My mom had a Glioblastoma Grade 4

Hi moonwitch,

I am so very sorry to hear about your mom, this is such an terrible disease.my mom and I are going through a similar situation right now, she is the most amazing person that I know and so strong and positive and doesn't deserve this as of course your mom didn't either. She is only 56 and I am 25, and she was very healthy before all this happened and working as a nurse. She started having really weird symptoms during the last few days of April, and then had a mini seizure right in front of me so i rusehd her to the ER...where they found a mass in her brain. She was transferred to SF where they diagnosed her with Glioblastoma Stage 4, had surgery and started chemo and radiation soon after...in her follow-up MRI they found that the tumor had grown much bigger so the surgeon decided to operate again....she had a stroke during the second surgery and lost most of her ability to speak, most of the vision in her right eye and gets confused a lot easier than before....it's still her in there even though her personality is drastically different now. About 3 weeks ago, the doctor told us that in reviewing her case, he estimated she had a year left if she is lucky before she is bedridden or worse. I am so sad and angry that this has happened. She decided against continuing chemo because of the prognosis and wants to just enjoy life as much as possible...she is getting weaned off a brain steroid right now and has had almost no energy and just sleeps all day and night. I just wanted to say that I'm so sorry that you and your mom had to go through this. My mom does talk about her mom a lot who died of breast cancer when I was young and her dad who died late last year. I really just want to make her as happy as possible during this time...and I hope that she keeps her positive attitude up just like your mom did dealing with this horrible cancer.

So sorry about your mom
Hi Moonwitch,

Thank you for sharing your mom's story. My daughter was diagnosed with a GBM last August. She is still with us and doing okay for now. It's always scary and we don't take any day for granted.

I haven't experienced it first hand but I have heard often that people sometimes know when they will pass into eternity and they see loved ones prior to going. Some people see angels and other heavenly beings - I've heard they are at peace when they go because they see something we can't see - eternity.

I don't want to think of my daughter going to heaven before me but I know she's ready to go when the time comes.

I know how much you loved your mom, it must have been so difficult to part with her. You will see her again.

God bless you and your mom's memory.

amsan1724 said:

GBM Grade 4
My sister was a vibrant, healthy woman until May 29 when she became extremely dizzy, had speech difficulties, and couldn't move her right arm and leg. She was taken to ER where they said she had a brain mass. It was later diagnosed as grade 4 GBM. She has had two seizures, a very new procedure called Auto-LITT, and completed 6 weeks of chemo and radiation. She is now bedridden, but has been slowly coming around. She is in a rehab facility at present where we hope she can at least walk with a walker and come home. She is confused, shouts, and talks of odd things at times. Her tumor could not be removed, the Auto-LITT "cooked" it. She will have her first post-treatment MRI on Oct. 10. We are praying the tumor will be gone. Her oncologist believes because of her behavior, she may not be able to do further chemotherapy (Avastin). Again, we are praying there will be no need for it or that she will be strong enough to endure it. At this point, her life has not been very good since her diagnosis. She has spent more time in hospitals and rehab centers than at home. We are in St. Louis, MO, which has a renowned teaching hospital and Siteman Cancer Center. Top-notch doctors and one of two that performs the Auto-LITT procedure (Cleveland Clinic is the other). A 29 year old father in my town died yesterday of GBM. It is a ruthless and cruel disease. I pray for all who are battling this demon.

GBM
September 4 2012 i was a little off balance then the next day i got a little confused headahe the next and that friday i lost some coordination. I had aurgery on the 10th of september to remove a 6 cm tumor which turned out to be GBM. I was released on the 15th of september and havw been non stop reading hooking up with support getting educated if you get gbm keep positive and fight non stop my treatment starts october 8th 6 weeks 5 days a week of radiation with cemo (temodor ) starting at the same time at the end of 6 weeks scan and continue cemo lets see how the scan goes

GBM

My mom was diagnosed on 7/16/14.  Her tumor was removed in August 2014.  We tried radiation chemo with temidar twice and chemo with avastin.  She had ton of complications with both.  I lost my mom 3/5/16.  But really I lost her long before.  She was never anything more than a shell of her former self.  The last month of her life she had several hallucination.  At one point I know based on body language he was communication with my dad (her ex-husband) who passed 2/7/14.  One morning I brought her a cup of coffee she was bringing it to her mouth suddenly she paused looking off at nothing she lowered the cup really slow and then smiled... Nothing there then suddenly snapped out of it and started drinking her coffee.  She passed in my home at 12:05 am on 3/5/16.  I was told in the beginning t even with treatment she would only live 6 months.  I had her almost 2 years.  She passed on her dad's birthday, which was also the same day he passed.  I feel so alone!  I was an only child and her sole caregiver.  I quit my job and lived on my retirement to take care of her because we did not qualify for any kind of assistance with care and her insurance would not cover it.  And between the cost of insurance and the cost of medical bills there was no way I could take on anything else.  She was my life. I feel like I have nothing nor no one left.