A Caregiver's Life

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Comments

  • slg
    slg Member Posts: 200
    #42
    Boxtopper said:

    Caregiver's Life response
    Yes, I feel exactly the same. I don't like I feel anymore. I feel differently toward the people that were suppose to love me/us. Where did they go now that we need them?
    My husband has been in and out of hospitals since January 2012 and just came home. It has been a roller coaster ride. I'm so glad he is home....but I feel like I have lost myself somewhere.


    I hope someone that has been through this and that has somewhat came out the other side can offer some advice on how to cope.

    Thank you.

    Rollercoaster Ride
    Boxtopper,
    Yes, I have been through this but don't know that I have come out the other side yet. The ups and downs are hard to take. During my husband's battle we lost a whole family as long time friends. They apparently couldn't deal so they are gone. The sadest part was seeing my husband talk about it and ask what he did to make them desert us... I used to tell him he didn't do a single thing. They just weren't capable to cope and help us.
    On his last days he talked about them. That was heartbreaking to see.
    Don't give up and try to stay positive as hard as it might be. Best of luck and keep in touch.
  • sadinholland
    sadinholland Member Posts: 248
    #43
    slg said:

    Rollercoaster Ride
    Boxtopper,
    Yes, I have been through this but don't know that I have come out the other side yet. The ups and downs are hard to take. During my husband's battle we lost a whole family as long time friends. They apparently couldn't deal so they are gone. The sadest part was seeing my husband talk about it and ask what he did to make them desert us... I used to tell him he didn't do a single thing. They just weren't capable to cope and help us.
    On his last days he talked about them. That was heartbreaking to see.
    Don't give up and try to stay positive as hard as it might be. Best of luck and keep in touch.

    It's tough being the
    It's tough being the caregiver. You are hurt,you cry, you feel guilty, you feel like a weight is on your shoulders. I love my husband and I will always do everything I can for him no matter how hard it gets. My family lives in another state and when my husband was doing his chemo and radiation they all contributed things and sent me a care box with a beautiful card. They said although my husband is the one sick, they know it's hard for me too and they wanted me to know they were thinking about me too. It's was so sweet, full of bath stuff,books,candy,teas,lounging gown,etc. It really touched me. Sometimes people don't realize that the caregiver is going through a rough time as well. Instead of people saying let me know what I can do, it would be nice if they would just do it. Caregivers often feel guilty asking others for help with their loved ones and I don't think people understand that.
  • sadinholland
    sadinholland Member Posts: 248
    #44
    slg said:

    Rollercoaster Ride
    Boxtopper,
    Yes, I have been through this but don't know that I have come out the other side yet. The ups and downs are hard to take. During my husband's battle we lost a whole family as long time friends. They apparently couldn't deal so they are gone. The sadest part was seeing my husband talk about it and ask what he did to make them desert us... I used to tell him he didn't do a single thing. They just weren't capable to cope and help us.
    On his last days he talked about them. That was heartbreaking to see.
    Don't give up and try to stay positive as hard as it might be. Best of luck and keep in touch.

    It's tough being the
    I think we feel guilty if we take the time to do something for ourselves while the person we love is going through so much.
  • Couchie
    Couchie Member Posts: 24
    #45
    I felt that way for a long
    I felt that way for a long time. Now we are nearing the end of years of treatment and those feelings have slowly diminished. It does get better... eventually.
  • crazy98
    crazy98 Member Posts: 25
    #46
    A Constant in a life full of variables..
    I am a 13 year childhood cancer survivor. I know cancer doesn't just affect the one going through chemo. It effects family and friends as well. I started a blog and wrote a post about caretakers. http://ialwayswantedtoshavemyhead.blogspot.com/

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