Aromasin and Arimidex ???

Hi
Sorry, not much help here. I'm still on Arimidex but have heard from a friend that she did not notice a whole lot of difference when her doc put her on Aromasin. I just try to get a fair amount of exercise and stretch/yoga for brief periods throughout the day and it does seem to help a little. I sometimes think it doesn't but when I go a day or two without much exercise it is definately worse. Good luck, I will have you in my thoughts and prayers (along with the bagillion others!!!!!!)

Aromasin and Arimidex
Jenny,

I just signed up for this website and it's already a lifesaver! I was first diagnosed 7 yrs. ago and went through mastectomy, chemo and other surgeries. I was 4 1/2 yrs. good until I had a CT scan for an unrelated problem and found out the cancer had metastasized to my lungs. It's been 2 1/2 yrs since new diagnosis and they did switch me to Arimidex. I had no idea all this pain was from Arimidex!! The pain is horrible it's in all my joints, knees and feet. It's exactly like everyone talks about.....need to take about 10 steps before I can walk normally. I hate mornings because it takes forever to start to feel normal. I have to crack all my nuckels ( which I've never had to do before) to be able to move my fingers. I've talked to my oncologist about it and she's never said it could be a side effect. THANK YOU!!!!!! Any more suggestions on how to help it besides more meds?

Dawn

jennytwist said:

Hi Dawn..
Sorry you are going through this ... I hope you are doing better with the lung mets - is that under control now? Thank goodness they found it however -
I know a warm shower always help me - and I know about taking more meds for the meds you are taking! YIKES! I know it beats the alternative - but, I already have arthritis so this just seems to make it twice as bad! I see my Dad, who is 90 barely being able to walk - because of arthritis and I feel the same way almost - like you said, mornings are the worst - I feeled bruised from the inside out - all over!
Sorry to go on and on - so glad you are here on this website - it's wonderful and everyone is so very kind and caring! Do take care and keep fighting! I know exercise helps even though it's painful - I guess if I don't move it really is worse although, some days - staying in bed with a great book, several movies and dinner served seems the best!
take good care
much love,
-Jenny

Thanks Jenny
Jenny,

Please don't apologize for telling me what's going on with you. I very sorry you have to go through this but it's so nice to hear other people's story and know I'm not crazy or a big baby! Haha I have days too that I'm in bed bc of the pain. Then when you're in so much pain you take more pain med but then you're so tired from the pain meds and you're in bed anyway. If its not too personal and you don't want to answer this that's fine but what do you take for pain management? I was on Methadone and Oxycodone but switched the Methadone to OxyContin. I don't feel the OxyContin works very well. I'm going to see a new pain management team on Monday, hopefully they will have better ideas.

There's not much they can do about the lung mets. They are just trying to slow the cancer down from spreading. Last week they did a bone scan and saw it starting in the left hip. Ivealso been diagnosed with Cardiomyopathy. They say it's probably from the chemo. Ever since I did receive chemo I've had a lot of heart problems. Twice I had fluid built up around my heart and they had to go in and remove it. They put in a "window" the first time it happened and that was suppose to prevent it from happening again.....so much for that theory!

I'm sorry you have arthritis so bad. Did they find a med that helps you? Yes it is crazy to take med for side effects from other meds. Did you get the arthritis from chemo or did you have that before the cancer? I totally know how you feel when you said you feel like you're 80. I was 37 when I was first diagnosed. Too young to feel this old, that's for sure!

Thanks for listening,
Dawn