started removab in hallwang.

Lovekitties said:

Questions
You mention that you are planning to stay for at least 3 months.

Have you given up the idea of having HIPEC?

Will your family be joining you?

What has occurred there that has made you consider changing your original plan of only 1 month?

Just wondering.

Marie who loves kitties

great questions marie
i am so impressed with onc 6 dr copic, that the idea of going home to get carved and diced with peritonecomy and hipec is prematue until I have exhausted advanced german care options. I have also had some pm's from friends here that have caused me to step carefully re hipec just at this point. so honestly i don't know how long I will stay. I feel i have exhausted most of the best care options conventional and alternative in sydney and germany offers moe potential.

I feel much more optomism here with these therapies, that they are untested and leading edge. its just the type of treatment i want and at least i am not taking undue risk with my own life, now i can pay a professional to take those risks. i have been impressed with the care i have recieved. of course time will tell, how this translates to survival.

my bp is finally back to normal , my bibirubin is settling down, its been up since removab 4 days ago. the acid test is i have energy again. just in time as they considered delaying the chemo emblisiation if i was not up to it.

a few factors have prompted me to consider staying longer, one is germany is the home of low dose hyperthermia. my tumour expresses the heat shock protien and is senstive to avastin. so i like the idea of doing 4 weeks at hallwangen and then 4 weeks at a cheaper specialist oncothermia clinic. then I should have an idea of how effective the regime has been.

hipec will always be their for me, when i get home.

the clinics are a place of healing, they are no place for wife and kids. i am wecked most days. I am giving my wife a break from her role in my care, i am paying for wold class care, and getting it. so she might as well have a well deseved break. she has eally get her hands full with the home and the kids. as you know how stressful the domestic issues are i am in no hury to return to the pressure cooker. I am just watching from afar to see how wife and kids cope. i can send them love and kisses. i think they are better at home and i am bette off here. it takes all my time and effort to keep these doctors on their toes.

I am the first patient here to teach them qigong based coffee enemas to lower bilirubin and get my liver enymes down so i can get tomorrows therapy. I suggested it to the oncologist here, he said ok not a bad idea. you keep the suggestions coming. now my odd ball ways are not for most patients agreed, but i tell you with confidence, i am getting the best value out of everyday in this clinic.

I about 2 months it will be school holidays, maybe then the wife and kids can come over for a 12 month german exchange or a 6 week holiday. I will let where I percieve my best chances for recovery lie.

thanks for asking and caring, things are really pretty fluid, and will be diven by the result of the therapies.

hugs,
Pete

Minnesotagirl said:

Thinking of you Pete
Hi Pete,

I haven't posted for awhile but I have been following your journey. I was so sorry to see that your cancer spread to the liver and lung. I believe you were originally diagnosed Stage 3 Rectal like me in 2010. Good vibes and blessings to you Pete on this road to a cure! I pray for you everyday on my 3-4 mile walk ~ just wanted to let you know you are in my thoughts.
Give it all you got Pete and stay well, strong and positive like you have been from the beginning of your journey.

"Minnesotagirl"

thanks minnesotagirl
i sincerely appreciate and highly value your prayers. I tell you I am giving this my all, as you know. all my spirit and my money. I have stopped my supplements and ketogenic diet for the time being.

I have to really rest and heal, my liver has to bounceback from the removab before surgical treatment of the mets can occur, so here is just to living today really well.

some interesting characters at the clinic, one lovelly man mohamed has invited me visit his house in morocco for a week between treatments. if the doctors said ok, then I would be tempted.

enjoy your walk, Its crazy I am not even allowed to walk for 10 minutes, it really elevates my biblirubin.

hugs,
Pete

janderson1964 said:

Darn it Pete. It really
Darn it Pete. It really breaks my heart to see you go through this. You are always in my prayers.

thanks for caring jeff
but smile a big smile me friend, i am alive, i am getting the treatment i think will give the best prospect of cure. not just another few months, all our journeys are unique, mine is no exception. but my journey is so much more easier with friends and support.

but pray jeff, like i am that this therapy works, that it works for me, if it works for one early stage 4, then dare we dream the dream, maybe just a few others.

i have always had faith and hope. off loading the responsibility to the doctors here and relaxing myself has been such a relief.

all my energy is devouted to rest and healing for the next few months.

if your heart breaks let it be with joy, i am glad to have an really strong reaction, it means i am likely to be a removab responder.

I have been here a week and the tests are coming back. interesting days, they have some bone marrow therapies to get my platlets and white cells up. starting those real soon.

i gave the doctor greg, my supplement list, i will see what he thinks tomorrow.

I have jumped on the scales and I think i have gained a kilogram in a week.

I am rebooked to have the lung and liver met sorted next monday. my liver numbers are all heading in the right direction, at last.

Be happy for me jeff, i really are, these guys are leading edge alternative and conventional. i am optomistic. if it works for one, well, here is hoping!

hugs,
Pete

ps i will likely get an apartment in frankfurt or munich. any of my csn friends pop in the a chat and dinner and some good scnaps.