new member!

ehfar_31
ehfar_31 Member Posts: 7
in Ovarian Cancer #1
Hello! I'm a new member and extremely happy that I found this site and was able to create an account! I'm glad to be able to be in contact with people who are going through or along the same process as I am. My family and friends are a great support system, but sometimes it is hard to express how I feel to them because none of them have been through anything like this. I am currently 20 years old and am nervous about starting chemotherapy, I meet with my doctor later this week to discuss when I will start. As the days to my appointment get closer I just become more nervous.

Comments

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #2
    I'm sorry you have to be
    I'm sorry you have to be here...and you are so young to have to deal with this cancer. We are here for you. One step at a time. When do you start chemo. Tell us your story. Kim
  • kikz
    kikz Member Posts: 1,345 Member
    #3
    kimberly sue 63 said:

    I'm sorry you have to be
    I'm sorry you have to be here...and you are so young to have to deal with this cancer. We are here for you. One step at a time. When do you start chemo. Tell us your story. Kim

    Welcome
    and know that you have found a place where so many wonderful women will listen to you and support you.

    A lesson I learned early on in my journey is to take it a step at a time and try to stay in the moment. It is easy to get overwhelmed by all that you are going through and what may be ahead. Deal with things as they come. You can do it. Many of us have been surprised by how strong we are when we need to be.

    Let us help you along the way.


    Karen
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #4
    kikz said:

    Welcome
    and know that you have found a place where so many wonderful women will listen to you and support you.

    A lesson I learned early on in my journey is to take it a step at a time and try to stay in the moment. It is easy to get overwhelmed by all that you are going through and what may be ahead. Deal with things as they come. You can do it. Many of us have been surprised by how strong we are when we need to be.

    Let us help you along the way.


    Karen

    Hi
    I'm so glad you found this site too. My experience with chemo was that, while it was no walk in the park, it was doable. You can do it too! I recommend you take a trusted family member or friend with you when you meet with your doctor this week. They can be a second set of ears and ask questions that you might forget or not think to ask. Write down questions you have ahead of time and bring paper and pen to the appointment. Please let us know what the doctor says.

    Take care,

    Kelly
  • ehfar_31
    ehfar_31 Member Posts: 7
    #5
    kimberly sue 63 said:

    I'm sorry you have to be
    I'm sorry you have to be here...and you are so young to have to deal with this cancer. We are here for you. One step at a time. When do you start chemo. Tell us your story. Kim

    Thank you
    Thank you so much! I find out this Thursday when I start, but my doctor told me he would like to start as soon as possible. I was diagnosed in December with the ovarian cancer, it was a dysgerminoma tumor and I had to get my left ovary and fallopian tube removed with the tumor. After two surgeries I was in remission until August when I had a pet scan and a lymph node became positive with the same cancer again.
  • ehfar_31
    ehfar_31 Member Posts: 7
    #6
    lovesanimals said:

    Hi
    I'm so glad you found this site too. My experience with chemo was that, while it was no walk in the park, it was doable. You can do it too! I recommend you take a trusted family member or friend with you when you meet with your doctor this week. They can be a second set of ears and ask questions that you might forget or not think to ask. Write down questions you have ahead of time and bring paper and pen to the appointment. Please let us know what the doctor says.

    Take care,

    Kelly

    Also, thank you all for a
    Also, thank you all for a the positive messages and support! It's nice to know that even complete strangers believe in you to be positive and strong. Also, thank you for the advice! It really does help. Never thought to write down my questions ahead of time, I definitely will be doing that!

    Thank you all, it means a lot.
  • Kimmyanne
    Kimmyanne Member Posts: 21
    #7
    I was dx January of this
    I was dx January of this year, stage 3c ovca. I was also scared on my first day of chemo and in general. Take a bag with a book or an ipod. My cancer center had T.V. so I watched tv hehe but these ladies are awesome Stay strong
  • Glad to be done
    Glad to be done Member Posts: 569
    #8
    Kimmyanne said:

    I was dx January of this
    I was dx January of this year, stage 3c ovca. I was also scared on my first day of chemo and in general. Take a bag with a book or an ipod. My cancer center had T.V. so I watched tv hehe but these ladies are awesome Stay strong

    Welcome to the group. I
    Welcome to the group. I didn't find this group untill I was done with chemo. They are a great bunch of ladies. I too was diagnosed in January with stage 3C. I did six rounds of chemo (cisplatian/taxol) and finished up at the end of June. I am now NED (no evidence detected). The chemo road is a bumpy one but totally doable. Someone in another group I belong to said it right when they said you are the leader of your teaam and the team is just waiting for you to tell them what you need. If you are having pain tell your doctor. If you are nauseous tell your doctor. It sucks that we have to go through this but your doctor wants to make you as comfortable as possible on this journey.

    What was your diagnosis?
  • ehfar_31
    ehfar_31 Member Posts: 7
    #9
    Glad to be done said:

    Welcome to the group. I
    Welcome to the group. I didn't find this group untill I was done with chemo. They are a great bunch of ladies. I too was diagnosed in January with stage 3C. I did six rounds of chemo (cisplatian/taxol) and finished up at the end of June. I am now NED (no evidence detected). The chemo road is a bumpy one but totally doable. Someone in another group I belong to said it right when they said you are the leader of your teaam and the team is just waiting for you to tell them what you need. If you are having pain tell your doctor. If you are nauseous tell your doctor. It sucks that we have to go through this but your doctor wants to make you as comfortable as possible on this journey.

    What was your diagnosis?

    Thanks
    Thank you for the advice, I love reading so taking a book or something sounds like a great idea. This is all still very new to me so I am not sure of the correct technical terms. I know that I was diagnosed with having a dysgerminoma tumor which has to do with the germ cells and that it was thankful in stage one. My doctor has told me that I have to do four rounds of the chemo BEP (bleomycin/etoposide/cisplatin). I am happy for you that you are done with chemo and that there is no evidence detected!
  • mopar
    mopar Member Posts: 1,972 Member
    #10
    WELCOME, DEBBIE
    So sorry you are going through this, especially at such a young age. I have three daugthers, and one of them is dealing with moderate dysplasia right now (cervical issue). I can imagine what you are your family are going through.

    We are all survivors here, and you have come to the right place for help, hugs and support. Once you find out what chemotherapy you will be having, we can offer some helpful hints to get you through the rough spots.

    Hang in there, and please visit here often. You'll find hope and comfort. Till then, sending prayers and hugs to you.

    Monika
  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #11
    ehfar_31 said:

    Thank you
    Thank you so much! I find out this Thursday when I start, but my doctor told me he would like to start as soon as possible. I was diagnosed in December with the ovarian cancer, it was a dysgerminoma tumor and I had to get my left ovary and fallopian tube removed with the tumor. After two surgeries I was in remission until August when I had a pet scan and a lymph node became positive with the same cancer again.

    You are strong and young.
    You are strong and young. You will get through this especially if you have a strong support system. Chemo plays havoc with your skin. I recommend getting a facial and a massage several times throughout your treatments. These can relax you and help your skin. Chemo can make it very dry. Depending on your chemo types, you may lose your hair. Ask your doctor if you should expect that. I bought scarfs before I lost my hair, so i was ready. I also got a human hair wig. I have never really adjusted to the wig, but I did wear it for a while and everyone loved it. I also used Frankincense oil. this is a healing oil. I used it on my head when my scalp burned with hair loss, and rubbed it on my abdomen. It smells good an known to heal. Kim
  • Alnik
    Alnik Member Posts: 56
    #12
    Hello
    Hi Im happy that you have found this site Everyone here is so nice and so knowledgable this is such a great place to find alot of answers to ALL the questions that you may have and just to vent. Ive been so thankful for all of the support that ive gotten from everyone here. Keep in mind that no matter what your questions may be you can ask it here (believe me there are some things i needed answers to and was either to embarrassed or didnt even know who to ask)But everyone here is so kind and helpful. Good Luck with things
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #13
    Alnik said:

    Hello
    Hi Im happy that you have found this site Everyone here is so nice and so knowledgable this is such a great place to find alot of answers to ALL the questions that you may have and just to vent. Ive been so thankful for all of the support that ive gotten from everyone here. Keep in mind that no matter what your questions may be you can ask it here (believe me there are some things i needed answers to and was either to embarrassed or didnt even know who to ask)But everyone here is so kind and helpful. Good Luck with things

    Sorry we have to meet this way
    But you are a smart lady and we will get through this together. Let us know how your appointment goes and if you have any questions...Val
  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #14
    ehfar_31 said:

    Thanks
    Thank you for the advice, I love reading so taking a book or something sounds like a great idea. This is all still very new to me so I am not sure of the correct technical terms. I know that I was diagnosed with having a dysgerminoma tumor which has to do with the germ cells and that it was thankful in stage one. My doctor has told me that I have to do four rounds of the chemo BEP (bleomycin/etoposide/cisplatin). I am happy for you that you are done with chemo and that there is no evidence detected!

    Yeah for stage one. You
    Yeah for stage one. You have the best prognosis. Increase your diet with vegetables like Kale, cabbage, Brussels sprouts, broccoli and cauliflower. Start drinking green tea. All of these are antioxidants which fights cancer.Kim
  • Glad to be done
    Glad to be done Member Posts: 569
    #15
    poopergirl14052 said:

    Sorry we have to meet this way
    But you are a smart lady and we will get through this together. Let us know how your appointment goes and if you have any questions...Val

    Good luck at your
    Good luck at your appointment today.... let us know how it goes. For me this appointment was very scary. It made it all so real. Attitude is a HUGE part of chemo and recovery. Know that all of us here got your back. We are behind you 100%. You will get through this...

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