Anyone else on Morab 4 phase II clinical trial? End of trial for me

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  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #22
    SharonVegas said:

    Round six pick up stix! Did
    Round six pick up stix! Did round six today. I'm feeling pretty good overall. Cold sore healed. A little tired and achey this past weekend but nothing I couldn't work through. Got a sty in my eye on Sunday. At least I think it's a sty. I'm having calf cramps almost every night. Still having hot flashes on a regular basis. Maybe it's man-o-pause? My wife threw a "somewhat surprise" 60th bithday party for me Saturday. Boy was it nice to see and talk to many of the good people I share my life with. Gave me that boost I needed. Will have scan after round 8. Looking forward to that.
    Be well all,
    SharonVegas

    I get cold
    I get cold sores....oncologist and nurse always really concerned about them, apparently they can lead to serious infection. They tell me to use some kind of antibiotic cream on them...like polysporin. So, take care of those, but I am sure your team has told you already. Thank you so much for the updates!!! I'm really interested to see how your scans go, please keep us posted :)
  • SharonVegas
    SharonVegas Member Posts: 189
    #23
    Finished treatment 7 on
    Finished treatment 7 on Tuesday. Some hot flashes after and insomina that night. Scan scheduled for Oct 1st. I feel great. Not much else to say. The scan will tell if it's all in my mind or in the drug :-)
    Be well,
    SharonVegas
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #24
    SharonVegas said:

    Finished treatment 7 on
    Finished treatment 7 on Tuesday. Some hot flashes after and insomina that night. Scan scheduled for Oct 1st. I feel great. Not much else to say. The scan will tell if it's all in my mind or in the drug :-)
    Be well,
    SharonVegas

    I guess your starting to get
    I guess your starting to get really curious with the upcoming scan....it's probably the kinda feeling I want to see if this is working, but with the anxiety of what's the scan gonna show. Thank you so much for keeping us updated, it is very intersting. Hopefully it's kicking cancers butt. Hoping for wonderful scan results for you from this trial :)
  • SharonVegas
    SharonVegas Member Posts: 189
    #25
    smokeyjoe said:

    I guess your starting to get
    I guess your starting to get really curious with the upcoming scan....it's probably the kinda feeling I want to see if this is working, but with the anxiety of what's the scan gonna show. Thank you so much for keeping us updated, it is very intersting. Hopefully it's kicking cancers butt. Hoping for wonderful scan results for you from this trial :)

    Thanks Smokey. Yes I am
    Thanks Smokey. Yes I am getting curious and I will have anxiety the day before the scan, I always do even when I try to talk myself down. Thanks for your support and have a great weekend!
  • SharonVegas
    SharonVegas Member Posts: 189
    #26
    Did round 8 on Tuesday.
    Did round 8 on Tuesday. Feel great. Have scan Monday. Am anxious and excited to see results. If no progression, I will stay on trial. Still having hot flashes but not as many. Am always very tired day 6 & 7 after treatment.
    Read in paper today that docs at Georgetown Comp Cancer Center were successful at taking a biopsy of a man's cancer and growing mini tumors in the lab which they figured out a way to treat him with. They treated the mini tumors with different types of chemo to figure out which worked. Amazing.
    Look for exciting post next Tuesday :-)
    Ron of SharonVegas
  • SharonVegas
    SharonVegas Member Posts: 189
    #27
    Met with onc today. CT scan
    Met with onc today. CT scan from yesterday shows pelvic lesion shrank a bit but peritoneal lesion grew and CEA is rising. Technically, I am a candidate to stay on trial drug but after discussing with onc, we agreed we all think I would have better results trying Zaltrap, 5FU, & Irinotecan. It's the newest cocktail in my chemo cabinet.
    So I bid farewell to the trial. I'm glad I did the trial. It was a nice quality of life for two months and now on to something new.
    Thanks all for your support and for listening to my trial experience.
    My best,
    Ron of ShaRonVegas
  • janie1
    janie1 Member Posts: 753 Member
    #28
    SharonVegas said:

    Met with onc today. CT scan
    Met with onc today. CT scan from yesterday shows pelvic lesion shrank a bit but peritoneal lesion grew and CEA is rising. Technically, I am a candidate to stay on trial drug but after discussing with onc, we agreed we all think I would have better results trying Zaltrap, 5FU, & Irinotecan. It's the newest cocktail in my chemo cabinet.
    So I bid farewell to the trial. I'm glad I did the trial. It was a nice quality of life for two months and now on to something new.
    Thanks all for your support and for listening to my trial experience.
    My best,
    Ron of ShaRonVegas

    Thanks Ron for informing us
    Thanks Ron for informing us about this trial.....I don't know what Zaltrap is like, but I sure wish I could stay on 5 fu & irinotecan forever.
    It isn't bad for me, but, for some i think diarrhea needs controlled. Good luck with the new one.
  • taraHK
    taraHK Member Posts: 1,952 Member
    #29
    thanks and best wishes
    Thanks so much for all your posts about this trial. It is so interesting and important for others who may be doing this trial or taking the drug after FDA approval.

    Good luck as you switch to the new cocktail. That is one waiting in my 'backup plan' list!

    Best wishes

    Tara
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #30
    taraHK said:

    thanks and best wishes
    Thanks so much for all your posts about this trial. It is so interesting and important for others who may be doing this trial or taking the drug after FDA approval.

    Good luck as you switch to the new cocktail. That is one waiting in my 'backup plan' list!

    Best wishes

    Tara

    Thanks so much for keeping
    Thanks so much for keeping us informed about the trial drug...it seems promising as it did have an affect on your tumors. Good luck with your next treatments :)

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