recurrence of esophageal cancer

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Comments

  • Amjosmom
    Amjosmom Member Posts: 212
    #22
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    So sorry to hear this...
    But, Dan, there is ALWAYS hope! There are integrative medical treatments that work WITH chemo. My Dad is Stage IV and they originally only gave him FOUR MONTHS to live... four months!! Ugh. That was in August of 2010. There are many things you can do to have a long life with good quality, so NEVER give up!! I will PM you. You are not alone... remember that.


    ~Jayme
  • BMGky
    BMGky Member Posts: 621
    #23
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    I can't imagine what you are
    I can't imagine what you are feeling. I guess there is a point where numbness sets in until you pull together and start fighting.

    A friend of ours told us this week that his cousin (who has been dealing with recurrent tumors) is still fighting the fight. Seemingly, he's had tumors following EC treatment in both his colon and stomach. As he explained, they were self-contained and surgically removed. He's been dealing with EC for some six years. Our friend says that he is coming back from this last surgery, a little weaker, but moving on.

    We all are "Pulling for you." You are in our thoughts and prayers. BMGky
  • NLMCEM
    NLMCEM Member Posts: 50
    #24
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    Hope and keeping the fight going
    Dan, So glad you went in to find out and so sorry it was not good news. Hope and keeping the fight going now that you do know. The waiting is the hardiest. Now your Friday appointment can get the ball moving to find out what chemo, how often etc... the plans the goal to help you have a longer and better quality of life. Praying the chemo will shrink this and you will once again be back to eating again and feeling much better. You are in my prayers and thinking about you and everyone who is dealing with this horrible FEC.
    As for Nino, we know we have 2 months to enjoy when he has good days and HOPE that the next scan will show nothing getting larger, but as you and everyone knows we have to take it as it comes, a day at a time. Just so glad to have this support and all the information we can get to help us in our battles. A long with our Rants and Complaints and emotions, its wonderful to have friends here who do understand what we all are going through.
    Carolyn
  • paul61
    paul61 Member Posts: 1,392 Member
    #25
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    So sorry to hear this news
    Dan,

    I am very sorry to hear that your PET scan indicates potential metastasis. I think when you meet with your regular oncologist he can give you a better understanding of what comes next. If you are indeed Stage IV then chemotherapy is the probable approach. Please remember that PET scans have a way of indicating high update at previous surgical sites. Was the doctor reading the radiologist's report or was he interpreting the results on his own?

    I am sure at this point you are a bit numb from the news but know that there are a number of Stage IV survivors here that have gone far beyond their doctor's estimated survival time. I hope your oncologist has a specific plan for you when you meet with him on Friday.

    Best Regards,

    Paul Adams
    Grand Blanc, Michigan

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    Two year survivor

    Life may not be the party we hoped for, but while we are here we might as well dance!
  • jim2011
    jim2011 Member Posts: 115
    #26
    luck
    sometimes i think that if it wasnt for bad luck, i wouldnt have any luck at all. hang in there and pray for good luck and at the very least you are ready for the worst. you have the time to to right the wrongs and forgive who needs forgiveness. god be with you. i wish you the best of all out comes.
  • i35chica
    i35chica Member Posts: 16
    #27
    Healing Thoughts
    Several of your EC friends from the FB site are thinking about you. We are sending healing thoughts and prayers your way. I hope you feel their strength coming to you across cyber space. Several have been band off this site and wanted you to know that they are thinking of you. I am delivering their heartfelt message Cyber hugs from Texas : )
  • Bailey1459daughter
    Bailey1459daughter Member Posts: 3
    #28
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    Dan, Would Never Go without a Reply
    Of course this is Kelly, Sherri's daughter. I guess I will be here representing my Dad, Jim, unless I too get on someones nerves! When I speak, I will be speaking for my Mom Sherri as well.

    Dan, We know how hard this is for you and my Mom would like to hear from you personally. Please check your email. They are all thinking about you on esophagealcancerfighters.com
    They didnt have a chance to send their farewells but are thinking about you.

    Kelly, daughter of bailey1459
  • sandy1943
    sandy1943 Member Posts: 824
    #29
    DanTheMan said:

    i am a mess
    thanks guys your words are helpful....unfortunatley in just the last few days my swallowing has got to the point where its getting really hard and painful in my chest...i honestly thought it would not hit me so fast...i been eating ok for 2 years and then had small bowel surgery and a week later im getting swallowing problems..:( i always suspected after they start cutting you open in places that the cancer reacts in funny ways and maybe that is my case...i still have to wait until friday to see the oncologist about my PET scan results and tell him about my swallowing but i dont think i will make it that long without having to go to the hospital. losing my ability to eat or drink is pretty life threatening in the short term....its hard enough to deal with having crappy non curable cancer but then not being able to eat is just another hard thing to deal with in itself...Im pretty darn depressed and im barely holding my sanity at this point in time.I had plans for the near future and it feels like it is all getting taken away from me and i cant control it..Im sorry,i know positive things is what people want to hear and believe me its what i want too but i am starting to see the ugly side of this beast and im **** scared...:(

    Positive things is what we
    Positive things is what we all want to hear all the time, but unfortunately life isn't always fair. When people come on with good results, I want to celebrate with them, and cry when the results are bad. I know you are scared, it's only natural to be.
    I hate the Beast and what it has done to the lives of so many of our EC family.
    Praying for good Ct scan results.You might need to let the doctor know about the swallowing before Friday.. You need nurishment to keep your strength up.
    Please post how you are doing and also let us know the results On Friday.
    Praying for you,
    Sandra
  • rose20
    rose20 Member Posts: 258
    #30
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    Dan, I know it had to be hard to post this...
    Thank you for letting us know the results of your PET. I know it had to be so difficult to write it out.
    I am so very sorry for this news.
    I will be praying for you daily.
    I know it is hard to wrap your mind around this but NEVER give up the fight!!
    My brother is still in the fight after being told 25 months ago he only had a few months to live and then again this past July that he only had a month to live.
    He is no longer on chemo treatments but is taking a natural approach with Essaic tea that he feels is helping him.
    There is hope.
    Never give up on hope.

    Praying!!
  • sandy1943
    sandy1943 Member Posts: 824
    #31
    i35chica said:

    Healing Thoughts
    Several of your EC friends from the FB site are thinking about you. We are sending healing thoughts and prayers your way. I hope you feel their strength coming to you across cyber space. Several have been band off this site and wanted you to know that they are thinking of you. I am delivering their heartfelt message Cyber hugs from Texas : )

    Sorry, the scan is not
    Sorry, the scan is not looking good.Praying for comfort for you as you digest this latest setback!

    Sandra
  • Ginny_B
    Ginny_B Member Posts: 532
    #32
    DanTheMan said:

    im feeling no emotions
    Well i went to the oncology department at the hospital today as i explained to them that i was in pain and my swallowing was deteriating.I didnt see my usual oncologist as i have to wait until friday but i seen another general doctor...my results were in and not good news,tells me the pet scan showed up large uptake in my oesophagous and also in my small bowel where i just had The tumour removed which indicates active cancer in both areas...lol...i was prepared for this mentally,well at least i think i am.....I have read a great deal about recurring oesophageal cancer whether its local recurrence or distant recurrence,i have both..lol.i have to laugh..im trying so hard to keep a positive fight up against this and i know its my best hope of a longer and better quality of life.I almost certainly know my only chance now is with chemotherapy and if that doesnt work then alternative natural remedies are my only option.I am realistic to the fact that this thing is probably going to take my life but i am holding onto hope i can get some positive results and as much time as i can get...its all i can do right now.I think i know what FEC means and i say FEC!

    No words
    Dan, it's so difficult to hear the words you heard, but like all of the above messages said hope is always present. Never give up hope. Keep on fighting and trying new alternatives. Don't give in or up. 5 years ago my SIL was diagnosed with breast cancer, it went away, it came back. It did this 5 times until finally they said it went to the brain. She underwent whole brain rads and she's doing well and still fighting the good fight! She was against all odds and is doing well.

    You just keep on fighting. And it's ok to wallow and feel sad and even cry, but then pick yourself up and fight on! Remember, you are Dan the Man!

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