. Good luck with your scans next week. I will be thinking of you.
  • ptharp
    ptharp Member Posts: 190
    #4
    mom2greatkids said:

    I understand.
    This disease is SO scary. You have every right to be scared. Is someone going with you? With this disease, no one knows sure, not even doctors. There are many treatment options available that weren't even a few years ago.

    As far as being scared, I'm not sure that ever goes away. I've been battling it over a year now. Scans next week. I"m already scared and dreading going back to get the results.

    You have come to the right place for support. These ladies are wonderful.

    I'm sending you a virtual hug.

    Carla

    Thanks. My husband is going
    Thanks. My husband is going with me. What scares me is that it has a high rate of returning. Good luck with your scans next week. I will be thinking of you.
  • mom2greatkids
    mom2greatkids Member Posts: 528
    #5
    ptharp said:

    Thanks. My husband is going
    Thanks. My husband is going with me. What scares me is that it has a high rate of returning. Good luck with your scans next week. I will be thinking of you.

    Yes. Recurrence rates are
    Yes. Recurrence rates are very high. However, some women are living a long time, off and on chemo. Please let us know what you find out.
  • wooh_girl
    wooh_girl Member Posts: 15
    #6
    Being scared is normal - how
    Being scared is normal - how could anyone not be? I usually just try to tell myself that it's out of my control and I'll handle whatever comes. Sometimes I believe it more than others. I hope all goes well at your appointment and that having a plan will help a little.
  • abrub
    abrub Member Posts: 2,174 Member
    #7
    My cancer (Appendix Cancer) has more than an 80% recurrence rate, commonly after 10-15 years. While my dr won't declare me cured (I'm currently 5 years out) he is thinking that I may well be in that 20%. (He whispers the good, magical "c" word.)

    This early in the game, if you were thinking straight, you wouldn't be normal. That "cancer" word has a way of slapping us hard upside the head, and the spinning takes weeks or months to settle down.

    Keep coming here to vent, to express those understandable fears (we've all faced them) and to be cared for be others who truly understand.

    Try to take a deep breath.

    Sending hugs.

    Alice
  • Alnik
    Alnik Member Posts: 56
    #8
    it will be ok
    I had my last chemo May 3. So now every three months i have to go for CA125 my next appoitment is nov and im already nervous Im not sure if the feeling will ever go away but i do come to this site alot and it does help me to feel better I wish i knew about it during my chemo So please if you do have questions or concerns make sure you let the ladies here know they are so sweet and so helpful Good Luck with everything !!!!!!!!!!!!!
  • Glad to be done
    Glad to be done Member Posts: 569
    #9
    Alnik said:

    it will be ok
    I had my last chemo May 3. So now every three months i have to go for CA125 my next appoitment is nov and im already nervous Im not sure if the feeling will ever go away but i do come to this site alot and it does help me to feel better I wish i knew about it during my chemo So please if you do have questions or concerns make sure you let the ladies here know they are so sweet and so helpful Good Luck with everything !!!!!!!!!!!!!

    At least you know what you
    At least you know what you are going in for. I was totally blindsided with my dx. mpMy doc told me that she got it all and I dodged a bullet. Everything looked good and normal and it hadn't spread anywhere else. Well it was found microscopically on 2 out of the 27 lymph nodes she took. Actually the 2 my right ovary sat on. So I am thimking 1 and got stage 3c. i i was lucky all other nodes, omentums, tubes, pelvic wash , cervix everythiing came back clean and biopsies of all surrounding organs she couuld get at to biopsy.

    No that when you go into that appointment this morning you are not alone. We all have your back and will be here to get you through this....

    Eileen
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #10
    Glad to be done said:

    At least you know what you
    At least you know what you are going in for. I was totally blindsided with my dx. mpMy doc told me that she got it all and I dodged a bullet. Everything looked good and normal and it hadn't spread anywhere else. Well it was found microscopically on 2 out of the 27 lymph nodes she took. Actually the 2 my right ovary sat on. So I am thimking 1 and got stage 3c. i i was lucky all other nodes, omentums, tubes, pelvic wash , cervix everythiing came back clean and biopsies of all surrounding organs she couuld get at to biopsy.

    No that when you go into that appointment this morning you are not alone. We all have your back and will be here to get you through this....

    Eileen

    Dear Ptharp
    We truly understand your fears and anxiety. There's no getting around it - cancer is very scary. At the same time, you have every reason to be hopeful about your future, no matter what your stage. My friend is a nine-year (and counting!) stage 3C ovarian cancer survivor. While she has had her share of chemo over the years, it has not stopped her from enjoying life with her friends and family. She loves to travel and has taken numerous trips over the last nine years. She's taken several trips this year alone, including a cruise to Alaska during the summer with her hubby and children. It's very difficult for me to find time to get together with her because she's constantly traveling! I myself am a stage 2b survivor who has been NED (no evidence of disease) for two years.

    Please let us know the outcome of your doctor appointment. We're here for you!

    Kelly
  • ptharp
    ptharp Member Posts: 190
    #11
    Glad to be done said:

    At least you know what you
    At least you know what you are going in for. I was totally blindsided with my dx. mpMy doc told me that she got it all and I dodged a bullet. Everything looked good and normal and it hadn't spread anywhere else. Well it was found microscopically on 2 out of the 27 lymph nodes she took. Actually the 2 my right ovary sat on. So I am thimking 1 and got stage 3c. i i was lucky all other nodes, omentums, tubes, pelvic wash , cervix everythiing came back clean and biopsies of all surrounding organs she couuld get at to biopsy.

    No that when you go into that appointment this morning you are not alone. We all have your back and will be here to get you through this....

    Eileen

    Doctors Visit
    I just got home and cryed all the way here (2 hours). I am Stage IIIc. It went into my lymthnode. One lymthnode. It is a Serous Carcinoma. They had to call a social worker to come in and talk to me I was that upset. My Chemo will start in about 3 weeks. It looks like I am choosing the Capboplatin IV every three weeks and the Taxol IV every week for 18 weeks. My other choice is taxol and cisplatin every 21 days. I would go into the hospital and have a port put in my belly. Then on the first day I would have the Taxol IV then Day 2 I would have cisplatin IP in belly and then day 8 back to the hospital and have the taxol in belly. The Doctor said that the two have similar outcomes. I asked him what he would give his wife and he really did not want to answer, but when I kept asking and asked him if he was a woman which one he would do for himself he said he would do the one that dors not involve the hospital.
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #12
    ptharp said:

    Doctors Visit
    I just got home and cryed all the way here (2 hours). I am Stage IIIc. It went into my lymthnode. One lymthnode. It is a Serous Carcinoma. They had to call a social worker to come in and talk to me I was that upset. My Chemo will start in about 3 weeks. It looks like I am choosing the Capboplatin IV every three weeks and the Taxol IV every week for 18 weeks. My other choice is taxol and cisplatin every 21 days. I would go into the hospital and have a port put in my belly. Then on the first day I would have the Taxol IV then Day 2 I would have cisplatin IP in belly and then day 8 back to the hospital and have the taxol in belly. The Doctor said that the two have similar outcomes. I asked him what he would give his wife and he really did not want to answer, but when I kept asking and asked him if he was a woman which one he would do for himself he said he would do the one that dors not involve the hospital.

    Dear Ptharp
    With all of the fear and uncertainty that comes with cancer, I'm glad you're not holding it all in and instead have had a good cry. You'll find that this journey is a roller-coaster ride of emotions - no emotion is "wrong". From what I understand, most women who are diagnosed with ovarian cancer are staged at 3 or 4, including many of the supportive women on this board. It sounds like your doctor has a good game plan in place. Try to rest up for the next three weeks and then you kick cancer's butt! You can do it!

    Take care,

    Kelly

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