NED today :)

icemantoo said:

NED
Kathy,

Keep up the good work.


Icemantoo

MedScanMan said:

So now I've got a question
For the life of me I can't figure what you guys mean when you type NED. NAD has always been the abbreviation for No Active Disease. I'm going to feel stupid here but somebody please tell me what the E stands for. For the correct answer I’ll help interpret the next 100 imaging scans free of charge.

Jeff

MedScanMan said:

Contrast
I remember that the PA at my Urologist's office said it wasn't important to find mets when they are tiny because they don't treat mets until they reach a certain size anyway (don't remember the size. She just demonstrated with the tip of her finder).

I don't know if I've ever heard a more uninformed statement made. We all have different thoughts about PA's.....some of those thoughts are whether that position in the field of medicine should have ever been thought up. I'm not going to get carried away here Kathy. I will say that with a creatinine of 1.6 nobody is going to inject you. You might bring it down to 1.4 or below by hydrating yourself very well for a few months. Always drink lots of water. Sometimes the doctor will want the contrast so badly he'll have you lie on the CT table for about an hour just to hydrate you with normal saline in an IV drip. Then do the contrast exam. Many things are missed when no contrast is given. But you certainly don't want to find yourself in renal failure because of a CT scan. My suggestion is to talk to your doctor about an MRI instead. Even without IV contrast the MRI will pick up more and if they decide to do the MRI with and without.....well gadolinium used for MRI contrast is much less nephrotoxic than Iodine contrast for CT.

Hope that helped a little
Jeff

OH.....Congrats on your NAD report.

foxhd said:

MRI
Jeff, I've got a copy of my MRI but haven't wanted to look at it yet. I wanted to enjoy the long weekend first. Second of all, whether it was my last infusion or the addition of zometa, the bottom line is that I have had less pain in the past week than I have had in a couple months. So, perhaps I am improving and maybe I won't have the radiation. I'll wait till this coming week and I'll get it all sorted out. I am no longer in a panic about my future. It does feel a little strange to say that but I can wait. Now I'm thinking about what I'll be doing when I'm as old as Wedgie and Iceman. Thanx for your concerns.

Texas_wedge said:

Hi Kathy
I think I know Mike well enough by now to know he's a decent guy who takes every opportunity to try to help others and therefore that his suggestion to Kathy is meant to be a helpful idea.

However, when one looks at Kathy's picture, it's difficult not to laugh at the idea of a PET scan of her chest!!

Mike, if I'm being crass and it was a joke on your part, I apologise. Either way it reflects well on you - either a tension-relieving bit of fun, or a possibly helpful suggestion. If it was the latter, put my perception down to my warped sense of humour.

adman said:

I recently had a partial nephrectomy 8/30/17 and found just found out 6 weeks later the final on the biopsy report that my tumor was unclassified renal cell carcinoma. I am waiting on the pathology report to see the furhman rating and necrosis. In January I had bloodwork done that noted all of my kidney function and levels were normal and healthy. This also could have been that I was stage 1. I had a CT scan in Feb where I learned I had a spot on kidney from my gastroenterologist that needed to be looked at. I was then referred to a urologist and had an MRI done in June where I found out my tumor was most likely cancerous and needed to be removed. The only thing that came back on the bloodwork was that I had a vitamin D deficiency which I thought was unusual since I get lots of sun and even take a vitamin D supplement daily.