Primitive neuro-ectodermal tumor

mary.pet
mary.pet Member Posts: 1
edited March 2014 in Brain Cancer #1
Has anyone heard of an adult having this brain tumor?

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • Unknown
    Unknown
    #3
    This comment has been removed by the Moderator
  • arkansasbrains
    arkansasbrains Member Posts: 38
    #4
    my husband is 29, and was
    my husband is 29, and was just diagnosed last month with a pnet. he's having radiation now.
  • LadyLynn
    LadyLynn Member Posts: 2
    #5
    Husband just turned 49
    Scott was diagnosed back in April, but all information has been vague. His brain biopsy was two weeks ago and we are still waiting for the pathology to confirm specifics and begin chemo or radiation therapy. I have been trying to find any information I can on adult PNET with no results until I found this. I will share with you what I find as I continue to look for additional information. Blessings to you and yours. las
  • jrcullina
    jrcullina Member Posts: 1
    #6
    LadyLynn said:

    Husband just turned 49
    Scott was diagnosed back in April, but all information has been vague. His brain biopsy was two weeks ago and we are still waiting for the pathology to confirm specifics and begin chemo or radiation therapy. I have been trying to find any information I can on adult PNET with no results until I found this. I will share with you what I find as I continue to look for additional information. Blessings to you and yours. las

    PNET
    My husband has PNET - diagnosed 6 years ago - surgery, spine and brain radiation and chemo and then 4 years cancer free. It returned over a year ago and he had surgery and then high risk stem cell rescue therapy. It has been a year and he is doing really well. I can provide you all type of info but I know depending on the amount of resection and the doctors treating you everything is a little different!
  • suemcpeek
    suemcpeek Member Posts: 1
    #7
    LadyLynn said:

    Husband just turned 49
    Scott was diagnosed back in April, but all information has been vague. His brain biopsy was two weeks ago and we are still waiting for the pathology to confirm specifics and begin chemo or radiation therapy. I have been trying to find any information I can on adult PNET with no results until I found this. I will share with you what I find as I continue to look for additional information. Blessings to you and yours. las

    My thoughts are with you and
    My thoughts are with you and your husband. Keep a positive attitude. I am a 10 year survivor after being diagnosed with a PNET tumor when I was 26 weeks pregnant with my daughter. I had chemo and surgery and I appreciate every day.

    Sue
  • jazer313
    jazer313 Member Posts: 8
    #8
    suemcpeek said:

    My thoughts are with you and
    My thoughts are with you and your husband. Keep a positive attitude. I am a 10 year survivor after being diagnosed with a PNET tumor when I was 26 weeks pregnant with my daughter. I had chemo and surgery and I appreciate every day.

    Sue

    PNET or Ewings Sarcoma pnet?
    Hi,
    I'm happy that you are doing great.

    Our journey started just two weeks ago, my son (almost 14) had a headaches for about a month, when he did not respond do headache medications his doctor ordered a head CT scan for Tuesday morning, one hour after the CT scan we were asked to go to the ER, an MRI was ordered for his head and spin, the MRI confirmed he has a tumor on the upper right side of his brain, it was not inside the brain but on the surface of the brain, the next day he had a brain surgery and the tumor was removed, the Neurosurgeon called me and told me the results of the pathology report confirmed it is a PNET, yesterday the oncologist told us it is PNET Ewings Sarcoma! my son dos not have any pain in his body, the only thing he had was the headache, it is hard for me to go a head and agree with the oncologist assessment.

    What do you think.

    Thank you,
    Emad

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