Just came from second opinion at Sloan Kettering MMT carcinomasarcoma
Here is what we found out, this may help someone else. Kelly is 66, no children, perfect weight, no other health problems and works out regularly. Her first doctor recomended carbo taxol and no radiation, after meeting today with SK he is recommending that she join a clinical trial that uses ifosfamide and paclitaxel, this is GOG-0261. He explained to us that when his lab did the pathology they got a different results, they found that it was also in an ovary and in a second lymph node, this does not change the stage or the treatment. This trial is in phase 3 and she will get the ifosfamide and paclitaxel over a 3 day period every 3 weeks for 6 times, along with this she will take Mensa to protect her bladder. No radiation, because at this stage what would you radiate?
They will do CAT scan verses PET scans and after treatment if there is recurrence he said we start all over with a new biopsy, that we won't assume it is the same thing and treat it the same way until they know what it is.
Comments
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Your Recommended TreatmentTeamkelly said:Sloan K what do MMT carcinomasarcoma survivors think?
I posted above post and hoped that I might get feedback from some of you ladies with carcinomasarcoma. What do you think about no radiation?
Dear TeamKelly,
Obviously I am no doctor but I am a two-year survivor of uterine carcinosarcoma (diagnosed two years ago at stage IB with 60 percent myometrial invasion but apparently clear ovaries and lymph nodes of the 19 they looked at.
I was treated at University of Pennysylvania's Abramson Cancer Center ("One of the Top Ten Treatment Centers in the Nation). Penn is renowned as a medical teaching center--like Jefferson, also in Philadelphia.
The treatment Penn recommended was three rounds of taxol/carboplatin, followed by 25 external pelvic radiation sessions, followed by three final rounds of taxol/carboplatin--and I finished all treatment exactly a year ago and am feeling fine. Nor was the treatment very hard on me; other than losing my hair, I had few side effects from treatment.
However, I did seek two second opinions, one from Jefferson's leading gynecologic oncologist and one from Pennsylvania Hospital's leading one. I even got a fourth opinion from Hahnemann Univeristy's radiological oncologists.
The major disagreement was what KIND of pelvic radiation I should have. No one believed I should skip pelvic radiation, by the way, since MMMT notoriously recurs in the pelvic region, and when it does, is often hard to treat. But Jefferson said I should have just vaginal brachytherapy (to minimize chances of recurrence in the vaginal vault) and that I didn't need external pelvic radiation because my pelvic lymph nodes had been clear. (Vaginal brachytherapy DOES deliver some radiation to the entire pelvic region, by the way, just not as much as external beam radiation does.) The expert at Pennyslvania Hopsital told me that recent studies (called "PORTEC") done in the Netherlands, concluded that vaginal brachytherapy has fewer side effects and does just as much good as external pelvic radiation. "It seems counterintuitive," this oncologist told me, "but the vagina has a rich network of nerves that radiate out to the entire pelvis, and that may be why brachtherapy is nearly as effective as external pelvic radiation." He concluded that in his opinion I only needed brachytherapy "but if you want to be really aggressive, you might consider both."
Originally, my own radiologial oncologist at Penn said I might need BOTH. And many women on this board with uterine papillary serous cancer received both.
But when I finished external pelvic radiaiton, my radiological oncologist surprised me by saying, "I am rethinking your treatment. The fact is that your tumor was not that close to your cervix. (I had previously been assured this by another doctor.) And I am seeing too much vaginal toxicity from brachytherapy. Moreover, external pelvic radiation was designed to help target your vaginal vault; you did get some radiation to the vault. So I don't think you'll need additional brachytherapy."
I heard that with relief although of course should I have a recurrence in the vaginal vault, I will resent that advice.
What puzzles me is why, especially at your stage, they are not recommending ANY radiation.
The only possibility I can think of is that they don't want chemo interrupted by it; maybe they want to douse you with a very aggressive chemo regiment without interruption. Radiaton takes its own toll on the body , of course, but it does allow you a period to recover from the particular assaults of chemo. And there WAS an interval of a week or two between the end of radiation and the resumption of chemo in my case.
Radiation is not said to improve our overall survival; what it does is to prevent or at least delay, recurrence to the pelvis.
On the bright side, should YOU have recurrence to the pelvis, you would be able to be treated with radiation for it because you hadn't had prior radiaiton. Those of us who have had prior pelvic radiation are not, I believe, good candidates for more radiation.
As you can surmise, how to treat our tumor is hardly a science, in part because it is so rare.
But I would at the least ask your oncologist why they are NOT recommending radiation.
Best,
Rosey0 -
no radiation recommended for meRoseyR said:Your Recommended Treatment
Dear TeamKelly,
Obviously I am no doctor but I am a two-year survivor of uterine carcinosarcoma (diagnosed two years ago at stage IB with 60 percent myometrial invasion but apparently clear ovaries and lymph nodes of the 19 they looked at.
I was treated at University of Pennysylvania's Abramson Cancer Center ("One of the Top Ten Treatment Centers in the Nation). Penn is renowned as a medical teaching center--like Jefferson, also in Philadelphia.
The treatment Penn recommended was three rounds of taxol/carboplatin, followed by 25 external pelvic radiation sessions, followed by three final rounds of taxol/carboplatin--and I finished all treatment exactly a year ago and am feeling fine. Nor was the treatment very hard on me; other than losing my hair, I had few side effects from treatment.
However, I did seek two second opinions, one from Jefferson's leading gynecologic oncologist and one from Pennsylvania Hospital's leading one. I even got a fourth opinion from Hahnemann Univeristy's radiological oncologists.
The major disagreement was what KIND of pelvic radiation I should have. No one believed I should skip pelvic radiation, by the way, since MMMT notoriously recurs in the pelvic region, and when it does, is often hard to treat. But Jefferson said I should have just vaginal brachytherapy (to minimize chances of recurrence in the vaginal vault) and that I didn't need external pelvic radiation because my pelvic lymph nodes had been clear. (Vaginal brachytherapy DOES deliver some radiation to the entire pelvic region, by the way, just not as much as external beam radiation does.) The expert at Pennyslvania Hopsital told me that recent studies (called "PORTEC") done in the Netherlands, concluded that vaginal brachytherapy has fewer side effects and does just as much good as external pelvic radiation. "It seems counterintuitive," this oncologist told me, "but the vagina has a rich network of nerves that radiate out to the entire pelvis, and that may be why brachtherapy is nearly as effective as external pelvic radiation." He concluded that in his opinion I only needed brachytherapy "but if you want to be really aggressive, you might consider both."
Originally, my own radiologial oncologist at Penn said I might need BOTH. And many women on this board with uterine papillary serous cancer received both.
But when I finished external pelvic radiaiton, my radiological oncologist surprised me by saying, "I am rethinking your treatment. The fact is that your tumor was not that close to your cervix. (I had previously been assured this by another doctor.) And I am seeing too much vaginal toxicity from brachytherapy. Moreover, external pelvic radiation was designed to help target your vaginal vault; you did get some radiation to the vault. So I don't think you'll need additional brachytherapy."
I heard that with relief although of course should I have a recurrence in the vaginal vault, I will resent that advice.
What puzzles me is why, especially at your stage, they are not recommending ANY radiation.
The only possibility I can think of is that they don't want chemo interrupted by it; maybe they want to douse you with a very aggressive chemo regiment without interruption. Radiaton takes its own toll on the body , of course, but it does allow you a period to recover from the particular assaults of chemo. And there WAS an interval of a week or two between the end of radiation and the resumption of chemo in my case.
Radiation is not said to improve our overall survival; what it does is to prevent or at least delay, recurrence to the pelvis.
On the bright side, should YOU have recurrence to the pelvis, you would be able to be treated with radiation for it because you hadn't had prior radiaiton. Those of us who have had prior pelvic radiation are not, I believe, good candidates for more radiation.
As you can surmise, how to treat our tumor is hardly a science, in part because it is so rare.
But I would at the least ask your oncologist why they are NOT recommending radiation.
Best,
Rosey
Hi Kelly,
These are dilemmas. My doc did not recommend radiation after initial treatment with carboplatin and taxol chemo. He said that most recurrences are in vaginal cuff and that he had high rate of success in curing this if it recurred there. He said that "the science didn't justify radiation for me". At the time I worried that I was undertreated but with hindsight I think it was the right decision.
However, I still had recurrence - now dealing with the second in distant lymph nodes. I had chemo and radiation for first recurrence in neck. Now just chemo for recurrence in much of lymph system.
My doctor believes that there should be a target for radiation. The mass radiation of a large area seems like shooting in the dark to me.
I think you will need to do what you feel most comfortable with. I have trusted my doctor's recommendations and not disappointed in this. He believes in giving the least invasive treatment and giving most bang for the buck.
Best wishes. Keep us posted.
Mary Ann0 -
I have been off the boardsdaisy366 said:no radiation recommended for me
Hi Kelly,
These are dilemmas. My doc did not recommend radiation after initial treatment with carboplatin and taxol chemo. He said that most recurrences are in vaginal cuff and that he had high rate of success in curing this if it recurred there. He said that "the science didn't justify radiation for me". At the time I worried that I was undertreated but with hindsight I think it was the right decision.
However, I still had recurrence - now dealing with the second in distant lymph nodes. I had chemo and radiation for first recurrence in neck. Now just chemo for recurrence in much of lymph system.
My doctor believes that there should be a target for radiation. The mass radiation of a large area seems like shooting in the dark to me.
I think you will need to do what you feel most comfortable with. I have trusted my doctor's recommendations and not disappointed in this. He believes in giving the least invasive treatment and giving most bang for the buck.
Best wishes. Keep us posted.
Mary Ann
I have been off the boards for over a year. After my surgery I did not have the recomended chemo or radiation. it has been over 2 years now & I seem to be doing fine. I sold my home of 35 years & moved to another state-also retired in Dec. So many of you are fighting so hard & my prayers are w/you. I've known & watched so many go through the treatments, then have a recurrence-you all are so brave. My husband said he would support me no matter what I decided, but he recently told me he could not have watched me go through it. Somehow I knew that. I don't know what will come next. My prayers are w/all of us that have gotten this disease. It seems to be getting more & more widespread.0 -
I have been off the boardsdaisy366 said:no radiation recommended for me
Hi Kelly,
These are dilemmas. My doc did not recommend radiation after initial treatment with carboplatin and taxol chemo. He said that most recurrences are in vaginal cuff and that he had high rate of success in curing this if it recurred there. He said that "the science didn't justify radiation for me". At the time I worried that I was undertreated but with hindsight I think it was the right decision.
However, I still had recurrence - now dealing with the second in distant lymph nodes. I had chemo and radiation for first recurrence in neck. Now just chemo for recurrence in much of lymph system.
My doctor believes that there should be a target for radiation. The mass radiation of a large area seems like shooting in the dark to me.
I think you will need to do what you feel most comfortable with. I have trusted my doctor's recommendations and not disappointed in this. He believes in giving the least invasive treatment and giving most bang for the buck.
Best wishes. Keep us posted.
Mary Ann
Sorry for the double post0 -
Teamkelly
I as well was diagnosed Jan '09 with stage 3c1, MMMT - or carcinosarcoma. Found in 1 lymph node, pelvic area, no where else, outside of uterus, and had not gotten thru the uterine wall. They did test 24 lymph nodes during my total hysterectomy.
What I can tell you, if this was the garden variety of uterine cancer, possibly treatment would be different, less aggressive. Since this is a very, very aggressive type of uterine cancer it was suggested I endure 6 rounds of carbo/taxol chemo, sandwiched between with 33 sessions of external pelvic radiation. The chemo gets any cancer which they didn't detect during the hysterectomy or pathology, plus the radiation zaps the one area they knew to have had the cancer -- pelvic node. I didn't get a second opinion as Rosey did, but felt this was my best option and my oncologist is well renowned here in St Louis.
I completed all treatments July '09 and have been NED since. I've completely revamped my eating, exercise, avoidance of toxins in toiletries/cosmetics. Have endured a few side affects today, which I feel is due to the treatments...knowing none of the docs will admit treatments caused my issues. It is what it is, so I've learned to go on with life.
My suggestion, when the cancer is found out of the uterine area, we're more prone to recurrence, then top this with our aggressive cancer. We need to hit this aggressively and know all the treatments I had, have, thusfar, kept me living my life. Not to say tomorrow things could change.
Quite interesting how another facility notes a different in your pathology report...makes me wonder. Two sides to every story as we say in life.
Go with your gut feeling, and know all of our bodies are unique, therefore, the treatments must be unique as well. If we both had the same cancer and diagnosis, plus same treatment plans, we might have completely different results in the end.
Best of luck to you and your sister-in-law....keep us abreast on your progress!!
Jan0 -
Teamkelly
My Mom tried and abandoned the ifosfamide and paclitaxel combo for one session of the planned 6 and it really knocked her down hard. She was perfectly healthy 70 year old prior to this carcinosarcoma dx in May 2012. She started with 3c and then was determined to be 4C after lymph node in her neck was positive. She has just finished 5 rounds of carbo/taxel and is awaiting CT in a couple of weeks. Whatever Kelly decides she is the driver on the bus; we passengers can lend the support and love. It is a crazy fast, aggressive cancer that needs all hands on. She will know what is right...many prayers with you and your family.0 -
Wow!!!JMoses said:Teamkelly
My Mom tried and abandoned the ifosfamide and paclitaxel combo for one session of the planned 6 and it really knocked her down hard. She was perfectly healthy 70 year old prior to this carcinosarcoma dx in May 2012. She started with 3c and then was determined to be 4C after lymph node in her neck was positive. She has just finished 5 rounds of carbo/taxel and is awaiting CT in a couple of weeks. Whatever Kelly decides she is the driver on the bus; we passengers can lend the support and love. It is a crazy fast, aggressive cancer that needs all hands on. She will know what is right...many prayers with you and your family.
You are all so brave and unique and it is interesting how each of you found your own path and are surviving, I admire you so much! Thanks for all of your feedback, we leave New York tomorrow for California and I will keep you posted. This is a wonderful place and I am thankful for all of you.0 -
Sloan KetteringTeamkelly said:Wow!!!
You are all so brave and unique and it is interesting how each of you found your own path and are surviving, I admire you so much! Thanks for all of your feedback, we leave New York tomorrow for California and I will keep you posted. This is a wonderful place and I am thankful for all of you.
I am considering a consult at Sloan kettering
Would you mind telling me how long it took you to get an appointment?
Thanks,
Beila0 -
Appt at SKbeila said:Sloan Kettering
I am considering a consult at Sloan kettering
Would you mind telling me how long it took you to get an appointment?
Thanks,
Beila
Beila it took about 3 weeks, if you go on the website and call the number for an apptmt you will get an advocate who takes all your info and helps you get to the right doctor. we wanted to see Dr. Hensley who wrote this trial is a world renowned expert, she could not see Kelly for 6 weeks and told us Kelly needed to be seen within 3 weeks so she could start treatment so we saw Dr. Hyman who is on her team and sits on an international board about this type of cancer. Our advocate told us everything we needed to do, we had to overnight all the pathology slides and surgical notes, we hand carried PET, X-RAY, colonoscopy CD's. The apptmt was $716.00 and we will get a bill for SK doing the pathology, the doctor briefly examined Kelly, told us what he came up with about her case, ask her some questions, explained CS to us, told us that her tumor was mostly sarcoma, etc... He answered all of our questions and did not rush us. We left there with a better understanding of her disease and a confidence about the decision she made, he never pushed us one way or the other and helped her make a decision.
Hope this helps, the advocate walks you thru everything in the beginning and then turns you over to the doctors office, it could not have been easier.0 -
No radiationTeamkelly said:Sloan K what do MMT carcinomasarcoma survivors think?
I posted above post and hoped that I might get feedback from some of you ladies with carcinomasarcoma. What do you think about no radiation?
I was dx in April 2011, had surgery and 6 round of carbo/taxol ending in Aug 2011. I am NED for over a year now from the last chemo. My dr said no radiation so I did not have any. I have 3C1 carcinomasarcoma. Itseems that some did have radiation and some did not but looking on the NCI website it states that radiation is a standard protocal. I cannot tell you about since I did not have it done. Good luck and I will be praying that everything turns out ok. trish0 -
Hi Teamkelly....
I was not in a clinical trial but I did receive the same chemo Ifos/Taxol that is being recommended for your sister-in-law. Ifosfamade is highly toxic to the bladder (reason for the mesna) and the side effects can be severe which is probably why most people get Carbo/taxol. I also think that is why they spread it out over three days. I received Taxol only on day one of treatment.
I had no problems with it and worked full time (other than chemo days) during the entire treatment. Do you know if she has to spend three days in the hospital during treatment? Many people do. I think that is so they can administer enough fluids to counteract the effects of the Ifosfamide. Hopefully she will be able to get her treatment as an outpatient as I did. The one thing I can recommend is that she drinks tons of water....I drank at least a gallon a day which was probably a little excessive, but it worked for me and other than severe joint pain (from the taxol) on day four and five, I had no major issues.
As for radiation, I received 25 rounds of external pelvic radiation with chemo sandwiched around the radiation. I also had 3 rounds of internal. With regards to what they are targeting, if there are no residual tumors, its my understanding they are targeting the area where the original tumor was found.
I am currently seven months out of treatment (CT scan upcoming), and basically feel pretty good. Now that your sister-in-law has a plan, I think she'll find it a relief to start treatment.
Keep us updated.
Take care
Cindy0 -
Cindy thanks for the infoCindyGSD said:Hi Teamkelly....
I was not in a clinical trial but I did receive the same chemo Ifos/Taxol that is being recommended for your sister-in-law. Ifosfamade is highly toxic to the bladder (reason for the mesna) and the side effects can be severe which is probably why most people get Carbo/taxol. I also think that is why they spread it out over three days. I received Taxol only on day one of treatment.
I had no problems with it and worked full time (other than chemo days) during the entire treatment. Do you know if she has to spend three days in the hospital during treatment? Many people do. I think that is so they can administer enough fluids to counteract the effects of the Ifosfamide. Hopefully she will be able to get her treatment as an outpatient as I did. The one thing I can recommend is that she drinks tons of water....I drank at least a gallon a day which was probably a little excessive, but it worked for me and other than severe joint pain (from the taxol) on day four and five, I had no major issues.
As for radiation, I received 25 rounds of external pelvic radiation with chemo sandwiched around the radiation. I also had 3 rounds of internal. With regards to what they are targeting, if there are no residual tumors, its my understanding they are targeting the area where the original tumor was found.
I am currently seven months out of treatment (CT scan upcoming), and basically feel pretty good. Now that your sister-in-law has a plan, I think she'll find it a relief to start treatment.
Keep us updated.
Take care
Cindy
Cindy,
Thanks for the encouragement I am reading the CT papers tonight and have emailed them to Kelly to start reading, we started the ball rolling for this trial last Friday and still have not heard back from them, she is anxious to get started now that she has made a decision. My understanding from reading tonight is that she will receive the treatment over a 3 day period, not sure if she will be hospitalized or not. We will definetly do the water. Do you have any long term effects from the chemo? What about the radiation?
Glad to hear you are doing so well, Hope you get a good CAT scan.
Nicki0 -
No radiationtxtrisha55 said:No radiation
I was dx in April 2011, had surgery and 6 round of carbo/taxol ending in Aug 2011. I am NED for over a year now from the last chemo. My dr said no radiation so I did not have any. I have 3C1 carcinomasarcoma. Itseems that some did have radiation and some did not but looking on the NCI website it states that radiation is a standard protocal. I cannot tell you about since I did not have it done. Good luck and I will be praying that everything turns out ok. trish
Thanks Trish, you and my sister in law have almost the same diagnosis. Sounds like you are doing great, I am happy for you and pray for your continued health and well being.
Nicki0 -
Update on KellyTeamkelly said:Cindy thanks for the info
Cindy,
Thanks for the encouragement I am reading the CT papers tonight and have emailed them to Kelly to start reading, we started the ball rolling for this trial last Friday and still have not heard back from them, she is anxious to get started now that she has made a decision. My understanding from reading tonight is that she will receive the treatment over a 3 day period, not sure if she will be hospitalized or not. We will definetly do the water. Do you have any long term effects from the chemo? What about the radiation?
Glad to hear you are doing so well, Hope you get a good CAT scan.
Nicki
After finding out what the clinical trial and ifosamide (3 days and then shots for 10 days) Kelly decided to do carbo/taxol. She asked mewhat I thought and I said "this is your life you have to choose how you want to live it."
she had her 1st chemo last Thursday and has been great, walking everyday, drinking tons of fluids, only problem so far has been constipation. Question - is the 1st treatment indicative of the rest of treatment?
Now me, I cannot believe this, I am 56and have not had a period in 5 years, tomorrow is my 57th birthday and I started bleeding tonight, how concerned should I be??0 -
Hi team kelly....Teamkelly said:Update on Kelly
After finding out what the clinical trial and ifosamide (3 days and then shots for 10 days) Kelly decided to do carbo/taxol. She asked mewhat I thought and I said "this is your life you have to choose how you want to live it."
she had her 1st chemo last Thursday and has been great, walking everyday, drinking tons of fluids, only problem so far has been constipation. Question - is the 1st treatment indicative of the rest of treatment?
Now me, I cannot believe this, I am 56and have not had a period in 5 years, tomorrow is my 57th birthday and I started bleeding tonight, how concerned should I be??
Even though I didn't get it...carbo/taxol is pretty much the norm around here...I'm sure she will do fine on it. My worst...absolutely WORST side effect was constipation and the very first treatment also was the worst because I wasn't prepared for it. There are plenty of natural laxatives that she can take starting the day she gets her chemo (or even the day before), and i'm sure she'll quickly figure out what works best for her.
I'm glad to hear she is doing so good....its amazing how you build something up in your mind...imagine how absolutely horrible it will be...and then...at least for many of us...its not really all that bad. Chemo will become more debilitating with each treatment....but if she's on a three week cycle she'll figure out pretty quickly which days will be the bad ones. My bad days were days four and five after receiving chemo...
I can't really speak to what you're experiencing now....I was still having periods...but from what I've read, I would consider making a doctors appointment just in case....bleeding can be a symptom of something....or not.....better to just put your mind at ease and get it checked out.
Take care,
Cindy0 -
Hi team kellyTeamkelly said:Update on Kelly
After finding out what the clinical trial and ifosamide (3 days and then shots for 10 days) Kelly decided to do carbo/taxol. She asked mewhat I thought and I said "this is your life you have to choose how you want to live it."
she had her 1st chemo last Thursday and has been great, walking everyday, drinking tons of fluids, only problem so far has been constipation. Question - is the 1st treatment indicative of the rest of treatment?
Now me, I cannot believe this, I am 56and have not had a period in 5 years, tomorrow is my 57th birthday and I started bleeding tonight, how concerned should I be??
duplicate0 -
bleedingTeamkelly said:Update on Kelly
After finding out what the clinical trial and ifosamide (3 days and then shots for 10 days) Kelly decided to do carbo/taxol. She asked mewhat I thought and I said "this is your life you have to choose how you want to live it."
she had her 1st chemo last Thursday and has been great, walking everyday, drinking tons of fluids, only problem so far has been constipation. Question - is the 1st treatment indicative of the rest of treatment?
Now me, I cannot believe this, I am 56and have not had a period in 5 years, tomorrow is my 57th birthday and I started bleeding tonight, how concerned should I be??
Dear Teamkelly (?nicki)
I am so sorry this lousy trick of fate caused you to bleed on the eve of your birthday.
I hope you are able to enjoy your birthday after you make an appointment with your gynecologist or family MD
1st step is a pelvic and transvaginal ultrasound
2nd step is an endometrial BIOPSY
Do not settle for anything less
For example, my late beloved mother had post menopausal bleeding with a normal ultrasound
which turned out to be USPC, which I now have
Hopefully yours will turn out to be nothing serious,
but, as we learned in medical school
"POST MENOPAUSAL BLEEDING IS CANCER UNTIL PROVEN OTHERWISE"
Happy Birthday
wishing you negative results,
Beila0 -
3c1 MMMT in Texas - no radiationTeamkelly said:Sloan K what do MMT carcinomasarcoma survivors think?
I posted above post and hoped that I might get feedback from some of you ladies with carcinomasarcoma. What do you think about no radiation?
I have carsonoma sarcoma stage 3 c 1. DX in April 2011. My gyn onc dr at UT southwestern suggested a clinical trial comparing ifosimade and carbopaxiel with the addition of paxatexl on both. Gave me the paperwork to study and after reading all I decided against the trial and just took 6 round of carbo/taxal. I asked about radiation and she said that at this time there was nothing in the pulvic area to radiate, so I had no radiation. So far I am doing good I had my last chemo treatment in August 2011. I get 3 month follow up visits and a ca 125 test. I also get a ct scan every 6 months. I know that a lot of the other ladies on this site had radiation. I will be praying for you and you sister. trisha0 -
It could be a lot ofTeamkelly said:Update on Kelly
After finding out what the clinical trial and ifosamide (3 days and then shots for 10 days) Kelly decided to do carbo/taxol. She asked mewhat I thought and I said "this is your life you have to choose how you want to live it."
she had her 1st chemo last Thursday and has been great, walking everyday, drinking tons of fluids, only problem so far has been constipation. Question - is the 1st treatment indicative of the rest of treatment?
Now me, I cannot believe this, I am 56and have not had a period in 5 years, tomorrow is my 57th birthday and I started bleeding tonight, how concerned should I be??
It could be a lot of different things, stress for one. i would go and ask a gyn dr to do an ultrasound or some other kind of test to to make sure. I had not had a period for several years and started flooding one day within two days I was at my gyn office and scheduled a D&C. That caused me to dx with uterine cancer 1 April 2011. I wouild get tested though, knowing what little bit I know now. Good luck. trish0
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