3_6months

Skiffin16 said:

Sorry To Hear That
It's hard to hear when treatment doesn't work out well for someone. So many on here have such good results, still hard to hear when one doesn't.

I guess it brings it back to reality...

There are several on here that have been through different trials. I'm sure a few will pop in soon.

Thoughts, Prayers, Hopes and Dreams,
John

Keeping you in my prayer
I can't say anything that will be helpful, so I will just say that I will pray God will send you the right clinical study.

a number of people have
I'm sure they will chime in if they see your post. As was mentioned, the American Cancer Society is a good resource. The other that some have been very impressed with is the Lance Armstrong Foundation. They're website is http://www.livestrong.org/

Best wishes to you both.

Pat

Horrible News
Very sorry to hear about the latest bad news. I'm hoping you all can quickly find a clinical trial.

hwt said:

Sorry to hear
Will certainly include your wife and you in my prayers. I don't know of anyone in a head and neck trial but to offer hope, my cousin was told to get his affairs in order due to melanoma that had spread through his body. He found a clinical trial and is now 8 years cancer free. Never give up hope.

Just reread your post and
Just reread your post and picked up that you said it was inoperable for an 80 year old. Is age the only reason? If so, I will tell you that my 87 year old Mother was diagnosed 2 weeks ago with early stage but aggressive stomach cancer. The surgeon at that hospital said she was not a candidate for surgery. We sought a second opinion from Siteman Cancer Center. The surgeon said age was not a factor in his decision to proceed with surgery. He said he looks at a patient's overall health not their age. If age was the only factor preventing tumor removal, you might seek a second or third opinion.

Who's Opinion?
Is it the doctors talking or the insurance company? Don't get me wrong. It could be a good medical opinion, but it also be all the bureaucratic stuff.

vandyike said:

Surgery out because
Tumor had enlarged and wouldnhave required removal of both lower and upper jaw bone as well as pallet.Permanent feeding tube which because of her crohns was not feasible hence a nose one. Only a 10% cure chance. Seeing oncologist on nexxt Monday to look at all options. My wife is a quality of life person and wouldn't undergo the surgery anyhow. Doing lot of research while waiting for Monday. She is concerned about her 82 year old caregiver but we have lots of friends helping.

Understandable
Can't imagine a surgery removing upper & lower jaw. I had my lower jaw on left removed and it was a 19 hour surgery followed by 4 days induced coma and 2 weeks ICU. So now I understand the choice you both made. They rebuilt my jaw using the fibula from my leg and that healing of the leg in itself was huge. I am 61. I dealt with the feeding tube in my nose throughout the hospital stay and know that it can hurt. I will keep you both in my prayers. Come Monday, you might tell the doctor you want to be in that 10% and ask what will get you there. I've also been told that those percentages are based on at least 5 years study and they have come up with so many new tx and options in the most recent 5 years that the percentages are outdated before they get published. Makes sense to me.