Peritoneal metastasis - who else has them?

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Comments

  • traci43
    traci43 Member Posts: 773 Member
    I do
    I was diagnosed with stage IV colon cancer in 2007 with mets to ovaries and omentum. had surgery and 12 rouldns FOLFOX. A year later more mets in the peritoneum, had 8 rounds of FOLFOX followed by HIPEC surgery. Only found 3 mets on a bit of omentum not removed in first surgery. 6 rounds of FOLFOX post surgery. Another year later 3 mets in the peritoneum in the fat. 18 rounds of XELIRI, all three were back to normal size, CEA within normal range, but not as low as after surgeries. Now one tumor has grown back, I'm on XELIRI with surgery scheduled in 3 weeks. It's been 5 years and I'm still here and fighting. Everyone is different but that's how it goes for me. I've never had mets to the liver or lungs.

    BTW, HIPEC is not a walk in the park but doable. I had been working out before and came through really well. First few days are a blur as you're drugged as they pump you full of fluid to flush out the mitomycin. After that I was up and about. I had a tunnel epidural for pain management that they took out after 7 days. Never needed pain meds after that.

    Good luck to you. Traci
  • SharonVegas
    SharonVegas Member Posts: 189
    traci43 said:

    I do
    I was diagnosed with stage IV colon cancer in 2007 with mets to ovaries and omentum. had surgery and 12 rouldns FOLFOX. A year later more mets in the peritoneum, had 8 rounds of FOLFOX followed by HIPEC surgery. Only found 3 mets on a bit of omentum not removed in first surgery. 6 rounds of FOLFOX post surgery. Another year later 3 mets in the peritoneum in the fat. 18 rounds of XELIRI, all three were back to normal size, CEA within normal range, but not as low as after surgeries. Now one tumor has grown back, I'm on XELIRI with surgery scheduled in 3 weeks. It's been 5 years and I'm still here and fighting. Everyone is different but that's how it goes for me. I've never had mets to the liver or lungs.

    BTW, HIPEC is not a walk in the park but doable. I had been working out before and came through really well. First few days are a blur as you're drugged as they pump you full of fluid to flush out the mitomycin. After that I was up and about. I had a tunnel epidural for pain management that they took out after 7 days. Never needed pain meds after that.

    Good luck to you. Traci

    Thanks for sharing your
    Thanks for sharing your story :-)
  • SharonVegas
    SharonVegas Member Posts: 189
    pog451 said:

    Have you seen the queen of
    Have you seen the queen of peritoneal met survivors blog?

    http://www.wunderglo.com/

    Interesting blog. Sounds
    Interesting blog. Sounds like the queen has a great life :-)