Weird Cistplatin taste side effect

mom2greatkids
mom2greatkids Member Posts: 528
in Ovarian Cancer #1
Water. Just plain ole water tastes salty. A nurse told me that she has heard other cistplatin patients say the same thing. Oh well, I'm just drinking flavored water. Don't know what else I can do. The most frustrating part is when I'm out in public, and just want a sip of water. YUCK! I"m going to buy me some fresh lemons and make lemonade.

Weird stuff....

Carla

Comments

  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #2
    Same problem
    ..I found if I put ice in it and drink through a straw was more bearable, Food tasted funny too..bitter sometimes..and I LOVE to eat...Val
  • kikz
    kikz Member Posts: 1,345 Member
    #3
    poopergirl14052 said:

    Same problem
    ..I found if I put ice in it and drink through a straw was more bearable, Food tasted funny too..bitter sometimes..and I LOVE to eat...Val

    Sprite was my drink of choice
    during my treatment but when I had cisplatin, the Sprite tasted so weird I couldn't drink it any longer. I switched to cran-apple juice which tasted okay to me.


    Karen
  • mom2greatkids
    mom2greatkids Member Posts: 528
    #4
    poopergirl14052 said:

    Same problem
    ..I found if I put ice in it and drink through a straw was more bearable, Food tasted funny too..bitter sometimes..and I LOVE to eat...Val

    I can't even stand ice
    I can't even stand ice water. Thankfully, my food tastes haven't changed much. The only thing I've noticed is that I don't want salads, etc. But I am still recovering from pneumonia too, so those antibiotics have also messed with my taste and appetite.
  • Mwee
    Mwee Member Posts: 1,338
    #5
    me too
    I need to add lemons or limes to water, but unsweetened ice tea tastes good to me.
    (((HUGS))) Maria
  • Felicia_205
    Felicia_205 Member Posts: 79 Member
    #6
    I have noticed that too. My
    I have noticed that too. My tastes buds and appetite are not quite back to normal. I found that room-temp cran-grape juice was tolerable. I couldnt and still cant really stand the taste of water unless it is room temp bottled water. I can't really stand the taste of anything cold except for snapple which I find delicious.
  • Glad to be done
    Glad to be done Member Posts: 569
    #7
    Felicia_205 said:

    I have noticed that too. My
    I have noticed that too. My tastes buds and appetite are not quite back to normal. I found that room-temp cran-grape juice was tolerable. I couldnt and still cant really stand the taste of water unless it is room temp bottled water. I can't really stand the taste of anything cold except for snapple which I find delicious.

    How much do you have too
    How much do you have too drink? My doc had me on 80 oz. of fluid a day for 3 days after treatment and that didnt inclde the 2 liters of fluid I got on day 2 of my cycle. I got so sick of drinking.... My husband got me the drops called Mio that you put in water to flavor it. They have a bunch of flavors. I would drink ginger ale or sprite. Gatorade was also great too but I gotta be honest. I dont think I will EVER drink gatorade again... lol
    Make sre you drink ALOT because cisplatin depletes the fluid. I made the mistake of not drinking enough and ended up in the ER after I passed out on the tile kitchen floor... Ended up with a concussion.


    About half way through my treatments I lost my taste for coffee. It is back though. Althogh I don't have as much as I used to...
  • kayandok
    kayandok Member Posts: 1,202 Member
    #8
    weird taste
    Hi Carla, when i was on cisplatin, water tasted like grapefruit juice to me. But when I squeezed a few lemons into the water, it tasted like normal water. Lemonade is a great idea!
    K
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #9
    I am not on cistplatin but I
    I am not on cistplatin but I have the same problem with Carbo/Taxol when I was on it and now with the Carbo/Gemzar. I drink flavored water and food tasit funny so it makes it to were I do not want to eat. If you find something you like stick to it but I have found that even doing that the taste can change on that also.

    Anne

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