New here and wanted to say hello

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Comments

  • katenorwood
    katenorwood Member Posts: 1,912
    #22
    good sound advice from survivors
    Hard12Find,
    Sorry to have to welcome you to the group, but saying this there are great people here that can help you through alot of your questions and treatments. We have different dx's, but still will always be here for any and all support I can give you ! Katie
  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #23
    hwt said:

    Take a seat
    Take a seat on our bus and hang on for the ride. Happy to say there are enough of us able to stand up and give you a seat while you need it. It can be a rocky road but know that you will not get every side effect that you read about and each side effect comes in varying degrees. Some are very short lived while others tend to hang on. I always say "take it as it comes and deal with it". I hope your ride is an easy one.

    Thanks.....I think that is
    Thanks.....I think that is all any of us could hope for...an easy ride.
  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #24
    katenorwood said:

    good sound advice from survivors
    Hard12Find,
    Sorry to have to welcome you to the group, but saying this there are great people here that can help you through alot of your questions and treatments. We have different dx's, but still will always be here for any and all support I can give you ! Katie

    Thank you Katie, I am sure
    Thank you Katie, I am sure there will be a lot of questions......
  • Pam M
    Pam M Member Posts: 2,196
    #25
    Hello Jim
    Another one of the Stage four survivors (two nodes) chiming in here to wish you well. I was diagnosed nearly three years ago, and got my latest round of clean scans last month - looking forward to having you tell us (in a few months) that you're a new member of Club NED (no evidence of disease - the best many of us can hope for). Also like the others, want to assure you that even though the treatment is sometimes punishing, it is definately doable. Do well.
  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #26
    Pam M said:

    Hello Jim
    Another one of the Stage four survivors (two nodes) chiming in here to wish you well. I was diagnosed nearly three years ago, and got my latest round of clean scans last month - looking forward to having you tell us (in a few months) that you're a new member of Club NED (no evidence of disease - the best many of us can hope for). Also like the others, want to assure you that even though the treatment is sometimes punishing, it is definately doable. Do well.

    Thank you Pam, I appreciate
    Thank you Pam, I appreciate hearing from you....hope you are NED forever more.
    Jim
  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #27
    Hard12Find said:

    Thank you Pam, I appreciate
    Thank you Pam, I appreciate hearing from you....hope you are NED forever more.
    Jim

    Got my tube in followed
    Got my tube in followed directly by pretreatment PET, 40+ hours without food or water, lost 4 much needed pounds. Stomach muscles are sore but getting better, probably get my port on the 25th, don't understand why they couldn't do both at the same time. Anyway, mask is done, trying to gain weight and ready to battle the beast.
    I hope everyone is doing well and am praying for our little group as well as anyone facing this disease.
  • RayandLisa
    RayandLisa Member Posts: 4
    #28
    why is everything taking so long? Cleveland Clinic advice?
    my dad was diagnosed stageIV A in head and neck lymphs, nodes, submandibular and above where his larynx used to be. he is a total laryngectomee 20 years now and the cancer is back. he is 85. it has been since early summer for the discovery and has been such a long process to this point. his PET and set up with his oncologists have been addressed but thats it. he has no RAD or chemo schedules as of yet and today we are going for his feeding tube and port consult. monday he will be getting his markings and making his mask. i took it upon myself to schedule an appointment at cleveland clinic to be seen by the specialists there on tuesday sept 18th due to the lack of urgency where we currently live. i dont want this to interrupt the order of things or for it to cause him to lose his place in line but i feel the second opinions might be well worth the trip there on tuesday. after reading some of the posts here, some patients seem to expedite their treatments rather quickly. we may have dealt with cancer before but there was only 30 RAD treatments and then the laryngectomee 5 years later so we are relatively new to the process we are facing this time with chemo/RAD combined. has anyone dealt with treatment at cleveland clinic here? and does anyone have any advice about getting a second opinion? blessings to all. check back later to update bio and such. i do have knowledge of laryngectomee living as it has become a way of life for my dad for 20 years so any advice i can offer anyone is welcomed. being an advocate would be my way of paying it forward, so to speak. well wishes everyone...Lisa
  • Barbara B
    Barbara B Member Posts: 40
    #29
    Hard12Find said:

    Got my tube in followed
    Got my tube in followed directly by pretreatment PET, 40+ hours without food or water, lost 4 much needed pounds. Stomach muscles are sore but getting better, probably get my port on the 25th, don't understand why they couldn't do both at the same time. Anyway, mask is done, trying to gain weight and ready to battle the beast.
    I hope everyone is doing well and am praying for our little group as well as anyone facing this disease.

    You can do this
    Hello and welcome from one newcomer to another! Actually I am new to posting but not to reading. My husband was diagnosed last year with SCC base of tongue metasticized to the lymph node.

    The people on this site are amazing and there is a ton of great information. We are one year post treatment and he is doing great, as are so many others so you can do this too =)

    Happy to hear you have the PEG and definitely getting the PORT. Both were extremely helpful. My husband only lost 5 pounds through treatment thanks to chocolate shakes and Ensure Plus.

    We will continue to pray for you.

    Barbara

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