Lung mets. Here goes...

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Comments

  • KareGiver
    KareGiver Member Posts: 301 Member
    hwt said:

    Trials
    Prayers to you and yours. My cousin had metastasized melanoma and was told to get his affairs in order. He found a clinical trial and has now been cancer free 7 years! Never give up trying.

    hwt...WOW!
    Thank you so much for your post and so happy for your cousin! I need a kick in the a** to not give up on things...this is an inspiration for many!
  • robinleigh
    robinleigh Member Posts: 297
    KareGiver said:

    hwt...WOW!
    Thank you so much for your post and so happy for your cousin! I need a kick in the a** to not give up on things...this is an inspiration for many!

    no giving up
    Andy's mets have begun to shrink. No, his cancer is no longer considered curable, but it is treatable. I'm beginning to think that there is immeasurable power in the will to live. Try various treatments...search for trials...NO giving up!!!
  • Talkstoomuch
    Talkstoomuch Member Posts: 2

    no giving up
    Andy's mets have begun to shrink. No, his cancer is no longer considered curable, but it is treatable. I'm beginning to think that there is immeasurable power in the will to live. Try various treatments...search for trials...NO giving up!!!

    Lung Nodules
    After receiving radiation and chemo for BOT SCC in 2010,I am in remission.However the Dr told me of a "spot " on my lung in March of 2011 and probably nothing.Well in November of 2011 it had grown slightly and was "worrisome for recurrent oral cancer".Went to ENT who thinks everything is cancer,but said he saw nothing to be concerned over.Then had another cat scan in Feb of 2012 and the "spot" had increased in size more.So February 23rd they went in and removed it in a wedge resection,using robotic arms and scopes.VATS,for video assisted thoracic surgery.They said tissue surrounding nodule was clear as well as lymph nodes and I would be fine,no further treatment.Although both cancers were SCC,they think this was new as opposed to have spread since it was a singular nodule and contained.If it had spread,they feel there would be more than one and not contained.So Im feeling fine now,keeping fingers crossed,and pet scans every 6 months.Just had my first since surgery and all was clear.
  • KareGiver
    KareGiver Member Posts: 301 Member

    Lung Nodules
    After receiving radiation and chemo for BOT SCC in 2010,I am in remission.However the Dr told me of a "spot " on my lung in March of 2011 and probably nothing.Well in November of 2011 it had grown slightly and was "worrisome for recurrent oral cancer".Went to ENT who thinks everything is cancer,but said he saw nothing to be concerned over.Then had another cat scan in Feb of 2012 and the "spot" had increased in size more.So February 23rd they went in and removed it in a wedge resection,using robotic arms and scopes.VATS,for video assisted thoracic surgery.They said tissue surrounding nodule was clear as well as lymph nodes and I would be fine,no further treatment.Although both cancers were SCC,they think this was new as opposed to have spread since it was a singular nodule and contained.If it had spread,they feel there would be more than one and not contained.So Im feeling fine now,keeping fingers crossed,and pet scans every 6 months.Just had my first since surgery and all was clear.

    Great news!
    How fortunate it was one spot and they were able to remove it surgically. My husband's involves lymph nodes and multiple spots. However, he is responding to treatment! Keep fighting and take care!
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    KareGiver said:

    Great news!
    How fortunate it was one spot and they were able to remove it surgically. My husband's involves lymph nodes and multiple spots. However, he is responding to treatment! Keep fighting and take care!

    Hi Lynda ...
    Saw this post had become active with some comments ..and I just wanted you to know you are STILL on my daily prayer list (fyi....also started a prayer task team for those who asked to be on it with a specific request..if you want to be on that look for the discussion "Want to be on a prayer list?") ever since the beginning of your post at the very top!! I too believe in the power of prayer ....many others on this thread are in there too :)

    Thinking about you and your husband and we care!!

    Best,

    Tim
  • Talkstoomuch
    Talkstoomuch Member Posts: 2
    KareGiver said:

    Great news!
    How fortunate it was one spot and they were able to remove it surgically. My husband's involves lymph nodes and multiple spots. However, he is responding to treatment! Keep fighting and take care!

    KareGiver,I know I am
    KareGiver,I know I am fortunate,and I will pray for you're husband to keep getting better.There is no giving up,though at times it seems easier.God Bless you and he and all who are battling this beast.I never use the term "beat",for it is a formidable opponent.But rather winning and keeping it at bay.
  • KareGiver
    KareGiver Member Posts: 301 Member

    KareGiver,I know I am
    KareGiver,I know I am fortunate,and I will pray for you're husband to keep getting better.There is no giving up,though at times it seems easier.God Bless you and he and all who are battling this beast.I never use the term "beat",for it is a formidable opponent.But rather winning and keeping it at bay.

    Thanks Tim and Talkstoomuch...
    I was surprised to see this brought back to the top...and appreciate soooo much your comments, thoughts and prayers. It is unlikely we will meet our friends in person, but it means the world to us knowing you are there. Take care, and THANKS AGAIN!
  • Hondo
    Hondo Member Posts: 6,636 Member
    KareGiver said:

    Thanks Tim and Talkstoomuch...
    I was surprised to see this brought back to the top...and appreciate soooo much your comments, thoughts and prayers. It is unlikely we will meet our friends in person, but it means the world to us knowing you are there. Take care, and THANKS AGAIN!

    Hi KareGiver

    I too am sorry to hear this news but never give-up on Hope and the power of prayer. On my 3rd Cancer I was only giving a 5% chance with treatment that I would make it a year, I am still here 6 years later. I live with a lot of side effects and some of them are just now starting to show-up, some are not too bad while others are a real killer problems. The most importance this is that I am still here and enjoying being with my grandchildren.

    Keeping you both in prayer
    Hondo
  • KareGiver
    KareGiver Member Posts: 301 Member
    Hondo said:

    Hi KareGiver

    I too am sorry to hear this news but never give-up on Hope and the power of prayer. On my 3rd Cancer I was only giving a 5% chance with treatment that I would make it a year, I am still here 6 years later. I live with a lot of side effects and some of them are just now starting to show-up, some are not too bad while others are a real killer problems. The most importance this is that I am still here and enjoying being with my grandchildren.

    Keeping you both in prayer
    Hondo

    Dear Hondo,
    You are an inspiration to so many of us. So good to hear from you. Take care!
  • nick770
    nick770 Member Posts: 195
    KareGiver said:

    Dear Hondo,
    You are an inspiration to so many of us. So good to hear from you. Take care!

    How are things coming along

    How are things coming along
  • ToBeGolden
    ToBeGolden Member Posts: 695
    On Same Road?
    Since my first reply, I've had PET results that are "highly suggestive" that I'm on the same road as your husband. I reread your post and it was very helpful. I think I'm like the majority of the patients here in that I want to hear both the good and the bad news. We actually need to hear both sides of the story in order to make the best choices in our individual cases. Thank you for posting. Rick.
  • KareGiver
    KareGiver Member Posts: 301 Member

    On Same Road?
    Since my first reply, I've had PET results that are "highly suggestive" that I'm on the same road as your husband. I reread your post and it was very helpful. I think I'm like the majority of the patients here in that I want to hear both the good and the bad news. We actually need to hear both sides of the story in order to make the best choices in our individual cases. Thank you for posting. Rick.

    Hi Rick and Nick - and others...
    First of all, our wish is that everyone on this board has positive = GOOD results. Is it just me, but does it seem there has been not so positive news lately? Like anything, I am probably focusing on it. I have avoided posting our other side of the story. Rick, because of your post, I will "briefly" do so.

    My husband, Randy, diagnosed with mets in late April, has been in a study since early May. He was randomized to "Arm A - which did not include the study drug (bevacizumab). He has had 6 cycles of chemo of docetael and cisplatin.

    This past Monday (10/1), he had the ct scans and blood work to determine if he could take treatment #7 the next day. The answer was "no". His scans were stable but his bloodwork was poor - don't have the whole story but I think he is severly anemic. Doctor took him off the study (knew it could happen, but didn't really expect it this soon). Randy did have an extra week between treatments this time because of our planned vacation - something we were told to "never postpone for treatment." Hmmm. Our next appointment is the first week of December.

    How do "we" feel? Well, it is a nice to not have chemo. It is kinda scary that we don't have an appointment until December "unless something comes up." This apparently is not uncommon to be taken off the study at this point, but still...

    Please, please think positive and hope for the best. Fight this damned beast with all you have. Let's say it together - "EVERYONE IS DIFFERENT."

    Rick, I think I really needed to post this but wanted to remain positive - especially after losing Andy, Glenna and others. Thank you for giving me the permission.

    PLEASE don't give up!!!

    Thanks and hugs to all - Lynda
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    KareGiver said:

    Hi Rick and Nick - and others...
    First of all, our wish is that everyone on this board has positive = GOOD results. Is it just me, but does it seem there has been not so positive news lately? Like anything, I am probably focusing on it. I have avoided posting our other side of the story. Rick, because of your post, I will "briefly" do so.

    My husband, Randy, diagnosed with mets in late April, has been in a study since early May. He was randomized to "Arm A - which did not include the study drug (bevacizumab). He has had 6 cycles of chemo of docetael and cisplatin.

    This past Monday (10/1), he had the ct scans and blood work to determine if he could take treatment #7 the next day. The answer was "no". His scans were stable but his bloodwork was poor - don't have the whole story but I think he is severly anemic. Doctor took him off the study (knew it could happen, but didn't really expect it this soon). Randy did have an extra week between treatments this time because of our planned vacation - something we were told to "never postpone for treatment." Hmmm. Our next appointment is the first week of December.

    How do "we" feel? Well, it is a nice to not have chemo. It is kinda scary that we don't have an appointment until December "unless something comes up." This apparently is not uncommon to be taken off the study at this point, but still...

    Please, please think positive and hope for the best. Fight this damned beast with all you have. Let's say it together - "EVERYONE IS DIFFERENT."

    Rick, I think I really needed to post this but wanted to remain positive - especially after losing Andy, Glenna and others. Thank you for giving me the permission.

    PLEASE don't give up!!!

    Thanks and hugs to all - Lynda

    Hi Lynda....
    I'm so glad you posted. You and Randy remain in my thouhts and prayers.....

    You are truly an ispiration and I admire your strength...even if you may not feel strong at times, you are in my eyes...and Randy too.

    Best,

    Tim