I'm new not to sure what to say?

lovemyfamily
lovemyfamily Member Posts: 1
in Breast Cancer #1
I was diagnosed with stage 2 invasive lobular carcanoma may 2012 have had surgery in june double mastectomy and total hysterectomy I have been through 2 rounds of chemo starting to lose my hair so I really don't like gettig out anymore and could use a few friends that are going through the same thing.I am 52 years old.

Comments

  • MAJW
    MAJW Member Posts: 2,510 Member
    #2
    Welcome..
    Glad you found us, but as " we" say, not the reason....you have found a great group of women....all ages, different types of breast cancer, in every stage, etc....and every stage of treatment...and those in remission...even though one may have the same type, everyone is different...

    Being on this board, you'll never be alone! Please keep posting...nothing is off limits..rant, rave, whatever you need...we're here for you...
    Hugs, Nancy
  • GMcD
    GMcD Member Posts: 134
    #3
    MAJW said:

    Welcome..
    Glad you found us, but as " we" say, not the reason....you have found a great group of women....all ages, different types of breast cancer, in every stage, etc....and every stage of treatment...and those in remission...even though one may have the same type, everyone is different...

    Being on this board, you'll never be alone! Please keep posting...nothing is off limits..rant, rave, whatever you need...we're here for you...
    Hugs, Nancy

    Hi. You are definitely in
    Hi. You are definitely in the right place. I am 2.5 yrs past diagnosis and this board is a place I could come to for any reason. It's also nice that we are all from different time zones and on nights I couldn't sleep, I always found someone here. I wish you all the best as your treatment continues.
  • New Flower
    New Flower Member Posts: 4,294
    #4
    GMcD said:

    Hi. You are definitely in
    Hi. You are definitely in the right place. I am 2.5 yrs past diagnosis and this board is a place I could come to for any reason. It's also nice that we are all from different time zones and on nights I couldn't sleep, I always found someone here. I wish you all the best as your treatment continues.

    Welcome
    Welcome to the board I am sure you will make friends and get support from other pink sisters and brothers here. I hope we can convince you to go out and enjoy life even during Chemo treatment
    I was diagnosed with lobular stage III 4 years ago and undergone mastectomy, chemo and radiation
    Hugs
    New Flower
  • tjohnson2310
    tjohnson2310 Member Posts: 168 Member
    #5
    Welcome
    Welcome to the network
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #6
    Welcome! you have come to
    Welcome! you have come to the right place...

    sorry you have been through so much...wow...Try a journal-that helped me a lot in hind sight. I have not gone through near what you have but can understand to some point. (I had lumpectomy and radiation & hystertcomy)

    I"ll check back to see how you are doing..

    Denise
  • missrenee
    missrenee Member Posts: 2,136 Member
    #7
    disneyfan2008 said:

    Welcome! you have come to
    Welcome! you have come to the right place...

    sorry you have been through so much...wow...Try a journal-that helped me a lot in hind sight. I have not gone through near what you have but can understand to some point. (I had lumpectomy and radiation & hystertcomy)

    I"ll check back to see how you are doing..

    Denise

    Hi and welcome
    This great group of people have helped me tremendously. You can come here to ask questions, rant, rave, laugh, tell a story or just tell us how you're doing today.

    You've been through a lot so far, but it sounds like you're moving forward and I'm hoping that you breeze through the chemo. I had 6 rounds of TAC and it was much more doable than I thought it would be. Soon, it will be a memory for you too.

    Keep us posted and stay in touch. We care.

    Hugs, Renee
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #8
    As everyone else has said,
    As everyone else has said, the people here are wonderful. I hope you find it as supportive as I have.

    It was two years ago when I first lost my hair. (I'm back in treatment and have lost it 3 times now.) At first going out in public was hard, I was very self-conscious of the sign on my head that said "cancer". But after being out a few times, I realized that I got more smiles than anything else. Yes, there have been people who asked questions I wasn't prepared to answer. And a few who would tell me about their friend with anything but breast cancer who was cured with coffee enemas, grape seed oil, magnets, etc. Eventually I found responses that worked for me with those folks. I'll say it again, most people just smile.

    I find hats and scarves the most comfortable way to deal with the hair loss. For me, a wig was uncomfortable and hot. And flat out bald exposed my sensitive scalp to too much sun. There is a basket of free hats at my treatment center, I always look. I've found some beautiful scarves at yard sales and the thrift store, so I have quite a collection now. Some one here recommended baby shampoo to clean my scalp, and it's worked well for me.

    Remember, we're here for you.

    Hugs,

    Linda
  • Rague
    Rague Member Posts: 3,653 Member
    #9
    Looking Good Feeling Better
    Just realized it was 3 yrs and 3 days ago today that I started A/C at the 'ripe young age' of 63. Where I live winters are long and brutal so keeping my head warm while sans hair was a bit of a challenge for me. Also I get cold easy anyway. I?m glad that I did chemo through winter as I HATE to wear anything on my head as it's too hot but my wigs, scarves, momba sox and ski caps did a pretty good job of keeping head warm. (Always had 'something' on at night or I froze.)

    During my 4 A/C (2 months), I lost all head hair and about 1/2 of eyebrows/eyelashes but not other hair. On the 12 weekly Taxol after mast. I lost all hair.

    If you haven't already been to a Look Good Feel Better class I suggest you find one in your area. They are put on by the ACS and/or your Center. They are to educate you about make up, wig care, all sorts of 'stuff' to do to help with 'keep on keeping on' while on chemo. You will be given a 'goody bag' full of name brand cosmetics and be taught by professionals. There will also probabily be wigs there for those who are in need.

    Winyan - The Power Within

    Susan
  • Pinky68
    Pinky68 Member Posts: 206 Member
    #10
    Rague said:

    Looking Good Feeling Better
    Just realized it was 3 yrs and 3 days ago today that I started A/C at the 'ripe young age' of 63. Where I live winters are long and brutal so keeping my head warm while sans hair was a bit of a challenge for me. Also I get cold easy anyway. I?m glad that I did chemo through winter as I HATE to wear anything on my head as it's too hot but my wigs, scarves, momba sox and ski caps did a pretty good job of keeping head warm. (Always had 'something' on at night or I froze.)

    During my 4 A/C (2 months), I lost all head hair and about 1/2 of eyebrows/eyelashes but not other hair. On the 12 weekly Taxol after mast. I lost all hair.

    If you haven't already been to a Look Good Feel Better class I suggest you find one in your area. They are put on by the ACS and/or your Center. They are to educate you about make up, wig care, all sorts of 'stuff' to do to help with 'keep on keeping on' while on chemo. You will be given a 'goody bag' full of name brand cosmetics and be taught by professionals. There will also probabily be wigs there for those who are in need.

    Winyan - The Power Within

    Susan

    Hi luvmyfamily
    So glad your here...my husband has often commented How much better I'm doing since finding this site!!!

    I was 42 when diagnosed 12/15/2010 and also lost my waist length,thick,curly hair...But it never bothered me until I went to work for the first time...the very first patient asked me "what happened to your hair", then I went to a minimart and heard about how his mom just died from breast cancer....ugh...I wasn't prepared for random people to make such bold comments..But I got used to it real quick and started enjoying the communication..

    Everyone with this beast responds differently, so please feel free to share your feelings and experiences!!
    Hugs,
    Joyce
  • trsmith0104
    trsmith0104 Member Posts: 35
    #11
    Pinky68 said:

    Hi luvmyfamily
    So glad your here...my husband has often commented How much better I'm doing since finding this site!!!

    I was 42 when diagnosed 12/15/2010 and also lost my waist length,thick,curly hair...But it never bothered me until I went to work for the first time...the very first patient asked me "what happened to your hair", then I went to a minimart and heard about how his mom just died from breast cancer....ugh...I wasn't prepared for random people to make such bold comments..But I got used to it real quick and started enjoying the communication..

    Everyone with this beast responds differently, so please feel free to share your feelings and experiences!!
    Hugs,
    Joyce

    Welcome - I too have
    Welcome - I too have invasive lobular carcinoma. I did a lumpectomy and am waiting to heal before I start any treatments. Feel free to email me or message me any time :)

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