Bad News :-(

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  • rch
    rch Member Posts: 79
    #22
    mrspjd said:

    Our very satisfying conclusion
    My and my husband's conclusion is that if it ever becomes necessary to consider C-11 Choline PET/CT imaging and we had to choose between the two, we're going to Kwon @ Mayo--for the reasons I stated and many other reasons pertaining to the overall center of excellence that Mayo & it's doctors offer.

    Hi Swing,I have been away
    Hi Swing,I have been away from the Board for a while. I am sorry to hear about the PSA rise,but my gut feeling is that it's related to some inflammatory cause rather than recurrence.You have had some great suggestions by others on the forum. I may suggest you try a short course of Cipro ( if not already done) and Nitrofurantoin(for burning)and recheck PSA in 4wks.You might get a number close to the last one. I am not sure any of the imaging discused above would really yield sufficient information on a subtle PSA rise.Nonetheless please do them any way. IMHO a biopsy would be indicated with it's inherent risks , if recurrence is within the CK'd prostate itself. It is a difficult decision, but in the end I'm confident you will make the right decision.
  • Swingshiftworker
    Swingshiftworker Member Posts: 1,017 Member
    #23
    rch said:

    Hi Swing,I have been away
    Hi Swing,I have been away from the Board for a while. I am sorry to hear about the PSA rise,but my gut feeling is that it's related to some inflammatory cause rather than recurrence.You have had some great suggestions by others on the forum. I may suggest you try a short course of Cipro ( if not already done) and Nitrofurantoin(for burning)and recheck PSA in 4wks.You might get a number close to the last one. I am not sure any of the imaging discused above would really yield sufficient information on a subtle PSA rise.Nonetheless please do them any way. IMHO a biopsy would be indicated with it's inherent risks , if recurrence is within the CK'd prostate itself. It is a difficult decision, but in the end I'm confident you will make the right decision.

    Thanks, RCH
    The combined E-MRI/MRSI test is very sensitive and, if there's any possibility of cancer still there, I'm pretty sure they will pinpoint it.

    UCSF is actually doing a continuing study on the use of the E-MRI/MRSI testing in identifying early stage PCa and post treatment recurrence, which dates back to the study results published over 10 years ago that I mentioned in my original post in this thread. Turns out that I'm going to be a participant in a study on the technique and my results will probably be included in any future papers on the subject.

    If there's no indication of any cancer from these tests, we'll continue to monitor PSA in the long term and we'll turn our attention to prostatitis as the possible cause for the PSA rise in the short term.

    Am still having frequency/urgency and burning issues that I reported to my RO a couple of months ago. Have resorted to carrying a 1 qt large mouth pee bottle in my car for the urgency problem, which I've already used a couple of times. Never had this problem before.

    Haven't taken any cipro yet; just ibuprofen for the burning sensation which hasn't done much. If the E-MRI/MRSI is negative, I will ask the RO about treating it as a possible bacterial infection, which will require a prescription for cipro, nitrofurantoin and/or other antibiotics.

    The E-MRI/MRSI screening is scheduled for next Tuesday and will post the results here as soon as I receive them.

    Thanks!
  • Samsungtech1
    Samsungtech1 Member Posts: 351
    #24
    Swingshiftworker said:

    Thanks, RCH
    The combined E-MRI/MRSI test is very sensitive and, if there's any possibility of cancer still there, I'm pretty sure they will pinpoint it.

    UCSF is actually doing a continuing study on the use of the E-MRI/MRSI testing in identifying early stage PCa and post treatment recurrence, which dates back to the study results published over 10 years ago that I mentioned in my original post in this thread. Turns out that I'm going to be a participant in a study on the technique and my results will probably be included in any future papers on the subject.

    If there's no indication of any cancer from these tests, we'll continue to monitor PSA in the long term and we'll turn our attention to prostatitis as the possible cause for the PSA rise in the short term.

    Am still having frequency/urgency and burning issues that I reported to my RO a couple of months ago. Have resorted to carrying a 1 qt large mouth pee bottle in my car for the urgency problem, which I've already used a couple of times. Never had this problem before.

    Haven't taken any cipro yet; just ibuprofen for the burning sensation which hasn't done much. If the E-MRI/MRSI is negative, I will ask the RO about treating it as a possible bacterial infection, which will require a prescription for cipro, nitrofurantoin and/or other antibiotics.

    The E-MRI/MRSI screening is scheduled for next Tuesday and will post the results here as soon as I receive them.

    Thanks!

    UCSF
    Swing,
    I was born and raised in SF. I believe it was ST. Mary's. My dad owned Harrington's bar on Jones St. My cousins still own the bar on Front St. I am wondering if it is an infection. It sounds like one. Hopefully whe tests are done it will just be that.

    Good luck,

    Mile
  • Swingshiftworker
    Swingshiftworker Member Posts: 1,017 Member
    #25
    Samsungtech1 said:

    UCSF
    Swing,
    I was born and raised in SF. I believe it was ST. Mary's. My dad owned Harrington's bar on Jones St. My cousins still own the bar on Front St. I am wondering if it is an infection. It sounds like one. Hopefully whe tests are done it will just be that.

    Good luck,

    Mile

    Small World
    I too was born and raised in SF. Grew up on the west side of Russian Hill near Polk Gulch and went to Spring Valley & Sherman Elementary, Marina Jr High (now Middle School) and Lowell High in the 50's/60's.

    I think the Harrington's at 9 Jones closed when I was a teenager but use to work at the Embarcadero Center (when I was practicing law) near the Harrington's on Front and have had a few drinks there. I believe they still close the street and serve buckets of green beer there on St. Patty's day.

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