Homeward Bound

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  • JayhawkDan
    JayhawkDan Member Posts: 205
    #22
    Hospitals suck
    But they're also a necessity, of course. Hopefully you'll do better at home, as long as you get the care, therapy, etc., you need. I've been on my journey 7 months and haven't had to be hospitalized yet, but know I will somewhere along the line. Keep fighting the good fight and get back to being your ornery self as soon as possible. Hugs, Dan
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #23
    JayhawkDan said:

    Hospitals suck
    But they're also a necessity, of course. Hopefully you'll do better at home, as long as you get the care, therapy, etc., you need. I've been on my journey 7 months and haven't had to be hospitalized yet, but know I will somewhere along the line. Keep fighting the good fight and get back to being your ornery self as soon as possible. Hugs, Dan

    The plan is still to give
    The plan is still to give you chemo??? With a fever and infection can't see them giving you chemo!!!
  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #24
    Doc_Hawk said:

    Doctor
    Haven't seen him yet, but will on Tuesday. I'm taking Tylenol to keep the fever down. I am finding myself more exhausted today, feel completely drained and very little energy. Just going upstairs to say good night to my folks almost depleted me! I can't wait until the chair lift gets installed, hopefully it'll be before I get home from chemo on Tuesday.

    So glad you got home safe and sound...
    but it sounds like you're pretty wiped out still. Do you have anyone coming into to help? Or are your parents able to keep an eye on things? I wouldn't hesitate to head back to the hospital, regardless of what the insurance company thinks, if your symptoms get any worse. Hugs~Ann Alexandria
  • Doc_Hawk
    Doc_Hawk Member Posts: 685
    #25
    smokeyjoe said:

    The plan is still to give
    The plan is still to give you chemo??? With a fever and infection can't see them giving you chemo!!!

    Chemo
    My fever didn't show up last, my temp was no higher than 99.4. Today I'm on room air and not using the oxygen machine and my SpO2 is mid-90s. I'm still pretty weak and tired, but should be up to snuff by Tuesday. I've been pretty weak and unsteady when I finish infusion so my Dad is going to bring along his walker when he picks me up afterward.
  • steved
    steved Member Posts: 834 Member
    #26
    Oh no, the insurance men were right!
    That is great news and you sound like you have a bit of your spark back! Amazing what a bit of home cooking and sleeping in your own bed would do?

    Steve
  • Doc_Hawk
    Doc_Hawk Member Posts: 685
    #27
    steved said:

    Oh no, the insurance men were right!
    That is great news and you sound like you have a bit of your spark back! Amazing what a bit of home cooking and sleeping in your own bed would do?

    Steve

    sleep
    It is nice sleeping in my own bed and that's pretty much all that I want to do. Haven't had any home cooking yet. I'm the cook and not only can't do it right now, I just don't want to eat anything. I force myself to eat something, but I know it's not enough. Maybe I'll try an all natural solution to no appetite tomorrow.

    When I left the hospital, I was on 2 liters of oxygen all the time. Today, I checked my oxygen level on room air and it was 90, so I just stopped using the oxygen machine. While my level stayed at 90, my lips started turning a little blue, so now I'm back on canned air until I see the onc on Tuesday.
  • Dyanclark
    Dyanclark Member Posts: 296
    #28
    Doc_Hawk said:

    Thank all
    I really do appreciate it. It was very comforting when I'd read your posts and helped me to get up and about to start getting my wind back.

    Something that's kind of strange is that I haven't had a desire for a beer or any drink with alcohol. I guess it's my body telling me that it's not well enough for that stuff yet.

    Beer
    Well I hope you crave a beer soon and a friend can stop by and drink one with you. Take care.
  • Helen321
    Helen321 Member Posts: 1,460 Member
    #29
    There's a show called tanks
    There's a show called tanks that puts giant fish tanks in people's houses. Maybe we can turn your room into a tank with a floating bed and you can scuba in there. I'm glad you're home and glad you can at least control your own fluid intake. You know your own body. Insurance companies and nurses not the best help.

    I can send my sister over to visit you, she'd have you sleeping in 5-8 hour chunks in no time. Never stops talking, bores me to tears when she comes to help me. Puts me right out. I think maybe I'll make CD's of her and send them to those having trouble sleeping.

    Hang in there, maybe you can slip some wine into one of those IVs. Helen
  • danker
    danker Member Posts: 1,276 Member
    #30
    JayhawkDan said:

    Hospitals suck
    But they're also a necessity, of course. Hopefully you'll do better at home, as long as you get the care, therapy, etc., you need. I've been on my journey 7 months and haven't had to be hospitalized yet, but know I will somewhere along the line. Keep fighting the good fight and get back to being your ornery self as soon as possible. Hugs, Dan

    Hospitals
    They do suck!!! They are full od sick people who can pass their infections on to you. Sometimes, home is the best place.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #31
    Helen321 said:

    There's a show called tanks
    There's a show called tanks that puts giant fish tanks in people's houses. Maybe we can turn your room into a tank with a floating bed and you can scuba in there. I'm glad you're home and glad you can at least control your own fluid intake. You know your own body. Insurance companies and nurses not the best help.

    I can send my sister over to visit you, she'd have you sleeping in 5-8 hour chunks in no time. Never stops talking, bores me to tears when she comes to help me. Puts me right out. I think maybe I'll make CD's of her and send them to those having trouble sleeping.

    Hang in there, maybe you can slip some wine into one of those IVs. Helen

    If you're taking tylenol to
    If you're taking tylenol to suppress your fever I wouldn't do that before going to doc. or at least let them know. You may be reducing and hiding an infection or fever that they will only make note of if you've got a fever when they check you, not giving them an accurate picture of what's going on. Hope you're feeling better. Try some small snacks and see how that goes.

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