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Jenniebean87
Jenniebean87 Member Posts: 9
in Uterine/Endometrial Cancer #1
Good morning everyone.
I'm new here so I'm not sure where to start. I guess when it all started. When I was 23, in 2010, I was pregnant with my 3rd child. I had a pap. My paps had been abnormal for a while, but this time it was different. A colposcopy and biopsy confirmed carcinoma in situ. I was told not to worry and my OB could take care of it after my daughter was born. I had her in September of 2010. After her birth I had numerous proceedures such as cryotherapys, leeps, cold knife cone surgery and biopsies. Nothing got rid of it. I was informed that it had spread to the uterus and I could either go to an oncologist for chemo or have a hysterectomy. I chose surgery. I have a 7yr, 5yr and 2yr old who need their momma and I wasn't going to risk chemo not working. So, I had a total abdominal hysterectomy. The Dr. went in through my cesarean scar and took everything but the ovaries. She didn't want to throw me into menapause or be dependent on hormones at such a young age.

Fast forward to the beginning of the week. I had an ultrasound due to pelvic pain, weightloss and extreme tiredness. A 6x6 complex mass was found along with fluid in the pelvic cavity. It was confirmed by CT with barium and iodine.

The OB who found the mass on U/S and CT is not on my insurance. She did all that and gave me a follow up on Monday, knowing she wasn't going to get reimbursed bc she was concerned. She can't do my surgery though. The one who can, my regular OB isn't back until 2nd week of Oct. and not back in the OR till the 17th. I have an appointment with her when she returns from vacation. I have also requested an appointment with MD Anderson. If MD Anderson give me a sooner appointment after reviewing my chart, I'm taking it. I got an email back from MDA that they will call me Monday. The only gyn-oncologists are north of my city.

I had a colonoscopy a week ago and the Dr. removed a polyp and biopsied a few questionable areas. The results came back as pre-cancerous lesions. I have an appointment with the Dr. on Oct. the 19th to discuss surgery and treatment options.

It's nice to have a place to share this other than Facebook, I don't really like talking about it with people because I feel like I am whining and people have their own stuff to deal with. Anyway, I hope to meet some nice people here. =]

Comments

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #2
    Welcome to the boards
    Anything and everything can be disscussed here and people cross the different boards for different cancers, I had Uterine cancer and had surgery and chemo but no radiation last year. There are a lot of women of these boards and some men too for their wifes, mothers, sisters so there is a large mix of people and circumstances. Nothing is held back, fears, celebrations, life and even deaths. This is a place to whine, vent, share feelings, anger and no one will judge you because we have all shared those feelings. Glad you found us because the Internet has a lot of old information that scares those that read for the first time. Good luck and I will be praying for you. trisha
  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #3
    We're here 24/7, Jenniebean.
    We're here 24/7, Jenniebean. You have your hands full with 3 small children and this to cope with. I hope you have family nearby to lend a hand. Absolutely be sure you deal with a gyn- oncologist. MD A nderson sounds like a terrific place from what the ladies write on this site. Hope they get you in ASAP.
  • debrajo
    debrajo Member Posts: 1,095 Member
    #4
    ConnieSW said:

    We're here 24/7, Jenniebean.
    We're here 24/7, Jenniebean. You have your hands full with 3 small children and this to cope with. I hope you have family nearby to lend a hand. Absolutely be sure you deal with a gyn- oncologist. MD A nderson sounds like a terrific place from what the ladies write on this site. Hope they get you in ASAP.

    I am at MD Anderson, UPSC
    I am at MD Anderson, UPSC (uterine). Really great dr.s and hospital. Let me know if you have any questions about the clinic/hospital. best, debrajo
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #5
    debrajo said:

    I am at MD Anderson, UPSC
    I am at MD Anderson, UPSC (uterine). Really great dr.s and hospital. Let me know if you have any questions about the clinic/hospital. best, debrajo

    Gynecologic oncologist
    I agree with Connie. You need this specialist, not regular ob-gyn.

    Best of luck to you. Keep us posted.

    Mary Ann
  • NJZ62
    NJZ62 Member Posts: 32
    #6
    New
    Hi Jenniebean,

    I've heard great things about MD Anderson - #1 rated Nationally cancer hospital (US News & World Report) - if you can get treatment there, it sounds like a terrific choice.

    >>>>>I had a colonoscopy a week ago and the Dr. removed a polyp and biopsied a few questionable areas. The results came back as pre-cancerous lesions. I have an appointment >>>with the Dr. on Oct. the 19th to discuss surgery and treatment options.

    When colon cancer is found along with endometrial cancer, it's called Lynch Syndrome, and I believe there is a genetic or hereditary factor, which may make sense because you are so very young to have cancer.

    Please take care of yourself - and talk to the group - I have reason to know that these are a wonderful group of women!!

    take care,

    Nancy

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