I'm praying NED come November ?

katenorwood
katenorwood Member Posts: 1,912
in Head and Neck Cancer #1
First and foremost thanks for all the prayers ! I am soooo relieved I switched clinics and now have an onc, that knows and works with my dx. He won't say for positive until my next PET in November but is leaning towards no evidence of disease. My dx will return eventually, (no clear margins, and perineural invasion) and he assurred me that he would attack it aggressively. And yes they have used rads and chemo to treat this dx. So saying this I am more apt to relax and let the man take the wheel for awhile, cuz I'm tired of the long road trip ! Also I have to see a GI specialist for the other issue. Doesn't think these are related but wants to make sure no issues with GI tract. So for today...yeah guys and gals life seems pretty darn good ! And if and when I need your guidence thru more treatments...I feel confident I'll be in the right spot ! You are the tops ! Katie
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Comments

  • ToBeGolden
    ToBeGolden Member Posts: 695
    #2
    Down the road?
    Glad you have been able to travel a little further down the road. Rick.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #3
    You Have Mine
    You have my prayers for Uncle NED to come visit you for a very long time....

    John
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #4
    WISHING YOU WELL
    Wishing you well and prayers and positive thoughts going forward.

    Best

    Mike
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #5
    luv4lacrosse said:

    WISHING YOU WELL
    Wishing you well and prayers and positive thoughts going forward.

    Best

    Mike

    Praying NED and the dx will NOT return :)
    Glad you have a happy spot now Katie ....we will continue to pray for NED :)

    Tim
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #6
    Tim6003 said:

    Praying NED and the dx will NOT return :)
    Glad you have a happy spot now Katie ....we will continue to pray for NED :)

    Tim

    Got your 6.
    We will be here when you need us Katie ( hopefuly you won't ) we've
    got your back.

    God bless
    Tonsil dad,

    Dan.
  • ratface
    ratface Member Posts: 1,337 Member
    #7
    Tonsil Dad said:

    Got your 6.
    We will be here when you need us Katie ( hopefuly you won't ) we've
    got your back.

    God bless
    Tonsil dad,

    Dan.

    I love November
    Wishing you a great November. It's been a great Scorpion month for me.
  • osmotar
    osmotar Member Posts: 1,006
    #8
    NED
    Best wishes and saying a blessing that NED comes your way.

    Linda
  • meaganb
    meaganb Member Posts: 244 Member
    #9
    I'm so glad you got some
    I'm so glad you got some good news. It's such a relief to find a Dr who is educated about ACC! I'm pretty sure my ENT knows more about it than my onco but that's fine with me as long as they work together! I'll be praying for a clean scan in November!
  • Crazymom
    Crazymom Member Posts: 339 Member
    #10
    good news
    Hope all goes well in November. I am having a CT Scan on Nov 13, Thursday. Hoping we all get good news.

    Ann
  • katenorwood
    katenorwood Member Posts: 1,912
    #11
    ToBeGolden said:

    Down the road?
    Glad you have been able to travel a little further down the road. Rick.

    hee-hee hopefully...
    Yeah way down the road if my luck holds out ! This dx will return in my case, not everyones. But it is thanking the heavens a slow growing one. Thanks Rick ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #12
    Skiffin16 said:

    You Have Mine
    You have my prayers for Uncle NED to come visit you for a very long time....

    John

    Uncle Ned...sister Ned
    John,
    Thank you, I've got fingers and toes crossed on this one. I am just so relieved...maybe can do some fishing with calming thoughts surrounding me to catch a walleye or two ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #13
    luv4lacrosse said:

    WISHING YOU WELL
    Wishing you well and prayers and positive thoughts going forward.

    Best

    Mike

    Mike,
    I will be praying for the same kinda news for you in the not to distant future ! Will be thinking of you ! Thank you ! Katie
  • ditto1
    ditto1 Member Posts: 660
    #14
    Crazymom said:

    good news
    Hope all goes well in November. I am having a CT Scan on Nov 13, Thursday. Hoping we all get good news.

    Ann

    Katie
    and NED what a couple. Expect you both will have a long relationship, as always you are in our prayers.
  • katenorwood
    katenorwood Member Posts: 1,912
    #15
    Tim6003 said:

    Praying NED and the dx will NOT return :)
    Glad you have a happy spot now Katie ....we will continue to pray for NED :)

    Tim

    Thank you !
    Tim,
    I too am praying for a permanent NED for us all. I give it completely over to the higher power. Not saying I won't continue to be proactive in my dx....try to stop me ! I will bask in my happy spot, and enjoy every second of it ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #16
    Tonsil Dad said:

    Got your 6.
    We will be here when you need us Katie ( hopefuly you won't ) we've
    got your back.

    God bless
    Tonsil dad,

    Dan.

    You all have made a great impact !
    Dan,
    I'm praying I won't need the option of more surgeries or tx's...but just knowing they are now there for me, wow...excellant ! I'll take all of you with me if need be...the clinic will have to expand to make room though ! Thank you Dan ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #17
    ratface said:

    I love November
    Wishing you a great November. It's been a great Scorpion month for me.

    Yeah I agree !
    ratface,
    In Minnesota this means deer season opener. I use to hunt for food, but no more. Now I hunt with my camera...life is pretty special and precious. I will be hunting and bagging NED though....with God's help ! Thanks, Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #18
    osmotar said:

    NED
    Best wishes and saying a blessing that NED comes your way.

    Linda

    Most appreciated !
    Linda,
    Thank you ! And did I read right on yours ? I haven't had time to read....need to do this tonite. Have another dr. appt. today. Scope city here I come ick ! But not H/N...the other end of the world. Thinking of you ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #19
    meaganb said:

    I'm so glad you got some
    I'm so glad you got some good news. It's such a relief to find a Dr who is educated about ACC! I'm pretty sure my ENT knows more about it than my onco but that's fine with me as long as they work together! I'll be praying for a clean scan in November!

    Clean scans for us both girl !
    Meagan,
    Acc...who'd a thought in a million yrs hunh ? Guessing this is so very true with all dx's. Stay proactive girl, and always question things you don't understand. Will be praying NED for both of us come Nov. ! Thinking of you ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #20
    Crazymom said:

    good news
    Hope all goes well in November. I am having a CT Scan on Nov 13, Thursday. Hoping we all get good news.

    Ann

    Hoping the same for you !
    Ann,
    Boy come Nov...yeah could be an exciting month for several of us ! As a fairly newbee on this site, I have learned so much ! But saying this it feels like an eternity. Thinking of you Ann ! Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #21
    ditto1 said:

    Katie
    and NED what a couple. Expect you both will have a long relationship, as always you are in our prayers.

    Like the sound of this !
    ditto1,
    If I were too have another relationship other than my hubby...it would most certainly be with NED ! Thank you for the huge smile ! Katie

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