New here, 4 1/2 years from diagnosis

Ixmii, you have come to the right place
Fell free to vent away. Most of us have been through what you have been through, so we understand where you are coming from. 4 1/2 years since diagnosis sounds great. Sorry to hear you have so many side effects though. You say you are at the end of seeing your doctors. Why is that? Won't you still have check ups. Good luck with enjoying each day you have without a recurrence. In peace and caring.

Hi There
I am new to this website and am trying to connect with those who have UPSC. But I also have neuropathy in feet and fingers. I had some due to diabetes already but not like this espacially in fingers. I have just finished first round of the same chemo drugs. Of course I am hairless at the moment. I will start radiation next week. A grueling 7 weeks or more of external and 3 of internal. Sounds like a fun time.
I also had intestinal problems due to IBS which of course are worse during chemo. I have gotten very fleet of foot getting to the potty . Hoping this will subside. The anmeia is fun too though mine isn't to bad. Just enough to make climbing stairs interesting. I am taking iron tabs to help with that problem.
I know what you mean about thinking you could have a recurrance. Its my main worry. I even asked how they keep watch over you of my docs and I'm not even done yet. I mean really when you know your cancer is only 40-50 % survival rates with a recurrance within 2 years yowzer thats scary.
Anyway Your doing wonderful in my book. You hang in there!!!!
If anyone out there reads this and has UPSC sure could used some encouragement.
Thanks

DoonyL7 said:

Hi There
I am new to this website and am trying to connect with those who have UPSC. But I also have neuropathy in feet and fingers. I had some due to diabetes already but not like this espacially in fingers. I have just finished first round of the same chemo drugs. Of course I am hairless at the moment. I will start radiation next week. A grueling 7 weeks or more of external and 3 of internal. Sounds like a fun time.
I also had intestinal problems due to IBS which of course are worse during chemo. I have gotten very fleet of foot getting to the potty . Hoping this will subside. The anmeia is fun too though mine isn't to bad. Just enough to make climbing stairs interesting. I am taking iron tabs to help with that problem.
I know what you mean about thinking you could have a recurrance. Its my main worry. I even asked how they keep watch over you of my docs and I'm not even done yet. I mean really when you know your cancer is only 40-50 % survival rates with a recurrance within 2 years yowzer thats scary.
Anyway Your doing wonderful in my book. You hang in there!!!!
If anyone out there reads this and has UPSC sure could used some encouragement.
Thanks

DoonyL7 welcome to this site
I am sorry you have to join this journey with us. We will try to support and encourage you along your journey.

I too have UPSC stage 3-C. I initially had the sandwich treatment in 09. I have since had two recurrences in lymph nodes and had 6-7 rounds of chemo each time. I have been off chemo for four months. My CA-125 is rising already, so I know another round of chemo is on the way. I am hoping for two more months treatment free so I can go back on the taxol/Cisplatin. Luckily I have minimal side effects from the three rounds of chemo.

In the meantime I am trying to enjoy each day. I spend time with positive people and thank God for all the blessings he has given me.

Continue to take it one day at a time. Treat yourself well, and rest when you need it. Eat well and drink plenty of fluids. In peace and caring.

Ro10 said:

DoonyL7 welcome to this site
I am sorry you have to join this journey with us. We will try to support and encourage you along your journey.

I too have UPSC stage 3-C. I initially had the sandwich treatment in 09. I have since had two recurrences in lymph nodes and had 6-7 rounds of chemo each time. I have been off chemo for four months. My CA-125 is rising already, so I know another round of chemo is on the way. I am hoping for two more months treatment free so I can go back on the taxol/Cisplatin. Luckily I have minimal side effects from the three rounds of chemo.

In the meantime I am trying to enjoy each day. I spend time with positive people and thank God for all the blessings he has given me.

Continue to take it one day at a time. Treat yourself well, and rest when you need it. Eat well and drink plenty of fluids. In peace and caring.

Hello
Thank you Ro. I am still waiting for radiation schedule. I am trying to not dwell on the negative and get past my anger. I mean really being anygry is so energy draining isn't it. Anyway trying to eat better and drinking lots of water. Doc says my kidneys are exceptional lol. I told him what the heck I give them a good work out with my fluild consumption.
You take care.....lorna